What My AxSpA Diet Looks LikeWe hear a lot of conversations around well-being and diet, especially so in the chronic illness community. We often are told that diet will be the cure for AxSpA (or...Reactions0reactionsComments1 comments
Getting Out of Bed with Spondyloarthritis, Part IFor years, my "good morning" attitude has been squashed by chronic illness. Enduring a restless night of pain associated with spondyloarthritis (SpA) makes it much more difficult for me to...Reactions0reactionsComments2 comments
A Confession: Things Are HardWhen I get dark, I get really dark — but I don’t think there’s anything wrong with confessing it. In fact, why keep it in — why let the engine...Reactions0reactionsComments5 comments
Beginner's Tips for Your Rheumatologist VisitsOver the past few years, my mom has dealt with a few chronic health conditions (she's actually in the process of determining if she has a form of AxSpA herself)...Reactions0reactionsComments2 comments
Self-Care with a Chronic IllnessI never truly partook in self-care until I became sick. Now, it’s probably one of the most important things I do for myself. Since I’ve had AS, I’ve had to...Reactions0reactionsComments2 comments
AxSpA Pain ManagementFirst of all, managing pain is different for everyone. During my journey, I quickly learned there is a lot of trial and error when it comes to pain management. What...Reactions0reactionsComments3 comments
Coping with Mental Health and Axial Spondyloarthritis: My StoryEverybody has experienced the toll a chronic illness can have on your mental health in one way or another. Being in constant pain, not being able to do the things...Reactions0reactionsComments4 comments
Living With Ankylosing Spondylitis: My Journey & LearningsIn 2015, after 3 years of back pain and medical procedures, I was diagnosed with ankylosing spondylitis. What a shock this was, and at the same time a relief, to...Reactions0reactionsComments15 comments
What Makes Me Happy Makes Me StrongerOne sentence resonates into my head when I wonder what I can do to be happy and cope better with AxSpa. It comes from a physiotherapist I worked with during...Reactions0reactionsComments0 comments
My Top Do’s and Don’ts For Flare DaysThis morning, I woke up with a familiar, burning ache in my bones. In those first few hazy moments of consciousness, before I could even think a thought, my attention...Reactions0reactionsComments13 comments
Amplifying Black Advocate Voices: How Bias Has Affected My Patient JourneyBeing diagnosed with an autoimmune condition like axial spondyloarthritis (AxSpA) can take years. Many people report their early symptoms were dismissed by doctors or they were misdiagnosed. This delays treatment...Reactions0reactionsComments0 comments
My Recent Experience Navigating the U.S. Healthcare SystemThere are so many issues with our healthcare system in the U.S. that I could write a book. In fact, I’m sure there are countless books written on the subject...Reactions0reactionsComments0 comments
The Blame GameI was diagnosed with AS in 2016, but I was managing a vast spectrum of pain since 2011. My symptoms included intermittent bouts of iritis, sciatica, stiffness, stabbing pains, crippling...Reactions0reactionsComments2 comments
How AS Has Changed MeAlthough I’ve only been diagnosed for a year, I feel like I am a shadow of my former self. I have changed both physically and emotionally. Before I was sick, I would...Reactions0reactionsComments1 comments
How We've Created At-Home RelaxationWho doesn't love an evening of relaxation with candles, massage, and total relaxation? Creating an at-home spa experience is a key part of my husband, Keegan's, pain management, and stress...Reactions0reactionsComments1 comments
How Disability Theories Exclude People with Chronic PainDisability is a complex topic, so naturally, there are many ways to think about it. The disabled community has different ideologies — some people view their disabilities as blessings, while...Reactions0reactionsComments3 comments
Broken SpineI like to find used paperbacks for my ever-churning library of reading material. I usually have at least one book and one magazine in the process of reading all the time. For...Reactions0reactionsComments3 comments
Nature's Green Gifts To The Chronically IllInspired by an article about the healing power of nature over at PsoriaticArthritis.net by Diane T., I wanted to share a bit about how I work with nature to move...Reactions0reactionsComments2 comments
Am I Too Much for My Friends?Over the past 4 years of having AS, I’ve run into this problem over and over. I wonder if I’m too much for my friends. If my illness and daily...Reactions0reactionsComments5 comments
Eyes on the Prize: Setting GoalsI was diagnosed with non-radiographic axial spondyloarthritis in May 2019 after many years of chronic pain. I’m the type of person who loves to make “to do” lists, so a...Reactions0reactionsComments2 comments