Redefining the Balance of Rest and ProductivityWe live in an age where people glorify productivity at an unhealthy volume. The “hustle” can’t stop and if you do, well, according to those who lead this kind of...Reactions0reactionsComments2 comments
Tips for Parents with a NewbornI'm sitting on my bed as I begin this article. Next to me is Keegan (my husband with AS) and my 8-week-old son, Elijah. We welcomed him in November 2020...Reactions0reactionsComments5 comments
In Defense of Fun: Chronic Illness ManagementI've been in a dark hole lately. The pain has gotten pretty intense and incredibly constant. Just when I think I'm doing ok, I go take a walk and my...Reactions0reactionsComments4 comments
How I Knew Humira Wasn’t For MeI was on Humira for 6 and a half months. I knew I should give it around 6 months to be completely sure if it was working for me or...Reactions0reactionsComments9 comments
Moving Day with Axial SpondyloarthritisMy wife, Stacia, and I have moved around a bit in the past decade, moving from Massachusetts to Texas to New Mexico and now to Colorado. With all of the...Reactions0reactionsComments3 comments
Interstitial Cystitis and Ankylosing Spondylitis: Is There A Connection?Two weeks ago, I was diagnosed with interstitial cystitis. You know what they say about autoimmune conditions...you can't just have one, and I can attest to that. I already suffer...Reactions0reactionsComments12 comments
Understanding My Pain Helps Me Manage ItEven with a treatment that is effective and regular exercise, AxSpA reminds me that it is still here, and manifests itself through new pain. The condition is active, it changes...Reactions0reactionsComments4 comments
Interviewing my Family Members About my ASBeing diagnosed with ankylosing spondylitis (AS) was major event in my life that not only affected me, but also the people in my life. My family has been by my...Reactions0reactionsComments3 comments
Ways to Support Someone Living with a Chronic IllnessIf you care for or live with someone diagnosed with a chronic illness, then you know some days are harder than others for us. We, unfortunately, don't get to pick...Reactions0reactionsComments4 comments
Day in the Life: Flare DayI’m going to walk you through what my day looks like when I’m flaring. As a note, I do have other conditions that affect my health, but I will mainly...Reactions0reactionsComments0 comments
Pain Management Tips & Tricks, Part 2: Exercise, Hydration, and MoreEditor's note: You can read Part 1 of Ali's "Pain Management" series here. When you're in pain the last thing you'd even want to think about is exercise. When you...Reactions0reactionsComments4 comments
My Morning RoutineI wake up, rollover, ouch! Everything feels stuck. I slowly turn over, moaning. Usually, when I get a good night's sleep, I tend to sleep wrong. I wake up with...Reactions0reactionsComments7 comments
Amplifying Black Voices: The Importance of Finding CommunityWhen you live with a chronic autoimmune condition like ankylosing spondylitis, finding a community that understands is powerful. And, science backs this up. What is community? It is a group...Reactions0reactionsComments1 comments
I Finally Found the Right Doctor—and Here's What I've LearnedOne of the strangest lessons I have learned as a patient is that finding the right doctor is a lot like finding the right partner. Besides the obvious medical expertise...Reactions0reactionsComments1 comments
AS Gave Me EmpathyWhen I think about myself a few years ago, I think of long nights and parties. Struggling to find the energy, but with relative painlessness. When I think of my...Reactions0reactionsComments1 comments
Guide To Getting Through Lockdown With ASIf you've been online recently you may have noticed that there’s currently some kind of pandemic going on. As most of us with ankylosing spondylitis are taking immunosuppressant medication to...Reactions0reactionsComments8 comments
Ask the Non-Radiographic AxSpA Advocates: Self-Advocacy and Finding CommunityAs we learn more and more about axial spondyloarthritis (AxSpA) and ankylosing spondylitis (AS), we also learn that many people live with AxSpA symptoms, yet have no evidence on their...Reactions0reactionsComments1 comments
Using Instagram & Social Media to Find CommunitySocial media plays so many roles in people's lives. It can be a way to connect with others, it can be a way to find information, and sometimes we may...Reactions0reactionsComments2 comments
How AS Helped Me Rebuild My Relationship with MyselfMy 25th birthday just passed this month. Due to the pandemic and the state of my health, there wasn’t much to celebrate, but it also dawned on me that I...Reactions0reactionsComments3 comments
Highs and Lows of PrednisoneIf there has been one thing I’ve learned along the way of my AxSpA journey, it's is that there generally are no easy ways out. Hardly any quick fixes, and...Reactions0reactionsComments1 comments