My 5 Things For a Better DayI’ve changed so much during my 20 years with spondyloarthritis that my 24-year-old self probably wouldn’t know me. She lived a life...reactions2comments
I'm So Sick of Brain FogDo you know what brain fog is? Maybe you have it, you just don’t know the term. Brain fog is characterized by...reactions3comments
Hiking and DiscoveringLiving on a tropical island can surely be of great benefit during summer time. All the heat and high temperature makes you...reactions4comments
Dealing With FOMOKeeping up with the boundaries and limitations can often be challenging. When everyone we know is out with friends and family, or...reactions4comments
The Hidden Costs of AxSpACost (noun): something that is given, needed or lost in order to get a particular thing. Living with AxSpA comes at a...reactions3comments
Advocates Sharing With Advocates: René Interviews JamesOne thing that became extremely clear to me since I have joined the community is the difference in how everybody experiences AS...reactions4comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a...reactionscomments
Dogs With PurposeAs I have been walking this summer, I have encountered two great new friends, and while neither of them has arthritis (at...reactions9comments
Am I Really Disabled?I am in my early twenties and people are often skeptical when I tell them that I am disabled. In their eyes...reactions6comments
Managing Everyday Tasks with AxSpaAs many of you already know, AS makes our lives a lot more difficult. Simple everyday tasks, that we once took for granted, become...reactions11comments
An Ode To Chronic FatigueYou know about that soul-crushing, relentless, haunting fatigue — the kind of fatigue that makes the walk to the kitchen feel like...reactions11comments
I've Hit Caregiver Burnout...Now What?I'm sitting here at lunch on a Friday thinking about how I'm going to get through the next 12 hours. I know...reactions2comments
Societal and Familial PressuresDisabled individuals endure many challenges throughout life. Living with an illness is exhausting both physically and mentally from a range of symptoms...reactions3comments
My Blackout Lessons My household was caught in the midwestern regional blackout of 2021. The greater Detroit area-where we live-was especially hard hit. The day...reactions3comments
Things I Still Do With AxSpa!I have previously written about a few of the things that I decided to stop doing with my AxSpa diagnosis, so I...reactions1comment
One Day I Went to Bed and Never Woke UpMy journey through living with chronic fatigue started about a year and a half ago. I can’t remember the exact day—everything seems...reactions3comments
How Seeing My Symptoms Differently Changed EverythingI remember when I found out I had an autoimmune disease. Learning my body had begun to attack itself was a strange...reactions13comments
As We Gather: Hydrating Recipes for WellnessMonths have passed since the July 4th celebrations here in the U.S.A. Fireworks, camping trips, and picnics resumed by more than a...reactions2comments
7 Years in No Diagnosis Land, Part 3: AnswersIn part 1, I told you how I experienced various symptoms for years without getting some answers. In part 2, I finally...reactions6comments
The Long Path to DiagnosisI read recently that the longer it takes to get a diagnosis for AS the bleaker the long-term outcome for the sufferer...reactions4comments
