Coming Out at the Doctor's OfficeI have seen countless physicians in four different states in the U.S. and my experience with heteronormativity is generally the same. Often...reactions1comment
Chronic Illness: What Have You Done for Yourself?I am tired frequently, meandering through the days, dragging my impaired body from room to room, the fatigue so overwhelming. Forget exercise...reactions3comments
Mindfulness and ASWe all know that stress is the worst thing for an individual with AS. I know this, and for me having AS...reactions1comment
My Most Valuable AxSpa Strategy Is PacingAfter my diagnosis with AxSpa one doctor told me that I needed to pace myself to manage chronic pain and chronic fatigue...reactions8comments
Diet Changes That Helped My ASLiving with condition like AS is not as simple as taking medicine and getting on with it. Medication can only do so...reactions28comments
Taking Risks as a Chronically Ill PersonAs a sick and disabled person, it isn’t very often that I actually get to take risks or even have the choice...reactions3comments
Ask This to Your Loved One With AxSpa"How are you feeling today?" "How are you really feeling today?" The question I wish someone would reach out and ask me...reactions1comment
Battling the Thoughts in My HeadHave you ever had thoughts you just don’t want to have, and wish they would leave you alone? Have you ever had...reactions4comments
Axial SpA and IBD: A Huge ReminderI recently had a hell of a week; it was painful and laborious. I've been side-tracked with symptoms of inflammatory bowel disease...reactions6comments
What You Don’t See: Living With an Invisible IllnessLiving with an invisible illness has taught me a couple of things: (1) people make assumptions about my condition based on what...reactions9comments
Reminders For Days When I Haven’t SleptTyped into the notes section of my phone are a collection of messages that no one sees but me. I think of...reactions5comments
New Year's AS-olutionsIt’s that time of year again when something as minor as a number at the end of the date changing makes us...reactions6comments
The Downside of Covering Up How I FeelI don’t like looking sick. On days when I’m battling the pain or fatigue of AS it makes me feel better to...reactions6comments
I Learned to Let Go of My Expectations in OthersFor a very long time, I brooded and sulked over the idea that many people around me either didn’t care about my...reactions4comments
Nerve Block Injections for ASI have been getting biologic infusions every month for almost 2 years. While it reduces inflammation and slows down fusion, it doesn't...reactions9comments
Going Out for a Day and the ResultAbout a month ago now, I went downtown for a day trip with one of my close friends. I knew immediately when...reactions2comments
Irritable Bowel Syndrome and Axial SpondyloarthritisAfter my diagnosis of AxSpa, and once I was already taking Humira (one of the biologics), I experienced some gastrointestinal (GI) issues...reactions2comments
I Tried Alternative Therapies Before Medication And I Regret It Unlike some of my peers with ankylosing spondylitis, my first scan showed undeniable evidence of the disease. Bilateral inflammation and erosion in...reactions25comments
Living With Axial Spondyloarthritis & FibromyalgiaWhen you live with axial spondyloarthritis, the pain is constant. Not to mention the brain fog, extreme fatigue, stiffness, trouble sleeping, and...reactionscomments
The Humira HangoverSince Keegan, my husband with AS, began taking Humira over 2 years ago, he's always talked about a "Humira hangover." He'd describe...reactions28comments
