Welcome to AxialSpondyloarthritis.net Stories

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At AxialSpondyloarthritis.net (AxSpA), we believe that we are stronger together than we are alone. Living with AxSpA can be a challenge, but the more we share and support one another, the better off we will be. Whether it’s your own story of how you manage AxSpA as well as manage complications, to tips on daily living, we want to hear from you!

So please submit your own personal story about AxSpA, and check back often to read about the stories others in the community share. We hope these stories become a source of inspiration and support for our community.

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kieran Member
I was diagnosed with Alpha-gal Allergy from a tick bite, over five years ago (much like Lyme's in it's lasting effects) and also have had three multi-level spinal fusions in cervical, lumbar and sacral areas of my spine. My Pain MGMT. Dr. recently diagnosed me after a plethora of blood tests, with chronic inflammatory disease. So, needless to say probably, but pain is a constant "friend". However, so is Jesus so I'm still blessed.
1. matthew-ferry Community Admin
 Hi Kieran! Welcome to our <a href='https://axialspondyloarthritis.net' target='_blank'>AxialSpondyloarthritis.net</a> community. Thank you for leaving a comment and sharing part of your journey with us–we are sorry to learn that your pain is constant. We're here for you–both for support and to answer any AxSpA questions you may have 😀 How are you managing your pain? -Matt (Team Member)
2. kieran Member
 Good morning, Because of my autoimmune issues, I have many drug allergies, one of which is acetominophen. Since most narcotics are based with some variant of that, I am only able to use NSAID's such as Ibuprofen. And, since they are very hard on your system, I try to only use it when I cannot stand the pain. I take one at night, along with a muscle relaxer before bed. My Dr. also has me on LDN for nerve issues, and several supplements such as Cortisol MGR., Magnesium, B12, Vit D...and because of my hyper immune response I take two different kinds of compounded antihistamines. But, I rely on God A LOT. Hot showers, heating pads/ice packs, and my TENS unit. On occasion I have to go to the hospital when my back spasms get too out of hand and they put me on IV muscle relaxers till it settles down. I stay as active as I possibly can because I absolutely believe that a body needs to stay in motion. Summer is much easier than winter, and I can tell when a thunderstorm is headed our way, a day in advance. 😊