How AS Has Affected My Financial SituationI’ve struggled a lot financially since my symptoms of AS first started. As I’ve mentioned before, I had to quit my job, which has left me without a steady income...Reactions0reactionsComments5 comments
A Look at the Services Virtual Care OffersTelehealth or virtual care can be used to access many different types of health services. To get started, talk to your doctor to find out which virtual services are right...Reactions0reactionsComments0 comments
Exercise And Mental HealthExercise and mental health. The two go together like birds of a feather. Like macaroni and cheese. Like tea and biscuits – as they say here in the UK. I’ve...Reactions0reactionsComments1 comments
Axial Spondyloarthritis Flares: What To Know, How To CopeIf you have axial spondyloarthritis (AxSpA), you know how painful a flare can be. What exactly is an AxSpA flare? What can you do to take care of yourself when...Reactions0reactionsComments1 comments
Humira As Treatment For AS: My ExperienceWhen I was 18 years old, I developed ankylosing spondylitis (AS), a genetic autoimmune disease that causes inflammation of the spine. The main symptoms of AS include joint pain and...Reactions0reactionsComments0 comments
The Good Enough CaregiverFor years at the end of the day, I'd sit down on the couch exhausted. I'd look over to my husband, Keegan, who was diagnosed with AS 5 years ago...Reactions0reactionsComments0 comments
Flare-ups, Alcohol, And Big Life Changes: The ResultsFor the past month and a half, I've been on a health journey provoked by an intense flare-up (see part 1 of this story) that caused my worst-ever flare-up and...Reactions0reactionsComments1 comments
Wake-Up Call: Flare-ups, Alcohol, And Big Life Changes: Part 1I went to Europe for Christmas (as I've done for the past seven years) to be with my partner's family, and it was — to put it 100 percent honestly...Reactions0reactionsComments0 comments
Support Is Essential During COVID-19With all of the panic going around surrounding the COVID-19 virus, I’m sure you’ve noticed how helpful a good support system is. But with good support always comes some not-so-good...Reactions0reactionsComments2 comments
I'm At Risk, Too: Sharing Our Diagnoses During COVID-19As the terms “immunocompromised” and “suppressed immune system” flow through social media and news outlets linked to conversations surrounding COVID-19, I have found myself feeling more inclined than ever to...Reactions0reactionsComments0 comments
Developing Your Fatigue Response PlanHave you ever had uninvited guests gate crash your holiday gathering? I like to think of myself as warm and welcoming, but people barging in on my carefully planned dinner...Reactions0reactionsComments0 comments
Avoiding Cabin Fever During The CoronavirusThe last week has really turned in Philly: schools are closing, offices are encouraging workers to work from home, and the first case of coronavirus was confirmed. In the midst...Reactions0reactionsComments0 comments
The Coronavirus Just Hit NYC, And I'm Feeling FrightenedI just got off the phone with a reporter from TheLos Angeles Times. They were asking people in the disability and chronic illness communities if people were having a hard...Reactions0reactionsComments1 comments
My AS Life Before DiagnosisI know I’m considered to be one of the lucky ones. From the onset of symptoms to diagnosis, it took one full year. Kudos to those of you that dealt...Reactions0reactionsComments4 comments
I Did Everything Right and Still Got a DiseaseI was recently scrolling through Instagram when I saw a post from a self-proclaimed fitness coach. It said: “No disease is inherited! Laziness causes disease, treat your body right!” First...Reactions0reactionsComments5 comments
If I Can Turn Back TimeEvery day, I wake up hoping today will be a different day. Hoping that today, will be a better day, then the day before. But once I open my eye...Reactions0reactionsComments0 comments
My AS and Travel AnxietyBefore I had AS I loved to travel. I still absolutely love traveling, but now I get terrible anxiety before every trip. I get stomach aches, panic attacks, cry, and...Reactions0reactionsComments0 comments
Adapting To the Disappearance Of Restful SleepIt feels like common knowledge that the right amount of sleep can help with productivity, brain functioning, and maybe even help you live longer. However, for those of us with...Reactions0reactionsComments6 comments
Extra(ordinary): ASers Can Do It AllLet my words go forth from this day and place. We, the people living with ankylosing spondylitis, are extra(ordinary)! (Meaning, our “ordinary” is way more than a little “extra.") We...Reactions0reactionsComments5 comments
My Husband's AS Flare SymptomsI've been part of the Ankylosing Spondylitis community now for a few months. Something that's stuck out to me from reading comments is how different flare-ups feel for each person...Reactions0reactionsComments13 comments