Advocates Sharing With Advocates: René and James Chat About a "New Normal"In my last article I interviewed Health Union advocate James Hollens. This is the continuation of that interview. Because we all have a different journey with our disease I think...Reactions0reactionsComments3 comments
My AxSpa JourneyI have lived with this condition for 30 years now. And I can say it has been a true rollercoaster ride for me filled with many ups and downs. Unfortunately...Reactions0reactionsComments1 comments
Advocates Sharing With Advocates: René Interviews JamesOne thing that became extremely clear to me since I have joined the community is the difference in how everybody experiences AS. No journey is the same and everybody has...Reactions0reactionsComments4 comments
My Experience With BiologicsI have been using biologics for 14 years now. Never really getting used to injecting myself. Not because it’s painful but, in the back of my head, there always is...Reactions0reactionsComments9 comments
The Switch to Summer and Ankylosing Spondylitis SymptomsNow that the warmer period finally has arrived in the northern hemisphere many of us experience less flares. Though I myself have never experienced an extreme difference with winter, I...Reactions0reactionsComments2 comments
Unhelpful Weight Advice and Ankylosing SpondylitisTrying to live a normal life with ankylosing spondylitis is a struggle for many of us. The pain and the lack of movement is such a huge part of this...Reactions0reactionsComments1 comments
A Huge Positive ChangeI realize that what I’m about to share won’t resonate with everybody. But if there are only a few people with whom my story resonates, my mission is a success...Reactions0reactionsComments9 comments
My Mobility AidsDuring my thirty years so far of living with ankylosing spondylitis I had to make use of multiple aids. Glad that I could make use of them, though at the...Reactions0reactionsComments9 comments
My Diagnosis JourneyLike so many of us, receiving a diagnosis took some time for me as well. When I was about eleven or twelve years old I started getting pain in my...Reactions0reactionsComments5 comments
Rest and Back PainGetting a good night's rest is something many of us in this community struggle with. I too have had and still have my problems with that. Due to the lower...Reactions0reactionsComments2 comments
My Chrome PartsI wish to share a bit about my journey with hip replacements. Not to scare people that this will happen when you have AS, but to take away the fear...Reactions0reactionsComments6 comments
How Strong is the Mind?My journey with AS has taken me from an all-time low to an all-time high. From receiving two hip replacements and not being able to run for 20 years to...Reactions0reactionsComments4 comments
Coping with Mental Health and Axial Spondyloarthritis: My StoryEverybody has experienced the toll a chronic illness can have on your mental health in one way or another. Being in constant pain, not being able to do the things...Reactions0reactionsComments4 comments
A Journey to AcceptanceIn the early nineties, doctors diagnosed me with ankylosing spondylitis. With me being in my teens I couldn't really comprehend what kind of journey would lay ahead of me. The...Reactions0reactionsComments12 comments
