Finding a New Biologic After the First FailsJust when things felt like they were getting steady with Keegan’s treatment plan, that all went out the window. We’ve been through...reactions1comment
Living Well With AxSpa: My Best TipsI've been living with this chronic illness now for many years. I believe it started when I was young. Going through high...reactions1comment
My Mystery Skin IssuesSometimes I think my immune system thinks it’s a Pokemon trainer – when it comes to health conditions it feels like it’s...reactions2comments
Balancing Understanding and Boundaries With Friends and FamilyLiving with an autoimmune condition like axial spondyloarthritis (axSpA) can be a challenging journey, filled with physical and emotional hurdles. Sometimes, the...reactions5comments
Being Whole With Ankylosing SpondylitisI have to admit that I rarely feel whole. I know my body is physically whole; in fact, I am in better health...reactionscomments
Making Time To Help MeBefore I got sick, I would never make time for myself. I was always on the go. Working many hours while attending...reactions1comment
Advice For My Younger SelfI knew — in some intuitive way — that I had ankylosing spondylitis (or something similar) about a decade before I got...reactions7comments
Ask the nr-AxSpA Advocates: Diagnosis and Progression WorriesEditor's note: You can read Part 1 of this series here. The spondyloarthritis community has changed a lot these past few years...reactions1comment
Non-Radiographic AxSpa and Spinal InjuriesOne of the hardest things to deal with when living with axial spondyloarthritis is determining the source of pain and whether to...reactions7comments
Making a Difference After Someone's New DiagnosisThis summer, my dad introduced me to an acquaintance he made while playing "pétanque," the famous French boules game. He asked me...reactions2comments
The Four Minute Mile: Setting AxSpa GoalsThe four minute mile--many people know how the story goes. No one was able to run a sub 4-minute mile and it...reactions2comments
Old Boots and Ankylosing Spondylitis I threw away my old boots today. These were not just any old boots. These were boots I bought in August 1973...reactions8comments
2 Tips for Flying With Ankylosing SpondylitisFlying is always a nightmare with ankylosing spondylitis (AS). Even when I've flown in best-case scenarios—like in an upgraded premium seat—the pain...reactions5comments
Committing to a Team With an Unpredictable IllnessI’ve been figure skating for much longer than I’ve been chronically ill. To me, nothing is more freeing than gliding across the...reactions3comments
Cultivating Self-Fulfillment in a Hyper-Productive WorldOne thing I’ve learned through coming out of remission and adopting other symptoms the last two years is this: people are obsessed...reactions2comments
Relationship Red Flags: Can They Really Accept Your Illness?There was a time in my life where I had been in a relationship for about four years. After this relationship fell...reactions3comments
How I Prevent Fatigue from Derailing My Exercise RoutineI used to be one who could quickly work out for an hour or more every day and never feel tired. I...reactions11comments
I'm At Risk, Too: Sharing Our Diagnoses During COVID-19As the terms “immunocompromised” and “suppressed immune system” flow through social media and news outlets linked to conversations surrounding COVID-19, I have...reactionscomments
COVID-19 Pandemic and Ankylosing Spondylitis: Patient StoriesSince the beginning of the COVID-19 pandemic, so many people have been affected by stress, the unknown, and the changing landscape. However...reactionscomments
How I Incorporate the Topic of AS into My College WorkI am a student studying Social Care Work. If you’ve read my article AS Doesn’t Give a Damn About College Deadlines or...reactions1comment
