Insurance is Crucial for Patients With AxSpAI was informed I had a gene mutation a few months ago that could contribute to more severe health complications down the...reactions2comments
The Never Ending FlareI'm in another flare (again). How long will this one last? The days have passed so fast. I forget again what normal...reactions17comments
Health Professionals I’ve Added to My AS TeamOver the years I’ve visited a number of different health professionals to help me manage my axial spondyloarthritis. Some have not proven...reactions1comment
Why Advocating for Yourself Feels Difficult, Especially With FamilyFor those grappling with Axial Spondyloarthritis (axSpA), moments with family can quickly become challenging encounters that leave us frustrated and misunderstood. I...reactions2comments
From Pet to Partner: How My Dog Helps Me Navigate Life With ASIt wasn’t my idea to get a dog. My 9 year old daughter was obsessed. I can’t tell you how many times...reactions3comments
My Post-Surgery Flare Up Without BiologicsI got my breast reduction surgery in early July of this year. It was my first surgery and I got through it...reactions5comments
My Life Didn’t End When I Was Diagnosed With ASSeven years ago, my already chaotic, 18-year-old world was rocked. Amidst a blur of final exams, breakdowns and breakups, my back and...reactions9comments
Three Reasons I Chose Not to Panic About (Another) DiagnosisAs I sat in that sterile conference room, awaiting confirmation from my genetic counselor, I couldn't help but feel detached from the...reactions4comments
Addressing My Gut Health To Help With My AS SymptomsThree years before my diagnosis, while I was playing college tennis, I was having a lot of gut and joint issues. That’s...reactions1comment
Food Swaps: How Dietary Changes Worked To Reduce My SymptomsChanging my diet has been a game-changer for me in reducing the painful inflammation of axial spondyloarthritis (axSpa). Ten years ago I...reactions6comments
My Experience With Taking Biologics for ASI’ve been on biologics now for two and a half years. Before biologics, I was desperate for relief from the pain my...reactions7comments
Redefining Success on Our TermsAs anyone living with axial spondyloarthritis (AxSpa) knows, one of the critical aspects of navigating AxSpa is redefining what success means after...reactions4comments
Will a Breast Reduction Help My AxSpa Symptoms?I was sitting my rheumatologist's office, when he mentioned "I think you should look into a breast reduction." This never crossed my...reactions5comments
"Ask Me Anything" With a Health CoachAre you living with axial spondyloarthritis (AxSpA) and looking for ways to improve your quality of life? Do you have questions about...reactionscomments
Tips For Weightlifting With ASSince I was a teenager, I have always enjoyed lifting weights at the gym. It was probably the first hobby I had...reactions11comments
Awake in the Dark: Navigating Nighttime Pain With Axial SpondyloarthritisBroken sleep and nighttime pain are challenging aspects of living with AS. Over time I’ve developed some strategies that help me manage...reactions24comments
Axial Spondyloarthritis: A Lesson in Traveling With IntentionI’ve never been a massive fan of “traveling,” but I appreciate arriving at my destination. Before 2020, I used to travel quite...reactions7comments
Ankylosing Spondylitis: Navigating Fear and ResilienceI've been on a weighty journey—a journey characterized by declining health and disability. It is undeniably cumbersome. Chronic illness has disrupted the...reactions6comments
Acceptance and Transition After an AxSpa DiagnosisI am facilitating a course on lifestyle management for people living with long term conditions, with difficult life circumstances, and in need...reactions5comments
Reflections After Three Years of Being on CosentyxWe are going three years on Cosentyx. Cosentyx is the fourth biologic that I have been on, and also the one I've...reactions6comments
