Social Media Self-CareI'd be surprised to hear that most people aren't feeling like a combustible blend of exhausted, wary, and squashed flat under the weight of these wild times. Add a twist...Reactions0reactionsComments3 comments
Evaluating My AS Offensive SchemeI love the names of NFL offenses. I only have a rudimentary understanding of what they mean, but the names intrigue me. This past season I heard names for all...Reactions0reactionsComments8 comments
Living My Best AS Life!When I was first diagnosed in 2018, I thought my life was over. I had already lost my job, and I lost my apartment, and I lost friends. I lost...Reactions0reactionsComments10 comments
Psoriasis and AS: The Stress ConnectionSeveral years ago, my boyfriend and I moved into a new, lovely apartment with a killer view of the NYC skyline. We were so excited for the move, but it...Reactions0reactionsComments3 comments
Your Guide to Living With Ankylosing SpondylitisOur site has been here since 2019, and in that time, we've published hundreds of articles. Our Patient Leaders have share their stories, journeys, tips, and tricks with us. Whether...Reactions0reactionsComments0 comments
How I Pass Time on Bedbound DaysOne of the worst feelings in the world is having a day where you’re glued to your bed, but knowing that time is going to move even slower because of...Reactions0reactionsComments4 comments
The Burnout That Comes With Searching for a DiagnosisAfter Christmas I had fallen into a huge state of burnout. Not only had the holidays exhausted me down to my bones, but this burnout had also stemmed from surviving...Reactions0reactionsComments5 comments
Getting Support Is NOT Giving UpI’m a support group guy! Some advocates are good at policy, others are good at knowing the latest medical trends, but I love leading support groups! That is where my...Reactions0reactionsComments8 comments
Botox Injections for Muscle SpasmsI’ve had two pain management procedures. First being steroid injections into my muscle spasms, a very painful experience that did not work. My second pain management procedure was Botox injections...Reactions0reactionsComments4 comments
Why I Had to Switch BiologicsAfter a long journey to get a diagnosis (see my series entitled "7 Years in No Diagnosis Land") and a bad experience with one of the DMARDS, I was finally...Reactions0reactionsComments12 comments
COVID-19 Pandemic and Ankylosing Spondylitis: Patient StoriesSince the beginning of the COVID-19 pandemic, so many people have been affected by stress, the unknown, and the changing landscape. However, our ankylosing spondylitis community has been particularly affected...Reactions0reactionsComments0 comments
How I Finally Improved My Sleeping PatternIf you read my previous article "Trouble Falling AS-sleep," you will know just how abysmal my sleep pattern had become. After writing the article I arranged a phone appointment with...Reactions0reactionsComments17 comments
How I Balance My Social Life With AxSpAIt’s no secret that AS has changed my life forever. Five years ago I was a completely different human. I was able to work, go out places, and see people...Reactions0reactionsComments6 comments
Arthritic Hands and Talk To Text for Ankylosing SpondylitisOver the past year, I have started experiencing more and more remarkably noticeable finger joint pain. I’ve always had a little bit of wrist pain, too, as I am a...Reactions0reactionsComments5 comments
Real Life Self-Care TipsI’m not a fan of mainstream self-care culture because it tends to crowd the space for essential health and wellness practices with luxury spa nonsense. This pampering version of self-care is...Reactions0reactionsComments4 comments
Chronic Illness Burnout: Taking a Step BackI've been part of the Health Union community for two years! And I'm so proud of that fact. I pride myself on connecting with so many of you here and...Reactions0reactionsComments6 comments
Interview With Writer and Artist Bára HladíkEditor's note: I truly love sharing stories from people who live with ankylosing spondylitis; from the newly diagnosed, to the young, old, people of all genders, with all different experiences...Reactions0reactionsComments4 comments
My Life in Ankylosing Spondylitis RemissionI was skimming the notes from my recent rheumatology appointment when I saw the word. “Remission.” A word I’d heard used most often to describe cancer patients, but also to...Reactions0reactionsComments12 comments
An Unnerving Complication of AxSpa: CostochondritisAxial spondyloarthritis is a systemic disease, so I know it has the potential to affect any organ system (and therefore any area) of the body. But when a new symptom...Reactions0reactionsComments14 comments
Food for Thought: Why Diet Change Didn’t Work for MeBeing told that you will have to take medication for the rest of your life is scary. What if it stops working? What if you have a weird reaction to...Reactions0reactionsComments14 comments