The Big Ride With Ankylosing SpondylitisI did “the big ride of the season,” at least for me. It is the big bicycle ride in downtown Indianapolis; it...reactions9comments
The Waiting GameThis chapter of my journey has been a waiting game. Something I’m sure many of you know all too well. It’s like...reactions3comments
Another Sleepless NightAnother night waking up in tears. In tears from not knowing what to do because of the continuous excruciating pain that I...reactions23comments
I Had a Busy Summer - How I’m Doing Now!The summer of 2022 was a wild ride for me. It started with being sick for 8 straight weeks, with 2 hospital...reactions1comment
Grief and Chronic IllnessWe most commonly associate the term grief with death. It’s used to describe the emotional state we experience when someone close to...reactions3comments
Deciding to Have Children With Ankylosing SpondylitisI was diagnosed with ankylosing spondylitis the year before I became pregnant. At the time, I was living in the Chicago area...reactions4comments
Expectations of Treatment: RheumatologyHaving managed axial spondyloarthritis (AxSpA) for the past few years, I have not always had great results when dealing with treating physicians...reactions4comments
Navigating the Online World of Axial SpondyloarthritisLike so many other places online, the axial spondyloarthritis community has become an increasingly polarized place to inhabit in recent years. I...reactions3comments
How to Navigate a Diagnosis Without a Good Support SystemA diagnosis can change everything. Suddenly, we’re thrust into a new world of doctors' appointments, treatments, and lifestyle changes. And while having...reactions9comments
I Survived Hurricane Ian With ASI moved to Orlando, Florida from NY about a year ago. I wanted a better environment for my children as well as...reactions6comments
Healing Is A ProcessA few articles from my peers has made me reflect on the stage I am at with AxSpa. I have learned to...reactions16comments
Biologics: To Take or Not to Take? That is the Question!When I was first diagnosed, I asked: "Is there a cure?" I was told there was no cure, but advanced treatments that...reactions3comments
Going on My First Trip Post Diagnosis and PandemicOf course I was very excited to explore Mexico and the USA, but I had no idea how things were going to...reactions2comments
My Tug of Spondyloarthritis WarDo you ever get the idea that your joints and you have a distinct difference of opinion about which way to go?...reactions2comments
An Invitation to an Event Full of EmotionsOne thing I miss about the beginning of the pandemic is not having to worry about events. Not having to worry of...reactions4comments
Is It Time To Turn The Page?Things have changed so much during my 21 years with arthritis. I was 24 when my symptoms began. My mother, her parents...reactions1comment
Using a Wheelchair in Public for the First TimeI’ve been using mobility aids for a while. My main two have been my rollator walker and my cane. If you’ve seen...reactions7comments
Flying With AS: Tips and TricksI remember the good ol' days of flying to a new city or country and spending the entire flight in a mindset...reactions10comments
My Failed Attempt at Reintroducing MassageGetting a massage used to be one of my favorite things. Heading to the spa a few times a year felt like...reactions4comments
Showering With Ankylosing SpondylitisOne of the things I struggle most with due to ankylosing spondylitis and fibromyalgia is taking a shower. What used to be...reactions33comments
