Active yesterdayWhat nutrition or dietary changes have you made to manage AxSpA?...Share with the community nutritional or dietary changes you've made since your axial spondyloarthritis diagnosis. Have you found recipes that have helped you feel better while managing AxSpA? Consider sharing...reactions14replies
When It Comes to Treatment, When Do You Leave Well Enough Alone?...Finding an effective medication for any chronic disease can be a challenge for both patient and doctor. Before I got sick myself, it seemed simple enough: Just match up the...reactions3comments
How AS Affects the People Around Us: An Interview...I wanted to interview my two closest friends to see how my AS affects them. How do they feel when I’m in a flare-up? I know how I feel, but...reactions1comment
My 50th Bday Present was a Walker...This is my story, or should I say journey? It took 35 years to get a simple diagnosis! Day after day. Week after week. Month after month. Year after year...reactions10comments
Finding a New Normal with AS...2020 has been an interesting year, to say the least. The COVID-19 pandemic prompted a global response and altered the day-to-day lives of people across the world. One thing I’ve...reactions1comment
Jes Hojsan...Jes is a mom of 2, married to her high school sweetheart, and calls CFB Petawawa Ontario home. She is grief and chronic illness advocate as well as the creator...
Is Chronic Illness My Entire Identity Now?...When I got seriously sick and diagnosed with axial spondyloarthritis in 2017 — I mean, I'd had symptoms (uveitis, fatigue, stomach issues, light back pain) for a decade but we...reactionscomments
Exercise is Medicine!...This saying is not from me. I heard it during the presentation of a rheumatologist specialised in AxSpa. I thought this was a strong message delivered by a specialist. I...reactions5comments
Cultivating Resilience In Hard Times 102: Structure, Commitments, And Opportunities...The iconic Hills Are Alive scene from The Sound of Music has been reborn a thousand times over in memes. Generally, a picture of Maria, arms outstretched, with the Alps...reactions1comment
Arden Doerner Barbour...Arden was previously a health leader on AxialSpondyloarthritis.net. Arden Doerner Barbour was diagnosed with non-radiographic axial spondylarthritis in May 2020. She went from being an active Coloradan enjoying everything Colorado...
The Second Wave of COVID-19 is Here...It’s not a huge surprise. We all knew it was coming. School has started back up and here we are. I live in Canada, so the numbers aren’t as staggering...reactions1comment
Tanya Harrison...Dr. Tanya Harrison calls herself a “professional martian.” She has spent the last decade working as a scientist and in mission operations on multiple NASA Mars missions, including the Curiosity...
Coping: My New Life with AS...Hi y'all, I have been diagnosed since July with ankylosing spondylitis. It causes stiffness and affects my joints, tendons, and ligaments. I have pain in all my joints and feet...reactions3comments
My Spine is Like a Roller Coaster...I like roller coasters. I have not been on one for several years as my arthritis issues generally do not allow me to stand and walk freely around a large park...reactions2comments
How do you cope with fatigue from AxSpA?...Living with axial spondyloarthritis can bring chronic and unpredictable pain and flares. Many in the community share struggling with constant fatigue brought on by AxSpA. Let's have a conversation about...reactions6replies
Have you ever been diagnosed with interstitial cystitis or experienced any type of bladder issues with your AS?...This week I was diagnosed with Interstitial Cystitis. I have heard people in the community mention they have bladder issues, and upon further research learned that sometimes IC is linked...reactions10replies
Doing Halloween Safely At Home!...Celebrating Halloween with AxSpa can be difficult. Some of us can't trick-or-trick due to mobility issues, don't feel comfortable going out because we're immunocompromised, are in a flare, or any...reactions1comment
Aids for everyday life...Hello everyone! I’m suffering from wrist and forearm pain from typing in my laptop. Any one has any idea of what kind of cushion/aid could help with this?...reactions1replyAssistive Devices
What My Rheumatologist Suggested For Fatigue...Fatigue is my worst enemy. I almost never stop talking about how tired I am, and I’m sorry if you’ve ever had to experience it. It’s not my fault, though!...reactions4comments
Learning Adult Lessons Through Having AS...Perhaps a silly title, finding out how to go from a teenager to an adult was quite a journey for Keegan, my husband with AS. We started dating at 17...reactions1comment
