Time Spent Managing My Health: An Investment That Comes With a PriceI recall filling a survey on this website and answering a question about the amount of time I spend managing my condition...reactions4comments
A Trip Away With an Uncomfortable BedSince I was about 10 years old, every summer I would go on a holiday with my mam, my aunt and my grandparents...reactions11comments
COVID-19 Vaccine And Flare-UpsAs someone living with AxSpA, I've had several flare-ups in my life. Some last for a couple of days, others last for...reactions5comments
We Should Collaborate With Our DoctorsGrowing up, I got it into my head that doctors were akin to authority figures or bosses. What they said was law...reactions3comments
The Simple ThingsI’ve been thinking about all the things in my life that help me stay positive and happy. Happiness is tough to pin...reactions6comments
What the AS Community Means to MeWhen I was first diagnosed with AS, I felt like I was drowning in terror and information overload that I’d acquired by...reactions2comments
Explaining Ankylosing Spondylitis to My ChildrenAnkylosing spondylitis (and any other chronic illness for that matter) can happen to anyone. It doesn’t care if you’re a new college...reactions4comments
A New LifeI was diagnosed with AS in 1999 and told I’d never work again. I went on full benefits – I was even...reactions11comments
Part Two Of My Diagnosis Story: Back To The UKI left off Part 1 of my diagnosis story just before I was forced to wheel myself onto a flight back to...reactions31comments
My First Birthday With AxSpaMy first birthday being sick was a strange one. I was so unwell. My friends and family made such an effort to...reactions5comments
My Experience With CimziaBefore I tell you about my experience on Cimzia, I want you to know that everybody is different, we will all react...reactions2comments
Developing Boundaries In The AS CommunityThis is going to be hard to write — and hard to admit to myself — but I've had to develop real...reactions20comments
Always Being "On" With Chronic IllnessLiving with chronic illness means constantly feeling like you are tending to something, whether that be your physical body and its very...reactions3comments
Deciding Whether to Go Back to Work or NotIf you’ve read my other articles, you will know that before I got sick, I was a remarkably busy person. I used to work a lot...reactions11comments
Streaking For The Over 60s Might Be Just What's NeededAs I’ve got older, I’ve become less inhibited about certain things. I’d always believed (naively perhaps) a person got more inhibited as...reactions5comments
My Husband and I Stopped Sharing a Bed Because of ASIf you are anything like me, sleep is vital to your existence and it is non-negotiable for my pain management. And while...reactions6comments
3 Ways to (Gently) Work Out With AS on Flare DaysEveryone is at a different stage in their AS, which is why I'm recommending these three below ways to move with one...reactions7comments
My AxSpa JourneyI have lived with this condition for 30 years now. And I can say it has been a true rollercoaster ride for...reactions1comment
The Importance of Sunlight With ASI've lived in New York City for nearly 20 years — and for most of it, nature was just not a priority...reactions12comments
How To Be Heard With AxSpa: Doctor EditionHave you had a doctor make you feel like your pain wasn’t real? Or maybe they simplified your treatment by saying something...reactionscomments
