Living

I did “the big ride of the season,” at least for me. It is the big bicycle ride in downtown Indianapolis; it is called the Indy N.I.T.E. Ride. It started...

This chapter of my journey has been a waiting game. Something I’m sure many of you know all too well. It’s like a “coming of age” thing as a chronically...

Another night waking up in tears. In tears from not knowing what to do because of the continuous excruciating pain that I have been feeling again for a few nights...

The summer of 2022 was a wild ride for me. It started with being sick for 8 straight weeks, with 2 hospital visits in the mix. After that, I was...

We most commonly associate the term grief with death. It’s used to describe the emotional state we experience when someone close to us passes away. In its simplest form, though...

My mother and I lived with her parents throughout my childhood, which exposed me to lots of stories about The Great Depression, World War Two, and the evils of unnecessary...

I was diagnosed with ankylosing spondylitis the year before I became pregnant. At the time, I was living in the Chicago area and had access to excellent medical care. I...

Having managed axial spondyloarthritis (AxSpA) for the past few years, I have not always had great results when dealing with treating physicians. Nevertheless, 99% of the time I have been...

We all have a story to tell. Some open people's eyes, excite the mind, or take your listeners to another world. On the other hand, some people’s stories are boring...

Like so many other places online, the axial spondyloarthritis community has become an increasingly polarized place to inhabit in recent years. I was so thankful to discover an assortment of...

A diagnosis can change everything. Suddenly, we’re thrust into a new world of doctors' appointments, treatments, and lifestyle changes. And while having a sound support system, in general, is essential...

I moved to Orlando, Florida from NY about a year ago. I wanted a better environment for my children as well as for myself, the bitter cold weather of NY...

A few articles from my peers has made me reflect on the stage I am at with AxSpa. I have learned to live with it, manage some symptoms, cope with...

When I was first diagnosed, I asked: "Is there a cure?" I was told there was no cure, but advanced treatments that can manage and slow the progression of AS...

Of course I was very excited to explore Mexico and the USA, but I had no idea how things were going to pan out. I had planned as much as...

Do you ever get the idea that your joints and you have a distinct difference of opinion about which way to go? This morning when I woke up and was...

One thing I miss about the beginning of the pandemic is not having to worry about events. Not having to worry of how I will get myself there. I been...

Things have changed so much during my 21 years with arthritis. I was 24 when my symptoms began. My mother, her parents, and even my childhood dog were all alive...

I’ve been using mobility aids for a while. My main two have been my rollator walker and my cane. If you’ve seen me on Instagram, I’m the girl with the...

I remember the good ol' days of flying to a new city or country and spending the entire flight in a mindset of enchantment and excitement. I’d order a glass...