How to Communicate to Someone That They Hurt Your FeelingsOne of the hardest lessons I've learned over the years is the importance of communicating your feelings, especially when hurt by a...reactions2comments
What I Wish Someone Told Me When I Was Diagnosed With ASThe scariest and most confusing time of my life was when I was diagnosed with ankylosing spondylitis. A condition with a long...reactions11comments
Foot Pain Helped Me Get Diagnosed With AxSpa!When we think about foot pain, we often don’t think of it being a common axial spondyloarthritis symptom. For me, this was...reactions28comments
Stepping Up To Better Foot Care With ASIn a previous article, I mentioned that one of the signs I wish my pre-diagnosed self had picked up on was that...reactions9comments
Feeling the Pressure from Able-Bodied People to Get BetterOne thing has remained a constant throughout the decline of my health these last two years. I feel a looming pressure to...reactions5comments
Learning to Live Again with My IllnessA while back I started becoming overwhelmed with my health. It controlled me day in day out. I felt like I had...reactions4comments
Reflecting on Disability Pride Month as a Person With ASJuly was Disability Pride Month, which I had never heard of before I was diagnosed with ankylosing spondylitis. Now, I really look...reactionscomments
When Our Loved Ones Don’t Get ItI feel like more often than not, our loved ones don’t tend to understand our illnesses. It might take conversation and time...reactions2comments
The Strobe Light Effect: What People Get Wrong About Chronic IllnessI was watching a cop show the other day, and one of those “drug-addled club” scenes came on. You know, the one...reactions2comments
How I Approach The New YearHappy New Year! What does the start of the new year mean to you? To me, this question has shifted over the...reactions2comments
New Year, Same BodyWhat do I want to make sure to get out of this year? Some common New Year's resolutions have to do with...reactions4comments
Three Ways I Overcame Anxiety About (Another) DiagnosisAs I sat in that sterile conference room, awaiting confirmation from my genetic counselor, I couldn't help but feel detached from the...reactions4comments
How AS and AxSpa Are Different For WomenIn the past, doctors thought that ankylosing spondylitis (AS) and axial spondyloarthritis (AxSpA) were more common in men than women. Now, there...reactions20comments
My Journey with Infliximab Infusions for Ankylosing SpondylitisI get infliximab infusions (under the brand name Inflectra) for my AxSpa every four weeks. Inflectra is a biosimilar of Remicade. This...reactions3comments
How Diet and Lifestyle Changes Impact My AS SymptomsShortly after my diagnosis, I started to investigate diet and lifestyle changes to help fight ankylosing spondylitis. I wanted to become the...reactions5comments
What My AxSpA Diet Looks LikeWe hear a lot of conversations around well-being and diet, especially in the chronic illness community. We are often told that diet...reactions1comment
Beat the Winter Chill with Our Cozy AxSpA Giveaway!GIVEAWAY CLOSED - Thanks for participating The colder months can often mean increased stiffness and discomfort for those of us managing axial...reactionscomments
The Lies I Told Myself Before DiagnosisIt’s roughly twenty years since I first noticed my symptoms. Eight years later I would finally hear them referred to as clear...reactions13comments
Reflecting on Life When My AS Was UndiagnosedAs a lot of us do around new year, I was reflecting on 2023, which got me thinking about life now compared...reactions1comment
Blinded by ASAnkylosing spondylitis diagnoses can take years to find, and they usually come after a ton of pain and unexplained symptoms with a...reactions9comments