My Diagnosis JourneyLike so many of us, receiving a diagnosis took some time for me as well. When I was about eleven or twelve years old I started getting pain in my...Reactions0reactionsComments5 comments
Caring For a Disabled Person as a Disabled PersonTen years ago, I became a mom. Three years into those ten, my oldest son was diagnosed with autism. It was not a shocking diagnosis, but it was a life-changing...Reactions0reactionsComments7 comments
How Health Coaching Could Change The Way A Person Lives With AxSpa: Part 2As a duo of a Life Coach (Julie) and a Health Coach (Lana), we have decided to write a series of articles together. We want to share our stories with...Reactions0reactionsComments3 comments
I Only Have So Many SpoonsStruggling with inflammatory arthritis, I have days where I feel okay and days I don’t. It’s important to tune in to my body and its energy level daily to take...Reactions0reactionsComments2 comments
I Took a Reset TripBefore I get into the details of my trip, I just want to say I went on this reset trip back in November, when the virus wasn’t spreading as bad...Reactions0reactionsComments2 comments
How I Felt After My First COVID VaccineI received my vaccine on a Wednesday, and by the evening, I was already feeling sick. I had a headache, fever, and hot and cold sweats. Overall, I felt weak...Reactions0reactionsComments5 comments
Mental Exhaustion Is A Problem, TooOne of the things that we talk about the least when it comes to ankylosing spondylitis is the sheer mental exhaustion. Obviously, fatigue is all-encompassing, which means it takes over...Reactions0reactionsComments1 comments
Auldyn and Keegan Vlog: Family Trips During a Flare-UpAuldyn and Keegan are no strangers to the difficulties of traveling with ankylosing spondylitis. Traveling can get even more complicated when you're with extended family members who may not understand...Reactions0reactionsComments0 comments
Digestive System and Axial SpondyloarthritisSometimes I feel like the number of ways AxSpA can affect my body are endless. It’s extremely discouraging. But as a systemic disease, the truth of the matter is that...Reactions0reactionsComments15 comments
Why I No Longer Put On a Brave Face With My DoctorsA lifelong people-pleaser, I've always tended to be polite and agreeable in an effort to make others comfortable. When a problem arises, my instinct is to figure things out for...Reactions0reactionsComments5 comments
Sharing Intimate Moments: Why We Began Posting Injection VideosSitting with injection needles, alcohol cleansing wipes, and cute band-aids… Taking deep breaths and hyping yourself up to prick your skin and let your medication infiltrate your body… Dumping the...Reactions0reactionsComments4 comments
Life Before And After FusionMy husband, Keegan, walked with a limp for a long time before he was diagnosed with AxSpa. I remember one night he dragged his leg from where our car was...Reactions0reactionsComments2 comments
We're SorryRecently, we featured a giveaway promotion of a cane in our weekly newsletter. One of our members brought to our attention that the subject line of our newsletter using a...Reactions0reactionsComments0 comments
Muscle Spasms and Axial SpondyloarthritisWhen you google AS there is a specific number of symptoms and a definition of what you should feel like. This is incorrect; it is different for everyone. For example, one girl I met...Reactions0reactionsComments38 comments
Is Unattended Grief Hurting You?The Swiss-American psychiatrist Elisabeth Kübler-Ross popularized the common understanding that humans process grief and loss in stages in her 1969 book On Death and Dying. Kübler-Ross revised her vision throughout her...Reactions0reactionsComments0 comments
A Lesson In Stability and Chronic IllnessI had the most transformative and bizarre and horrible month of March. When Shakespeare's soothsayer warns Julius Caesar, "Beware the Ides of March," the phrase was born and tumbled through...Reactions0reactionsComments1 comments
Dreading When the World Goes Back to “Normal”As the pandemic shows signs of finally drawing to a close, people are talking about what life will be like when things go back to “normal” — how strange it...Reactions0reactionsComments0 comments
It’s Hard to be This Awesome All the TimeLet me just tell you something...It’s hard to be this awesome all the time! I wake up awesome, I go to work awesome, I eat my meals, and go to...Reactions0reactionsComments1 comments
Interview: How Coaching Could Change The Way You Live With AxSpa (Part 1)As a duo of a Life Coach (Julie) and a Health Coach (Lana), we have decided to write a series of articles together. We want to share our stories with...Reactions0reactionsComments0 comments
What Being Dynamically Disabled Means to MeAfter 16 years of living with a dynamic disability, I am only just scraping the surface of learning what it means to me. Coping with pain is difficult for anyone...Reactions0reactionsComments3 comments