Living

At the beginning of March, I went to a sound healing session in a lovely venue, beautiful Church, here in Edinburgh. I had attended a couple of similar sessions last...

Ouch, that hurt. That was what I told my back surgeon recently when he touched one of those spots that ache constantly. You may recall that in 2019, just as the pandemic...

Seasonal allergies, the annoying across the hall neighbor of chronic illness. They always come over uninvited, eat our food, and try to suck us into their hairbrained schemes. So, I...

We live in a bit of a "now culture" where people want everything instantly – including replies to text messages and emails. But sometimes this just isn’t doable for those...

When in doubt, write it down. As someone who has for so long relied on a very strong memory, AxSpA put a twist in how I organize my life. Before...

My daughter and husband's birthdays are a day apart. My daughter was born on February the 10th, and my husband was born on February the 11th. This year, both of their...

Last night, my husband with AxSpa, Keegan, went out for a creativity circle gathering at our Unitarian Universalist church. He’s been struggling with a flare-up for a few weeks now...

This past winter marked my seven-year diagnosis anniversary with ankylosing spondylitis. My how time flies! While my official diagnosis came seven years ago, my AS symptoms began long before then...

Some of the biggest challenges with AxSpa can present themselves in the workplace. Only a small percentage of people are financially independent, and disability support is increasingly hard to obtain...

Many years ago, I walked into a sweaty, crammed group yoga class on Saint Marks Place here in New York City. It was open to the public for a nominal...

My friends, we have seen history being made over these past few years. The smart money bets we’ll continue to be subject to volatility and turmoil in every aspect of...

I started college before my AS symptoms started. I was lucky enough that my AS symptoms started during lockdown as college lectures were moved to virtual. This meant I could...

I can remember a time when I took walking for granted. I didn’t give my legs a second thought throughout childhood, or as a young adult when I lived in...

I've spent the last two weeks moving. I’ve left the duplex near the highway to the 1800s log cabin on a farm. I know the move will be totally worth...

Brain fog continues to be the AxSpA symptom I struggle the most with. Yes, the pain sucks and I could do without the fatigue but it’s the sporadic cognitive impairments...

I recently had a hell of a week; it was painful and laborious. I've been side-tracked with symptoms of inflammatory bowel disease (IBD). Not only did I spend a weekend...

For years now, my fiancé and I have slept separately due to my chronic pain. It hasn’t affected our relationship, thankfully, but it’s not to say it doesn’t make either...

It's Wednesday. We made it through the week. Who am I kidding? We made it through half of the week. Last night was a rough night. Tossing and turning, trying...

If you know me or follow me on Instagram, you know that I regularly use a rollator walker to get around. I use it mostly for my fatigue levels, but...

Have you ever had thoughts you just don’t want to have, and wish they would leave you alone? Have you ever had thoughts that race one after the other, making...