Living

I’ve been on biologics now for two and a half years. Before biologics, I was desperate for relief from the pain my AS was causing. I was taking the maximum...

As anyone living with axial spondyloarthritis (AxSpa) knows, one of the critical aspects of navigating AxSpa is redefining what success means after diagnosis. The sense of loss and frustration can...

I was sitting my rheumatologist's office, when he mentioned "I think you should look into a breast reduction." This never crossed my mind. I was so angry at my doctor...

Are you living with axial spondyloarthritis (AxSpA) and looking for ways to improve your quality of life? Do you have questions about how lifestyle changes can help you manage your...

I used to be a runner, a golfer, ice hockey player, and could stay up all night laying down floor tiles. I once created 12 six-foot tall plywood letters, and...

Broken sleep and nighttime pain are challenging aspects of living with AS. Over time I’ve developed some strategies that help me manage when these symptoms crop up. It’s usually the...

I’ve never been a massive fan of “traveling,” but I appreciate arriving at my destination. Before 2020, I used to travel quite often for work, but nowadays, I appreciate the...

Everyone should have a rheumatologist, a pivotal medical expert specializing in axial spondyloarthritis (AxSpa). They're the ones who master the complexities of the condition. However, the truth is, the quality...

I've been on a weighty journey—a journey characterized by declining health and disability. It is undeniably cumbersome. Chronic illness has disrupted the life I once treasured, reshaping it in unexpected...

I am facilitating a course on lifestyle management for people living with long term conditions, with difficult life circumstances, and in need of support from peers and health coaches to...

We are going three years on Cosentyx. Cosentyx is the fourth biologic that I have been on, and also the one I've been on for the longest time. Before Cosentyx...

Living with a chronic inflammatory condition like axial spondyloarthritis (AxSpA) can often make us feel like outsiders in a world that doesn't fully understand our experiences. One of the unique...

We’ve probably all heard the phrase "comparison is the thief of joy." People usually say this to mean that you should stop comparing yourself to other people. The idea is...

Ankylosing spondylitis/axial spondyloarthritis (AS/AxSpA) is a chronic inflammatory disease that primarily affects the spine. It can cause severe pain and stiffness in the joints, leading to a significant decrease in...

The Giveaway is now closed. Thank you for your interest! Managing axial spondyloarthritis (AxSpa) is like growing a delicate plant. Just as the plant needs the right conditions to be...

Living with a condition like AS is extremely draining, both mentally and physically. While medication can help manage the physical side of things (although it is not that easy and...

Someone once told me to never skimp when buying the tools you’ll use the most. This has taken on a new meaning for me thanks to my axial spondyloarthritis. I’ve...

After my diagnosis with AxSpa one doctor told me that I needed to pace myself to manage chronic pain and chronic fatigue. I had no clue what pacing was and...

"How are you feeling today?" "How are you really feeling today?" The question I wish someone would reach out and ask me more often. So many of us with this...

Just when things felt like they were getting steady with Keegan’s treatment plan, that all went out the window. We’ve been through a long diagnosis, multiple treatment plans, and a...