The Fear of Going Abroad With AxSpaAs I lie here in bed, listening to a Chili Peppers record, thoughts of worries fill my head. Since I became sick, I haven’t been abroad. This is one thing that...reactions6comments
Stress, Grief, and Ankylosing SpondylitisIt doesn’t feel like a stretch to say that stress has always made my AS symptoms worse. Most medical professionals and the majority of people with AS would agree. It’s...reactions4comments
Fatigue...What I Wish I Knew When I Was DiagnosedFatigue is tricky, namely because it can impact so much. From your work, to relationships, social life and ability to just function. Usually fatigue is associated with high disease activity...reactions6comments
Success and the Pandemic“Success is not final; failure is not fatal: it is the courage to continue that counts.” -- Winston Churchill I am ready to put away the virus and face the...reactions4comments
Did Stress Lead To My Diagnosis?Eight years ago, I had my first big flare in my feet. It came from nowhere. It was Summer, I was enjoying my life in London. I had a busy...reactions4comments
I Believe In ButterfliesButterflies are one of my favorite things in life. Their particular beauty and grace makes it impossible to look away. And they seem to magically appear out of nowhere. It’s...reactions2comments
Feeling the Pressure from Able-Bodied People to Get BetterOne thing that has remained a constant throughout decline of my health these last two years is this: the looming pressure to get better. With chronic illnesses, hearing the term...reactions5comments
The Hardest Part of This DiseaseHow many of you wish more people around you would understand? How many of you wish living in this world, as a chronically ill person, with an invisible illness, would...reactions4comments
What IfsWith something like ankylosing spondylitis, there are so many physical effects of the condition that it’s sometimes easy to overlook the mental effects that it also brings. One of the...reactions19comments
Advocating Helps My Mental HealthMy advocating journey began in October 2020 with a fundraiser. A year later I continue to advocate every day. It was the best decision I have ever made. It changed my...reactions2comments
Top 5 Things I've Learned As An AS PatientOver the past few years, I've learned a lot about what it means to have ankylosing spondylitis. When I was first diagnosed, I lived in this hazy fever dream. I...reactions6comments
Even The Nicest People Don't Get ItYou know how living with ankylosing spondylitis can feel like speaking a language that only you understand? It can be really isolating and frustrating, even when other make a concerted...reactions5comments
3 Frenemy Habits Threatening Your Self-CareI hate finding out that somebody wasn’t actually my friend. It’s painful and embarrassing, especially when the evidence was plain for me to see all along. Betrayal can be confirmed...reactions4comments
Too Disabled To Employ, Not Disabled Enough To HelpGetting diagnosed with AS really took a massive hit on my career. Before my spine started to act up, I was enjoying life working as a teacher in China. Then...reactions5comments
I Feel Unwelcome in My Own BodyThe other day a friend sent me a poem and one line really stuck out to me. It said, “Growing inside of a body that I no longer call my...reactions6comments
How I Care For Myself: 6 Types of Self-CareThis article will be about my self-care plan. I always thought self-care was just taking baths, going for a walk and lighting candles to relax. After some research, I learned that there...reactions9comments
Exploring Fibromyalgia: Is It My AS or Something New?I have been back on Humira for 6 months now, which is the same drug that had put me into remission for 8 years. Of course, I was not assuming...reactions3comments
Chronically Ill Through COVID-19The COVID-19 pandemic as well as my spondyloarthritis (SpA) have tossed me in so many directions over the past 2 to 3 years - fear, panic, fatigue. I feel at...reactions5comments
Fatigue, The Mother of All Calls From Inside The HouseAnybody reading this already knows that arthritis is serious. It hurts. It burns. It stops people in their tracks with brain fog, stiffness, reduced range of motion, and fatigue. In...reactions3comments
7 Questions for Checking in With A PartnerNext month marks 14 years since Keegan and I got together. I remember it very fondly. We were 17-years-old and mutual friends were trying to get us to date. Keegan...reactions2comments