How I Balance My Social Life With AxSpAIt’s no secret that AS has changed my life forever. Five years ago I was a completely different human. I was able to work, go out places, and see people... By Steff Di PardoBookmark for later Reactions 0 reactions Comments2 comments
Chronic Illness Burnout: Taking a Step BackI've been part of the Health Union community for two years! And I'm so proud of that fact. I pride myself on connecting with so many of you here and... By Lisa Marie BasileBookmark for later Reactions 0 reactions Comments0 comments
An Unnerving Complication of AxSpa: CostochondritisAxial spondyloarthritis is a systemic disease, so I know it has the potential to affect any organ system (and therefore any area) of the body. But when a new symptom... By Jessica GamaBookmark for later Reactions 0 reactions Comments4 comments
Nerve Block Injections for ASI have been getting biologic infusions every month for almost 2 years. While it reduces inflammation and slows down fusion, it doesn't help much with pain and fatigue. I still... By Anna SamsonBookmark for later Reactions 0 reactions Comments2 comments
Having a Productive Day With Less Usable HoursI saw a post on Instagram not too long ago discussing how many chronically ill individuals have less usable hours in a day than those who are able-bodied and healthy... By Sarah LeeBookmark for later Reactions 0 reactions Comments3 comments
Chronic Illness GriefGrief can occur in many ways, and this can affect one's mental health. I study social care in college. We learn a lot about grief in this course. There is... By Ali LongBookmark for later Reactions 0 reactions Comments6 comments
Breathing Through the ChaosSince the onset of the pandemic, the flow of daily life has done a 180-degree turn and flipped on its head. Access to many of life's conveniences – the so-called... By Rebecca CBookmark for later Reactions 0 reactions Comments4 comments
Learning To Pace Myself Has Changed My LifePacing is probably the most useful thing I have learned on my journey to live better with AxSpa, and with fibromyalgia too. I did not know anything about pacing before... By Julie VallortigaraBookmark for later Reactions 0 reactions Comments8 comments
Emotions Are a Part of Having AxSpaHaving AxSpa is no fun at all. I don’t wish it on anyone. It can make you feel so many emotions. It can make you feel emotions you wish you... By Nicky FlikasBookmark for later Reactions 0 reactions Comments3 comments
Strength Training and Ankylosing SpondylitisOver the last few blogs, you may have gathered I am a yogi and personally believe it is the most important form of movement for AS. That is why I... By Jamie BoderBookmark for later Reactions 0 reactions Comments1 comments
Ireland’s National Arthritis Week Here in Ireland Arthritis week takes place between the 4th and 10th of April. I always like it when there’s an international or national day/week dedicated to arthritis or AxSpa... By Ali LongBookmark for later Reactions 0 reactions Comments0 comments
Empowering Myself Through Negative JudgementsRecently I made an Instagram reel regarding how abled individuals, or those we surround ourselves with, are so quick to have opinions on how we choose to cope and go... By Sarah LeeBookmark for later Reactions 0 reactions Comments3 comments
Trouble Falling AS-leepI have always been a bit of a night owl, but since AS forced its way into my life, it has taken things to a whole new level. The fact that I’m... By James HollensBookmark for later Reactions 0 reactions Comments25 comments
The Mind-Body-Spirit Axis: Holistic Flare TipsI’ve noticed that my flare ups are 100 times worse when my mind, body, and spirit are not aligned. More pain. More tears. More feeling of a lack of control... By Lisa Marie BasileBookmark for later Reactions 0 reactions Comments7 comments
Going Through a Breakup With a DisabilityThis is something I wasn’t sure I wanted to talk about openly. It’s hard when you’re in a relationship with someone and want to respect their privacy. Though this is... By Steff Di PardoBookmark for later Reactions 0 reactions Comments5 comments
You Are Valid!Living with AxSpA is a daily fight, and yet on top of this we are expected to fight for ourselves as patients and humans. Doubt, misdiagnosis, and getting taken seriously... By Jed FinleyBookmark for later Reactions 0 reactions Comments2 comments
Trying To Find Some Positivity Out of My Rheumatology AppointmentToday was my 3 month follow up appointment with my rheumatologist. I am trying keep a smile on my face and find some positivity out of today's appointment. I don't... By Nicky FlikasBookmark for later Reactions 0 reactions Comments0 comments
The Easing of COVID Restrictions and My Fourth VaccineAs Covid restrictions ease here in Ireland, my anxiety levels are doing the opposite. I understand that we can’t live forever in a lockdown, we as a world need to... By Ali LongBookmark for later Reactions 0 reactions Comments3 comments
Signs Someone is Struggling With Their IllnessThere’s a lot of weight that comes with living with a chronic illness. We often don’t show it, because if we did surrender to that struggle, it would be difficult... By Sarah LeeBookmark for later Reactions 0 reactions Comments0 comments
3 Tips for Caregivers When They’re Not NeededSometimes Keegan, my husband with AxSpa, doesn’t need me. Sometimes, Keegan is back at 80% or 90% or 99%, and I am not needed. It’s a strange place to be... By Auldyn MatthewsBookmark for later Reactions 0 reactions Comments4 comments
