How Being Chronically Ill Affects My RelationshipWhen I first met my fiancé, I had already been in remission for seven years. I explained to him early on about...reactions1comment
How Does Your Experience Compare to That of Others Living with AS In America?In 2020, 787 people living with ankylosing spondylitis took our online Spondyloarthritis In America Survey. We also got information from people living...reactions1comment
Support Your Body Through The WinterWinter: a challenging season for so many of us with chronic conditions like AxSpA. The short days and cold temperatures are felt...reactions4comments
The Old Me Vs. The New MeI feel like something a lot of us do is compare. We compare the things we used to do to the things...reactionscomments
What My AxSpA Diet Looks LikeWe hear a lot of conversations around well-being and diet, especially so in the chronic illness community. We often are told that...reactions1comment
Getting Out of Bed with Spondyloarthritis, Part IFor years, my "good morning" attitude has been squashed by chronic illness. Enduring a restless night of pain associated with spondyloarthritis (SpA)...reactions2comments
A Confession: Things Are HardWhen I get dark, I get really dark — but I don’t think there’s anything wrong with confessing it. In fact, why...reactions5comments
Beginner's Tips for Your Rheumatologist VisitsOver the past few years, my mom has dealt with a few chronic health conditions (she's actually in the process of determining...reactions2comments
Self-Care with a Chronic IllnessI never truly partook in self-care until I became sick. Now, it’s probably one of the most important things I do for...reactions2comments
AxSpA Pain ManagementFirst of all, managing pain is different for everyone. During my journey, I quickly learned there is a lot of trial and...reactions3comments
Coping with Mental Health and Axial Spondyloarthritis: My StoryEverybody has experienced the toll a chronic illness can have on your mental health in one way or another. Being in constant...reactions4comments
Living With Ankylosing Spondylitis: My Journey & LearningsIn 2015, after 3 years of back pain and medical procedures, I was diagnosed with ankylosing spondylitis. What a shock this was...reactions15comments
What Makes Me Happy Makes Me StrongerOne sentence resonates into my head when I wonder what I can do to be happy and cope better with AxSpa. It...reactionscomments
My Top Do’s and Don’ts For Flare DaysThis morning, I woke up with a familiar, burning ache in my bones. In those first few hazy moments of consciousness, before...reactions13comments
Amplifying Black Advocate Voices: How Bias Has Affected My Patient JourneyBeing diagnosed with an autoimmune condition like axial spondyloarthritis (AxSpA) can take years. Many people report their early symptoms were dismissed by...reactionscomments
My Recent Experience Navigating the U.S. Healthcare SystemThere are so many issues with our healthcare system in the U.S. that I could write a book. In fact, I’m sure...reactionscomments
The Blame GameI was diagnosed with AS in 2016, but I was managing a vast spectrum of pain since 2011. My symptoms included intermittent...reactions2comments
How AS Has Changed MeAlthough I’ve only been diagnosed for a year, I feel like I am a shadow of my former self. I have changed both physically...reactions1comment
How We've Created At-Home RelaxationWho doesn't love an evening of relaxation with candles, massage, and total relaxation? Creating an at-home spa experience is a key part...reactions1comment
How Disability Theories Exclude People with Chronic PainDisability is a complex topic, so naturally, there are many ways to think about it. The disabled community has different ideologies —...reactions3comments
