The Difficulties of Remote Work with AxSpaIt’s my third week on my new job, as I am still in training. As I am writing this article, I have tears in my eyes from the tiredness. I...Reactions0reactionsComments10 comments
Keeping Faith for Better DaysWhen you’re down in the dumps for so long, sometimes it’s hard to see the light at the end of the tunnel. Or any light at all. Waking up and...Reactions0reactionsComments1 comments
Riding the Wave of OverwhelmSo much about living with a chronic illness leads to feelings of overwhelm. Whether it’s worrying about coverage for medication, struggling with the responsibilities of everyday life, or dealing with...Reactions0reactionsComments1 comments
Postponing My Third Covid VaccineOn Monday the 4th of October I received a text saying that my rheumatologist had referred me for a third dose of the Covid vaccine. My appointment was that Saturday...Reactions0reactionsComments2 comments
Winter Is Here—How I’m Prepping for the ColdThe colder months are by far my least favourite time of the year. Sure, the snow is beautiful and it means I have an excuse to stop shaving my legs...Reactions0reactionsComments19 comments
A Weekend Away With My BoyfriendGoing away for a weekend break or a holiday is one of my favorite things to do with my boyfriend. It still is even though our holidays have changed since I became...Reactions0reactionsComments6 comments
Fatigue Mistakes I Made So You Don’t Have ToIn my opinion, fatigue is the worst arthritis symptom. My fatigue is unsurpassed in deactivation powers. Arthritis is always there, ticking away in the background, sometimes so quietly that I...Reactions0reactionsComments8 comments
The 3 Biggest Shocks of Becoming a CaregiverSome days, I don't really feel much like a caregiver to my husband, Keegan, who's suffered from AS for more than 10 years. The routine of getting up at 5:30...Reactions0reactionsComments4 comments
My Journey to Yoga for ASGrowing up as a competitive skateboarder, the pain I experienced from the age of 15 in my “hips” (actually SI joints) was considered some sort of injury. This pain fluctuated...Reactions0reactionsComments11 comments
Writing An Article For the Spondylitis AssociationEditor's note: This article discusses weight and dieting. Have you ever heard of the Spondylitis Association of America (SAA)? I have been a passive member for about three years, and...Reactions0reactionsComments4 comments
Combating Chronic Fatigue: 3 Different Types of RestAs we all know, chronic fatigue is without a doubt one of the most challenging symptoms. It will outright stop you in your tracks and cause whatever balance you have...Reactions0reactionsComments6 comments
My Gradual Biologic JourneyI started on biologics about a year and a half ago. I was prescribed Humira on a bi-weekly cycle, meaning one injection every 14 days. I was told at the...Reactions0reactionsComments3 comments
Trying to Move When You Don’t Want ToMovement. Something we all know helps us with AS. Movement is medicine. Have you heard that before? I know I have. But what if we don’t want to move? I...Reactions0reactionsComments2 comments
It's Beginning to Look a Lot Like ChristmasAs the days get shorter, darker and much colder, my body can tell that it's winter. The cold aches my body and intensifies my pain and oh how it makes my spasms angry! Christmas is my favorite time of...Reactions0reactionsComments2 comments
How I Am Spending Christmas This YearChristmas has been one of my favorite holidays, as it is one holiday that brings joy to everyone. It is a holiday that also brings everyone closer together. All year-round...Reactions0reactionsComments4 comments
Making Time To Help MeBefore I got sick, I would never make time for myself. I was always on the go. Working many hours while attending college, meeting my boyfriend and my friends. I...Reactions0reactionsComments1 comments
James and René: Chatting About Running, AS Diagnosis, and MoreOne thing I’ve noticed on my journey with chronic illness is that no two spoonies have the same story. The same condition can affect everyone differently, both mentally and physically...Reactions0reactionsComments3 comments
Returing To Work With Axial SpondyloarthritisIt’s been a long bumpy and extremely tiring ride. I been off work on sick leave, for the past 2 and a half years. To be honest I still feel...Reactions0reactionsComments5 comments
If I Were on the Outside Looking InOne of the most frustrating things about having an invisible illness is knowing that other people can’t see the pain I’m in. Although I talk and write about it often...Reactions0reactionsComments6 comments
How My Illness Woke Me Up to the Life I Wanted to LiveWe, as humans, are creatures of habit. Sometimes if we are not careful, we can get lost in the daily hustle and bustle of our lives and the schedules and...Reactions0reactionsComments6 comments