Where Is My Energy When I Need it the Most?Energy is what we need to keep going. Energy is what we need to feel good. Energy is what we need for...reactions9comments
How to Cope With a New DiagnosisBeing newly diagnosed can be a daunting and overwhelming experience. While a new diagnosis is never easy, I share some steps that...reactions4comments
How I Cope With AS and FibromyalgiaEveryone deals with pain and fatigue differently. Those are my main symptoms from AS and fibromyalgia. My fibro diagnosis came a few...reactions20comments
My New Food and Movement in Managing Ankylosing SpondylitisContent warning: Eating behaviors and nutrition. There are usually three camps when it comes to managing ankylosing spondylitis (AS) and other chronic...reactions19comments
The Crushing Weight of Fatigue with ASOf all the ankylosing spondylitis and fibromyalgia symptoms I experience daily, fatigue is one of the worst. For me, coping with ankylosing...reactions17comments
The Negative Impact of Positivity CultureI once worked for a company where the notion of positivity was prized above all else. Falling short of your sales target?...reactions6comments
The Moment I Stopped FightingThe AS warrior! I was a fully fledged soldier on the battle to fight this disease. I threw everything at it and...reactions3comments
The Big Ride With Ankylosing SpondylitisI did “the big ride of the season,” at least for me. It is the big bicycle ride in downtown Indianapolis; it...reactions9comments
The Waiting GameThis chapter of my journey has been a waiting game. Something I’m sure many of you know all too well. It’s like...reactions3comments
Another Sleepless NightAnother night waking up in tears. In tears from not knowing what to do because of the continuous excruciating pain that I...reactions23comments
I Had a Busy Summer - How I’m Doing Now!The summer of 2022 was a wild ride for me. It started with being sick for 8 straight weeks, with 2 hospital...reactions1comment
Grief and Chronic IllnessWe most commonly associate the term grief with death. It’s used to describe the emotional state we experience when someone close to...reactions3comments
Deciding to Have Children With Ankylosing SpondylitisI was diagnosed with ankylosing spondylitis the year before I became pregnant. At the time, I was living in the Chicago area...reactions4comments
Expectations of Treatment: RheumatologyHaving managed axial spondyloarthritis (AxSpA) for the past few years, I have not always had great results when dealing with treating physicians...reactions4comments
Navigating the Online World of Axial SpondyloarthritisLike so many other places online, the axial spondyloarthritis community has become an increasingly polarized place to inhabit in recent years. I...reactions3comments
How to Navigate a Diagnosis Without a Good Support SystemA diagnosis can change everything. Suddenly, we’re thrust into a new world of doctors' appointments, treatments, and lifestyle changes. And while having...reactions9comments
I Survived Hurricane Ian With ASI moved to Orlando, Florida from NY about a year ago. I wanted a better environment for my children as well as...reactions6comments
Healing Is A ProcessA few articles from my peers has made me reflect on the stage I am at with AxSpa. I have learned to...reactions16comments
Biologics: To Take or Not to Take? That is the Question!When I was first diagnosed, I asked: "Is there a cure?" I was told there was no cure, but advanced treatments that...reactions3comments
Going on My First Trip Post Diagnosis and PandemicOf course I was very excited to explore Mexico and the USA, but I had no idea how things were going to...reactions2comments
