Ways I Didn't Expect AS to Affect Our Lives...Looking back on my life, it's always strange to think about what it was like in college. Keegan, my husband with AS, was just beginning to show symptoms. We studied...reactions6comments
Periods and Ankylosing Spondylitis: How I Manage...Whenever my period is on its way, I know the true (monthly) battle is beginning. Not only do I contend with the fatigue and pain from ankylosing spondylitis (or radiographic...reactions14comments
The Frustrations Of Arthritis Advocacy...Outsiders could be forgiven for mistaking the constant parade of advertisements for treatments for arthritis, psoriasis, Crohn's disease, and ulcerative colitis for proof that the war is over. Taken together...reactions1comment
Like Mother, Like Sons: Part 2...Editors note: This is part 2 of Jed's interview, and part 1 can be found here. If you didn’t read “Part 1” yet, Brenda (32) is diagnosed with RA, while...reactions1comment
A Holiday Season Like No Other...The holidays are a time for family, for gathering and catching-up and enjoying the company of our loved ones. Living away from family, the holidays are one of the few...reactionscomments
Women Don’t Get AxSpA?! This Old Story Needs to Go!...I have recently changed rheumatologists. I have been living with AxSpA for seven years, if we don’t count the years I had symptoms but was not diagnosed with a particular...reactions2comments
Feeling Frustrated...I am so frustrated and angry. I moved 3 years ago and can't find a rheumatologist in my area that doesn't want my medical records before they will even make...reactions2comments
Reflecting On My Past Year With AS...I turned 35 on November 3 (yes, election day, and no — that wasn't ideal at all, ha!). The night before — before midnight — I got into the bath...reactions1comment
How do I know if I have ankylosing spondylitis?... Many people in our community come here looking for answers. Most of us here know what that feels like. What were some of symptoms that lead you to seek...reactions5replies
Stepping Back From the Community When It Becomes Too Much...I've said it a million times, and I'll probably say it a million more; the chronic illness community is one like no other. There is so much love and support...reactions1comment
Spondylitis, Spondylosis, Spondylolisthesis: What Is the Difference?...The names of 3 health conditions that affect your spine sound very similar. However, spondylitis, spondylosis, and spondylolisthesis have some key differences. Here is a guide to each one. As...reactions2comments
44 Years To Diagnosis...I had my first low back pain “attack” at 14. Doctors gave me pain meds, muscle relaxers and said go home and use a heating pad. That one lasted about...reactions1comment
Love Reading, Hate Neck Pain...I love reading and spend a lot of time in my chair with my neck bent down or in bed on my side reading. My physical therapist suggested I get...reactions2comments
Smart Crutches Were My Best Choice...I’m 22 years old (soon to be 23) and I’m already having movement problems stemming from the pain and stiffness of AS (along with fibromyalgia and fatigue problems). I’ve used...reactions1comment
Food Limitations...Which foods have you sacrificed, and has it really been worth it for improving your pain?...reactions6repliesDiet & Nutrition
Cultivating Resilience In Hard Times 103: Celebration & Beauty...I’m writing this in October, the 70th month of 2020, in the year of our Despotic Overlord COVID-19. The pandemic has shoved 2020 into the record books as a year...reactions2comments
What Next?: Feeling Lost Immediately After Diagnosis...I remember the moment when the doctor's office called Keegan, my husband, to tell him of his AxSpA diagnosis. I remember it was rainy that day, and I had just...reactions1comment
Is heat or cold better for ankylosing spondylitis?...When you are in pain or flaring, does heat or cold work better?...reactions13replies
Has anyone tried Sulfasalazine?...Wondering if it helps and if I should prepare for any side effects? Read more about Sulfasalazine here....reactions1reply
AxSpA Recipe Exchange...This is a forum to share and exchange recipes! Maybe it's a baked good you started making while spending more time at home, or a comfort food recipe passed through...reactions4repliesDiet & Nutrition