Signs Throughout My Life That It Was More Than Just TirednessGrowing up, I went through stages of depression, anxiety, and always not feeling well for long periods of time. I thought it was maybe just my body going through another...Reactions0reactionsComments1 comments
Discussing and Disclosing AS At WorkYou’re sitting at your desk with a heat pad plugged in, on high, and strapped to your lower back. A co-worker walks by, notices your setup, and stops to ask...Reactions0reactionsComments7 comments
Researching Axial Spondyloarthritis For MyselfOne of the most critical issues I think we've all been facing in the past few years is the regularity of disinformation. We have seen it during political elections and...Reactions0reactionsComments5 comments
Allowing New Medications Adjust to Your BodyI’ve recently started a few different medications. My doctors and I are still trying to figure out what works best for all my conditions: depression, anxiety, AS, fibromyalgia, and colitis...Reactions0reactionsComments3 comments
Another Winter With AxSpaHere in Australia we’re leaving the cold weather behind and enjoying the spring. At this time I’m once again conscious of all my friends in the northern hemisphere living through...Reactions0reactionsComments1 comments
Being Kind to Others When I'm Having a Bad DayI used to remind myself that I'm not the only one going through things in life. Sometimes my expectations of others wasn't fair. I expected everyone to check on me...Reactions0reactionsComments3 comments
Losing Friends and Finding Community: Living With ASIt’s no secret that getting diagnosed with ankylosing spondylitis (AS) can be a life-changing experience. It is an inflammatory disease that can cause pain, stiffness, and immobility in the spine...Reactions0reactionsComments4 comments
Right Now, I Need to Put Me FirstI know today you are having a hard time. Last night, you went to bed thinking tomorrow would be a better day. You went to bed thinking tomorrow would be...Reactions0reactionsComments1 comments
3 Tips for Accessing AccommodationsNot long after I was diagnosed with axial spondyloarthritis, I spoke to my doctor about accommodations at college. My pain and brain fog add a difficult layer to learning, and...Reactions0reactionsComments3 comments
Thinking About SnowOh, I so dislike Winter. I mean, I really do. I hate it. I like warmth. My joints and mood are much better in Spring and Summer. So much better...Reactions0reactionsComments4 comments
Not Just Coping But Living With a Chronic IllnessOne of the things that I hear from others who are living with chronic illnesses like ankylosing spondylitis is that they are just trying to cope with daily life with...Reactions0reactionsComments2 comments
She's Battling Things Her Smile Will Never ShareWhen I was a little girl, I couldn't wait to grow up. I wanted it to happen so fast. I looked up to the older ones and wished for it...Reactions0reactionsComments8 comments
Adapting to Life with Ankylosing Spondylitis and FibromyalgiaLiving with ankylosing spondylitis and fibromyalgia is hard. It means being in pain and tired constantly. The never ending pain and fatigue became my new norm. So, I had to...Reactions0reactionsComments2 comments
Going To A Disability Job FairSince being diagnosed with AS, I have had real difficulties when it comes to finding employment. Prior to my diagnosis, I was working in education, but sacked on account of...Reactions0reactionsComments8 comments
Tips for Going to Live Music With a Chronic IllnessLast week was my first time since becoming this ill that I had gone back to my happy place: live music. When I was in remission concerts used to be...Reactions0reactionsComments2 comments
Ankylosing Spondylitis and a Proposed Rule in FloridaI am furious, outraged, and all the other negative, angry words one can think of regarding a recent decision of the Florida High School Athletic Association (FHSAA). The sports medicine...Reactions0reactionsComments2 comments
Living With AxSpa Has Helped Me Build Resilience Facing IllnessI have lived with AxSpa for many years; along the way I got diagnosed with fibromyalgia as well. I came to a realization last year that living with chronic conditions...Reactions0reactionsComments6 comments
Does Ankylosing Spondylitis Related Fatigue Impact Your Daily Life?Does AS-related fatigue impact your daily life? If so, you're NOT the only one. Answer the questions below, check out the recording of our discussion with Lisa and Tomesha, and...Reactions0reactionsComments1 comments
My Lowest Point With AxSpa Was a GiftShortly after diagnosis when I was about 18, I remember going to the theater where my sister was working at the time. Me, my mum, and sister saw a show...Reactions0reactionsComments1 comments
4 Things That Make Me Happy2021 is a year that I’d love to forget. It just wouldn’t quit. The worst parts were losing a dear friend by suicide, while my family and I dealt with...Reactions0reactionsComments6 comments