Living

I'm writing to you in September, the 50th month of 2020, in the year of our Despotic Overlord COVID-19. By now, we've all faced the juggernaut that is running errands...

Our AS advocates, Auldyn and Keegan, are married with a toddler...and Keegan lives every day as a stay-at-home dad with ankylosing spondylitis. In this video, they talk about getting through...

When you live with axial spondyloarthritis, the pain is constant. Not to mention the brain fog, extreme fatigue, stiffness, trouble sleeping, and more. Many people who live with AxSpA also...

I decided to start using CBD (cannabidiol, not to be confused with marijuana!) to manage my anxiety and mental health issues, which can be exacerbated by axial spondyloarthritis, and my...

Looking back, I now know how fortunate I’ve been when it comes to healthcare access. When I was younger, I didn’t spend one minute worrying about access to healthcare -...

It’s a hurry up and wait process. From the first doctor’s visit through to now, it has been a journey of constant waiting. It starts with a doctor’s visit, then...

I used to absolutely love summer. I would tan, go out for day trips a lot, and spend days on the beach. Summer is still my favorite season, but I’ve...

I have a habit of buying bananas at the grocery store thinking I'll eat them up by midweek. As the days whisk by, they turn from slightly green to bright...

There are many unwelcomed symptoms of ankylosing spondylitis (AS). The fatigue, brain fog, and pain are enough to cope with. But many people living with AS also live with digestive...

What is a rheumatic disease? A rheumatic disease is an autoimmune and inflammatory condition that causes the body’s immune system to attack a person’s joints, muscles, bones, and organs. There...

For the past few weeks, I have been working my way back into my fitness routine. Before the onset of my AS, I loved pushing my body to its limits...

Axial spondyloarthritis can cause pain, swelling, and stiffness in the back and hips along with other joints such as the knees, shoulder, and feet. The disease does not develop the...

People who have chronic health conditions like ankylosing spondylitis (AS) or axial spondyloarthritis might be advised by their regular doctor or primary care physician to see a specialist known as...

February 27th, 2020 marked the two year anniversary of the day I was diagnosed with ankylosing spondylitis. I call it my diagnosis-versary. For me, it’s a day that’s just as...

As an AS patient, I've lived in forums and Facebook groups, attended AS support meetings and met or corresponded with all sorts of "AS influencers," if you will. We all...

You’re walking down the street and you run into someone you know. They stop to talk and the first question they ask is: “How are you?” When you have a...

I feel fragile. It doesn’t take much to set me off both physically and mentally right now, and I know it’s because of my progressing AxSpA. My condition seems to...

Editors note: You can read Diana's "How It Feels to Be Young and High-Risk During the COVID-19 Pandemic, Part I" here. As I've delved deeper into the anger I’ve been...

If you know someone with a chronic illness like axial spondyloarthritis, you may have questions. This is a good thing — it likely means you want to better understand and...

I’ve kind of been in a medical limbo since September. My biologic drug, Inflectra (a Remicade biosimilar) has stopped working at the capacity that it used to. We upped me...