My AxSpa story

Ive had RLS since i was a girl so over the years its turned into pins and needles all the time and they ache all the time, but I really started bad back and hip pain in 2015..not diagnosed till early 2025 with nr axSpa....I've been on Biolgics for 6 months and it has helped alot but I flare towards the end of my 28 day cycle...I have an allergic reaction to cortisone steroids so those aren't option...my pain is mostly Enthesitis neck, shoulders, sternum elbows wrists my heels, which are so painful to walk and hard to elevate when I work fulltime. im not sure what or if I have any other options to help me...I try to research all the time for new treatments. 3 to 4 hours of sleep is a struggle... losts of baths hot and coId compress, i have my patches and otc pain relief...they say you should be active and walk more but the more I exercise the worse the Enthesitis gets its a double edge sword. It's a real struggle and I try to be hopeful that more stories are told and more research continues to be done to spread awareness to bring help.