Faking it With Ankylosing SpondylitisI am a faker. I admit it. But I bet it is not what you are thinking. I fake people out about...reactions2comments
Making Planning Work For YouLife is a tug of war between disruptive chaos and the things we want and need to do. Lots of cool things...reactions2comments
A Year of PhysiotherapyI went to physiotherapy from February 2022 to February 2023. Prior to starting physio, I was unable to be active. I could...reactions2comments
How Goal Setting Can Help Us Self-Manage Chronic IllnessAs a health coach most of my time is spent working with people on making positive behavior change. Following a diagnosis like...reactions4comments
Let's Find Some Positivity Out of This Chronic IllnessHaving a chronic illness of any sort is hard. It's a hard pill to swallow. Receiving a diagnosis or having to live...reactions2comments
Navigating Work Stressors With an Autoimmune Disease: Tips for SuccessLiving with an autoimmune condition like axSpA can present unique challenges in various aspects of life, including work. Multiple symptoms, from lower...reactions5comments
How Sound Healing Can Help With AxSpa SymptomsAt the beginning of March, I went to a sound healing session in a lovely venue, beautiful Church, here in Edinburgh. I...reactions5comments
Spinal Surgery Complications: I Have a Loose AS ScrewOuch, that hurt. That was what I told my back surgeon recently when he touched one of those spots that ache constantly. You may...reactions4comments
My Chronic Struggles With Keeping Up With RepliesWe live in a bit of a "now culture" where people want everything instantly – including replies to text messages and emails...reactions15comments
The Power of My WhiteboardWhen in doubt, write it down. As someone who has for so long relied on a very strong memory, AxSpA put a...reactions4comments
Birthday Planning the AxSpa WayMy daughter and husband's birthdays are a day apart. My daughter was born on February the 10th, and my husband was born on...reactions5comments
To Go Out or Not to Go Out?Last night, my husband with AxSpa, Keegan, went out for a creativity circle gathering at our Unitarian Universalist church. He’s been struggling...reactions12comments
A Look Back at Seven Years With ASThis past winter marked my seven-year diagnosis anniversary with ankylosing spondylitis. My how time flies! While my official diagnosis came seven years...reactions2comments
Tips for Managing at Work With AxSpaSome of the biggest challenges with AxSpa can present themselves in the workplace. Only a small percentage of people are financially independent...reactions1comment
I Tried "Yoga for AS"Many years ago, I walked into a sweaty, crammed group yoga class on Saint Marks Place here in New York City. It...reactions3comments
Getting a Degree With AS I started college before my AS symptoms started. I was lucky enough that my AS symptoms started during lockdown as college lectures...reactions2comments
Foreign Music TherapyMusic has the power to transport me back in time. When I hear a certain song, I find myself thinking about what was...reactions6comments
Getting Back to Walking With ASI can remember a time when I took walking for granted. I didn’t give my legs a second thought throughout childhood, or...reactions5comments
My AxSpAnalogy: Steering Through Brain FogBrain fog continues to be the AxSpA symptom I struggle the most with. Yes, the pain sucks and I could do without...reactions3comments
Axial SpA and IBD: A Huge ReminderI recently had a hell of a week; it was painful and laborious. I've been side-tracked with symptoms of inflammatory bowel disease...reactions6comments
