The Power of My Whiteboard...When in doubt, write it down. As someone who has for so long relied on a very strong memory, AxSpA put a twist in how I organize my life. Before...reactions4comments
Birthday Planning the AxSpa Way...My daughter and husband's birthdays are a day apart. My daughter was born on February the 10th, and my husband was born on February the 11th. This year, both of their...reactions5comments
World AS Day this Saturday the 6th May...I am are thrilled to announce that Yoga for AS, in partnership with the Axial Spondyloarthritis International Federation, is offering two FREE stretch and move sessions on World AS Day...reactionsrepliesExercise
Getting a Flareup Under Control ...I am currently experiencing a pretty bad flareup. However, I have a positive attitude. I have a rheumatologist who is helping me with medication and sending me for Physical Therapy...reactions3repliesFlare Management
To Go Out or Not to Go Out?...Last night, my husband with AxSpa, Keegan, went out for a creativity circle gathering at our Unitarian Universalist church. He’s been struggling with a flare-up for a few weeks now...reactions12comments
AS and the covid booster...Hi I live in the uk, so I don’t know how America is going with the covid vaccines. Anyway I rang Gp and got through to a different department who...reactions14repliesAxial Spondyloarthritis
A Look Back at Seven Years With AS...This past winter marked my seven-year diagnosis anniversary with ankylosing spondylitis. My how time flies! While my official diagnosis came seven years ago, my AS symptoms began long before then...reactions2comments
SI fusion...Wondering if anyone could give me some advice. I have AS plus others, but ; anyone try the SI fusion? Thoughts about it ya or na...reactions2repliesAssistive DevicesCommunity Support
Tips for Managing at Work With AxSpa...Some of the biggest challenges with AxSpa can present themselves in the workplace. Only a small percentage of people are financially independent, and disability support is increasingly hard to obtain...reactions1comment
Heel and ankle pain...Hi everyone! I was just diagnosed in 2022 after years of what I thought was joint & bone pain ankles, wrist , hips, back, shoulders, and groin.ect...ect... One of the...reactions6replies
Confused about some of my issues with AS...I'm a 76-year-old woman diagnosed with ankylosing spondylitis, uveitis, fibromyalgia, a white brain matter disease, asthma, etc. I am not sure if the brain fog is AS-related or if it...reactions4comments
AS pain not in my back...I was diagnosed with AS about 3-4 yrs ago showing markers but not significant pain in my neck or spine. I do have horrific foot pain in the metatarsal area...reactions15repliesFlares SymptomsAlternative Treatment
Axial Spondyloarthritis Versus Degenerative Disc Disease...Axial spondyloarthritis (axSpA) and degenerative disc disease (DDD) are spine conditions that share many of the same painful symptoms. Sometimes it is hard for doctors to tell the 2 conditions...
I Tried "Yoga for AS"...Many years ago, I walked into a sweaty, crammed group yoga class on Saint Marks Place here in New York City. It was open to the public for a nominal...reactions3comments
Active 4 days agoWhat does a flare look like for you?...Hello. I am going through the process of testing for a possible diagnosis. I had previously been diagnosed with RA due to blood test results but have never really had...reactions60replies
Intermittent Fasting...I'm not one for fad diets or trends, but I was keen to hear if anyone has experience with intermittent fasting? I started an 18:6 fast three weeks ago due...reactions1replyDiet & NutritionMental HealthAlternative Treatment
Getting a Degree With AS ...I started college before my AS symptoms started. I was lucky enough that my AS symptoms started during lockdown as college lectures were moved to virtual. This meant I could...reactions2comments
Foreign Music Therapy...Music has the power to transport me back in time. When I hear a certain song, I find myself thinking about what was happening in my life when I first heard...reactions6comments
Mri...Could I ask if there is a definitive number of changes on mri for consultant to confirm diagnosis or is it just a change from one mri to the next?...reactions12replies
Xrays for AS Diagnosis ?...I hope everyone is doing well and having a peaceful weekend. I have some more specific question outside of what I’ve read online. At what point did your Rheumatologist order...reactions10replies
