Reflecting on My 2 Year AS Diagnosis-versaryFebruary 27th, 2020 marked the two year anniversary of the day I was diagnosed with ankylosing spondylitis. I call it my diagnosis-versary...reactions5comments
Other Health Conditions Experienced Alongside LupusThe journey to receiving a lupus diagnosis can be a long one. The symptoms of lupus can be nonspecific and overlap with...reactionscomments
I Advocated for Myself and I’m ProudI’ve kind of been in a medical limbo since September. My biologic drug, Inflectra (a Remicade biosimilar) has stopped working at the...reactions1comment
Processing Opinions and Advice 101: UnknownsIt is a truth universally acknowledged that some people in possession of opinions and advice cannot keep these precious "pearls of wisdom" to themselves...reactions2comments
Today Was a Tough DayToday was a tough day. I woke up at 5:30 am only to toss and turn until my alarm went off at...reactions2comments
Privacy Concerns When Using Telehealth ServicesTelehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show...reactionscomments
How Do I Find Virtual Health Services?It can be overwhelming to figure out how to find telehealth services, especially if you do not already have a doctor. But...reactionscomments
Preparing for a Virtual Visit with Your DoctorVisiting your doctor online is a great way to get healthcare if you are not able to go in person. You can...reactionscomments
A Look at the Services Virtual Care OffersTelehealth or virtual care can be used to access many different types of health services. To get started, talk to your doctor...reactionscomments
Feeling Behind Because Of ASSince being diagnosed with AS back in 2018, I’ve felt a lot of different ways about it. I’ve felt grief, gratitude, depression...reactions2comments
How AS Has Affected My Financial SituationI’ve struggled a lot financially since my symptoms of AS first started. As I’ve mentioned before, I had to quit my job...reactions5comments
Support Is Essential During COVID-19With all of the panic going around surrounding the COVID-19 virus, I’m sure you’ve noticed how helpful a good support system is...reactions2comments
The Coronavirus Just Hit NYC, And I'm Feeling FrightenedI just got off the phone with a reporter from TheLos Angeles Times. They were asking people in the disability and chronic...reactions1comment
Developing Your Fatigue Response PlanHave you ever had uninvited guests gate crash your holiday gathering? I like to think of myself as warm and welcoming, but...reactionscomments
Why Am I So Open?I feel like a lot of people that follow me on social media probably wonder “Why is she so open about everything?”...reactionscomments
Post-Holiday Care for ASI don’t know about you, but the holidays exhaust me. I don’t even have a big family. We see my dad’s side...reactions8comments
I Am More Than My Diagnosis: A Year in ReviewAs this community and our sister communities grow, one universal truth is clear: people are more than just their diagnoses. As 2019...reactions1comment
My Holiday Hibernation ChecklistI can't be the only one jealous that bears get to spend most of the holidays hibernating in caves. They go sauntering into...reactions1comment
New Year WishesI love Christmas. I love everything about it. The joy, the social gatherings, the music (come at me, Michael Buble!), the food...reactions6comments
Spondylitis Communication 104: Your Personal PolicyHave you ever seen a high drama press conference? They tend to follow a formula. Something big happened and we know that lots of...reactions4comments
