How to Cope With a New DiagnosisBeing newly diagnosed can be a daunting and overwhelming experience. While a new diagnosis is never easy, I share some steps that helped me cope with the mental impacts of... By Tomesha Campbell2 min readBookmark for laterReactions 0 reactions Comments4 comments
How I Cope With AS and FibromyalgiaEveryone deals with pain and fatigue differently. Those are my main symptoms from AS and fibromyalgia. My fibro diagnosis came a few months after my AS diagnosis. At first, I... By Nadine Cruz3 min readBookmark for laterReactions 0 reactions Comments20 comments
The Long DriveEvery year my wife and I drive down to the family cabin in Georgia. This trip is significant to me because it is my annual week to recharge before the... By Jed Finley3 min readBookmark for laterReactions 0 reactions Comments3 comments
My New Food and Movement in Managing Ankylosing SpondylitisContent warning: Eating behaviors and nutrition. There are usually three camps when it comes to managing ankylosing spondylitis (AS) and other chronic inflammatory conditions. The first is the pharmaceutical camp... By Lisa Marie Basile3 min readBookmark for laterReactions 0 reactions Comments19 comments
The Weight of FatigueOf all the ankylosing spondylitis and fibromyalgia symptoms I experience daily, fatigue is one of the worst. For me, it’s just as bad as the chronic pain. I’m just always... By Anna Samson3 min readBookmark for laterReactions 0 reactions Comments14 comments
The Negative Impact of Positivity CultureI once worked for a company where the notion of positivity was prized above all else. Falling short of your sales target? Stop finding excuses! Current system not working? Stop... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments6 comments
The Moment I Stopped FightingThe AS warrior! I was a fully fledged soldier on the battle to fight this disease. I threw everything at it and with aggression. Phrases such as "my body hates... By Jamie Boder1 min readBookmark for laterReactions 0 reactions Comments3 comments
The Big Ride With Ankylosing SpondylitisI did “the big ride of the season,” at least for me. It is the big bicycle ride in downtown Indianapolis; it is called the Indy N.I.T.E. Ride. It started... By Lawrence Rick Phillips4 min readBookmark for laterReactions 0 reactions Comments9 comments
The Waiting GameThis chapter of my journey has been a waiting game. Something I’m sure many of you know all too well. It’s like a “coming of age” thing as a chronically... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments3 comments
Another Sleepless NightAnother night waking up in tears. In tears from not knowing what to do because of the continuous excruciating pain that I have been feeling again for a few nights... By Nicky-Flikas-aks2 min readBookmark for laterReactions 0 reactions Comments23 comments
I Had a Busy Summer - How I’m Doing Now!The summer of 2022 was a wild ride for me. It started with being sick for 8 straight weeks, with 2 hospital visits in the mix. After that, I was... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments1 comments
Grief and Chronic IllnessWe most commonly associate the term grief with death. It’s used to describe the emotional state we experience when someone close to us passes away. In its simplest form, though... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments3 comments
4 Reasons Why I'm (Kind Of) A PrepperMy mother and I lived with her parents throughout my childhood, which exposed me to lots of stories about The Great Depression, World War Two, and the evils of unnecessary... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments3 comments
Deciding to Have Children With Ankylosing SpondylitisI was diagnosed with ankylosing spondylitis the year before I became pregnant. At the time, I was living in the Chicago area and had access to excellent medical care. I... By Ali Cornish3 min readBookmark for laterReactions 0 reactions Comments4 comments
Expectations of Treatment: RheumatologyHaving managed axial spondyloarthritis (AxSpA) for the past few years, I have not always had great results when dealing with treating physicians. Nevertheless, 99% of the time I have been... By Rebecca C4 min readBookmark for laterReactions 0 reactions Comments4 comments
Prepare To Share: Learning How to Tell AS StoriesWe all have a story to tell. Some open people's eyes, excite the mind, or take your listeners to another world. On the other hand, some people’s stories are boring... By Jed Finley4 min readBookmark for laterReactions 0 reactions Comments8 comments
Navigating the Online World of Axial SpondyloarthritisLike so many other places online, the axial spondyloarthritis community has become an increasingly polarized place to inhabit in recent years. I was so thankful to discover an assortment of... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments3 comments
How to Navigate a Diagnosis Without a Good Support SystemA diagnosis can change everything. Suddenly, we’re thrust into a new world of doctors' appointments, treatments, and lifestyle changes. And while having a sound support system, in general, is essential... By Tomesha Campbell2 min readBookmark for laterReactions 0 reactions Comments9 comments
I Survived Hurricane Ian With ASI moved to Orlando, Florida from NY about a year ago. I wanted a better environment for my children as well as for myself, the bitter cold weather of NY... By Nadine Cruz3 min readBookmark for laterReactions 0 reactions Comments6 comments
Healing Is A ProcessA few articles from my peers has made me reflect on the stage I am at with AxSpa. I have learned to live with it, manage some symptoms, cope with... By Julie Vallortigara3 min readBookmark for laterReactions 0 reactions Comments16 comments