Learning Adult Lessons Through Having AS...Perhaps a silly title, finding out how to go from a teenager to an adult was quite a journey for Keegan, my husband with AS. We started dating at 17...reactions1comment
My Illness Through My Children's Eyes: An Interview...When I was first diagnosed with AS, my number one worry was how my illness was going to impact the lives of my children. I have two young boys, and...reactions2comments
What Happens When I Overdo It...Ever since COVID hit, I haven’t really been active. I wasn’t the most active person before, but I’ve barely even done yoga since March. I know I should be, I...reactions2comments
Others May Not “See” It. But I Feel It....During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go unnoticed despite the major impact your illness has...reactions1comment
Misdiagnoses - Isolation - Rock Bottom - Google - Final Piece of the Puzzle...I'm a 45 year old mother of two. Many of you have the same story. Random exhaustion, aches and pains since a child. Always wondering what is wrong with me...reactions1comment
Did Your AS Show Up on an X-ray or an MRI?... I'm undiagnosed but I know I have AS. My rheumy will not diagnose me cause my x-ray did not show up damage to my sacroiliac joints. However I have...reactions3replies
What To Do About Morning Headaches... I wake up from sleeping (after a night of sleep or a nap) with a headache. I know it’s from the pain in my neck and positioning but I’m...reactions8replies
"It’s Not the Blender": Being Pro-Active vs. Reactive to my AS...It was December last year, as I slumped on our bedroom floor, having my suddenly burst into tears about having to carry a blender home (stick with me, there’s a...reactions3comments
Fibromyalgia, the Unannounced Passenger…...Once my axial spondyloarthritis was under control with a prescription of biologics and physiotherapy, on paper I was sorted. Yet, pain and fatigue were there. At that time, I was...reactions2comments
My Top 5 Comfort Must-Haves For AS...When I started experiencing symptoms of AS, comfort suddenly became the forefront of my life. If you suffer from AS, then you probably know the struggle of always trying to...reactions15comments
Getting Hygge On Flare-Up Days...I've taken a very intentional approach to how I use my space when I'm in a flare-up. If I'm going to be sleepy or in pain, I may as well...reactions1comment
Become an AxialSpondyloarthritis.net Advocate...Would you like to share your experience with axial spondyloarthritis and help others who are also living with the condition? We’re looking to add new voices to our advocate team...reactions2comments
Nightmares When I Go Back To Sleep in the Morning...Horrible nightmares usually happen after going back to sleep in early morning. They are particularly bad on the last night of a three day Fentanyl patch. Community question: Have you...reactions2comments
Debilitating Pain After Laying New Flooring...I read so many stories about how one "outing" can cause several days of so much pain and being couch ridden. The other day, I felt soo good for two...reactions1comment
Thankful for Others Sharing Their Story Here...I read the same story over and over, I’m thankful all the information on this site! We all seem to have the same pain and very troublesome sleeping problem with...reactions1comment
AS Took Ahold of My Steering Wheel...I have had back pain for 10 years. However, one year ago, I had this uncomfortable pain on my sacrum that did not subside. I could not sit, stand, or...reactions4comments
Need Relief...I am 49 years old, going on 50 soon. I have had back and neck pain for years. I started to notice it after I had a major brain surgery...reactions1comment
This is a Pain in the Neck...I have had problems with my back and neck for many years. Scans in the past showed “AS” but after a single layer discectomy and fusion of my C6 and...reactions1comment
Letting Go of What You Can't Control...The easiest and most logical thing in theory, and for me, incredibly difficult to put in practice. I found the concept a bit tricky before I had AS. I found...reactions1comment
Physical Therapy for Ankylosing Spondylitis?...I recently slipped on a water spill at our local mall. It resulted in PT, starting in water. I feel as if my as pain is worsening, I’m unable to...reactions2replies
