Coping: My New Life with AS...Hi y'all, I have been diagnosed since July with ankylosing spondylitis. It causes stiffness and affects my joints, tendons, and ligaments. I have pain in all my joints and feet...Reactions0reactionsComments3 comments
My Spine is Like a Roller Coaster...I like roller coasters. I have not been on one for several years as my arthritis issues generally do not allow me to stand and walk freely around a large park...Reactions0reactionsComments2 comments
How do you cope with fatigue from AxSpA?...Living with axial spondyloarthritis can bring chronic and unpredictable pain and flares. Many in the community share struggling with constant fatigue brought on by AxSpA. Let's have a conversation about...Reactions0reactionsComments6 replies
Have you ever been diagnosed with interstitial cystitis or experienced any type of bladder issues with your AS?...This week I was diagnosed with Interstitial Cystitis. I have heard people in the community mention they have bladder issues, and upon further research learned that sometimes IC is linked...Reactions0reactionsComments10 replies
Doing Halloween Safely At Home!...Celebrating Halloween with AxSpa can be difficult. Some of us can't trick-or-trick due to mobility issues, don't feel comfortable going out because we're immunocompromised, are in a flare, or any...Reactions0reactionsComments1 comments
Aids for everyday life...Hello everyone! I’m suffering from wrist and forearm pain from typing in my laptop. Any one has any idea of what kind of cushion/aid could help with this?...Reactions0reactionsComments1 repliesAssistive Devices
What My Rheumatologist Suggested For Fatigue...Fatigue is my worst enemy. I almost never stop talking about how tired I am, and I’m sorry if you’ve ever had to experience it. It’s not my fault, though!...Reactions0reactionsComments4 comments
Learning Adult Lessons Through Having AS...Perhaps a silly title, finding out how to go from a teenager to an adult was quite a journey for Keegan, my husband with AS. We started dating at 17...Reactions0reactionsComments1 comments
My Illness Through My Children's Eyes: An Interview...When I was first diagnosed with AS, my number one worry was how my illness was going to impact the lives of my children. I have two young boys, and...Reactions0reactionsComments2 comments
What Happens When I Overdo It...Ever since COVID hit, I haven’t really been active. I wasn’t the most active person before, but I’ve barely even done yoga since March. I know I should be, I...Reactions0reactionsComments2 comments
Others May Not “See” It. But I Feel It....During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go unnoticed despite the major impact your illness has...Reactions0reactionsComments1 comments
Misdiagnoses - Isolation - Rock Bottom - Google - Final Piece of the Puzzle...I'm a 45 year old mother of two. Many of you have the same story. Random exhaustion, aches and pains since a child. Always wondering what is wrong with me...Reactions0reactionsComments1 comments
Did Your AS Show Up on an X-ray or an MRI?... I'm undiagnosed but I know I have AS. My rheumy will not diagnose me cause my x-ray did not show up damage to my sacroiliac joints. However I have...Reactions0reactionsComments3 replies
What To Do About Morning Headaches... I wake up from sleeping (after a night of sleep or a nap) with a headache. I know it’s from the pain in my neck and positioning but I’m...Reactions0reactionsComments8 replies
"It’s Not the Blender": Being Pro-Active vs. Reactive to my AS...It was December last year, as I slumped on our bedroom floor, having my suddenly burst into tears about having to carry a blender home (stick with me, there’s a...Reactions0reactionsComments3 comments
Fibromyalgia, the Unannounced Passenger…...Once my axial spondyloarthritis was under control with a prescription of biologics and physiotherapy, on paper I was sorted. Yet, pain and fatigue were there. At that time, I was...Reactions0reactionsComments2 comments
My Top 5 Comfort Must-Haves For AS...When I started experiencing symptoms of AS, comfort suddenly became the forefront of my life. If you suffer from AS, then you probably know the struggle of always trying to...Reactions0reactionsComments15 comments
Getting Hygge On Flare-Up Days...I've taken a very intentional approach to how I use my space when I'm in a flare-up. If I'm going to be sleepy or in pain, I may as well...Reactions0reactionsComments1 comments
Become an AxialSpondyloarthritis.net Advocate...Would you like to share your experience with axial spondyloarthritis and help others who are also living with the condition? We’re looking to add new voices to our advocate team...Reactions0reactionsComments0 comments
Nightmares When I Go Back To Sleep in the Morning...Horrible nightmares usually happen after going back to sleep in early morning. They are particularly bad on the last night of a three day Fentanyl patch. Community question: Have you...Reactions0reactionsComments2 comments
