3 Tips for Accessing AccommodationsNot long after I was diagnosed with axial spondyloarthritis, I spoke to my doctor about accommodations at college. My pain and brain...reactions3comments
Can Alcohol and AxSpa Party Together?I used to be quite a party animal before I was diagnosed with axial spondyloarthritis! When I studied in France at uni...reactions8comments
My Experience With BiologicsI have been using biologics for 14 years now. Never really getting used to injecting myself. Not because it’s painful but, in...reactions9comments
Awake in the Dark: Navigating Nighttime Pain With Axial SpondyloarthritisBroken sleep and nighttime pain are challenging aspects of living with AS. Over time I’ve developed some strategies that help me manage...reactions24comments
Things I Wish I Was Told When Getting Diagnosed with ASGetting diagnosed with AS really young left me growing up not being fully aware of what it meant to live a life...reactions4comments
The Truths of a Chronically Ill IndividualI have dreams, though they may sound simple. I have dreams of laying in a vibrant field of grass with the warmth...reactions7comments
Early AS Signs I Wish I Picked Up OnI am often asked if there were early warning signs prior to my AS diagnosis. I used to believe that there weren’t...reactions29comments
Surreal Pain DreamsThroughout the past year, I have noticed that even in the deepest slumber, my ankylosing spondylitis pain can control me. Often, the...reactions16comments
Advocating Helps My Mental HealthMy advocating journey began in October 2020 with a fundraiser. A year later I continue to advocate every day. It was the best...reactions2comments
Does Time Heal All Wounds? Does time heal all wounds? No, it does not, but time can help heal you a little. But I am back and...reactions1comment
A Weekend Away With My BoyfriendGoing away for a weekend break or a holiday is one of my favorite things to do with my boyfriend. It still is even...reactions6comments
Flare Up FeelingsFor the past six to eight weeks, I had been going through a terrible flare up. I had no energy at all. When this happens, I constantly feel sick. My...reactions7comments
What Happened to my Heat Tolerance?I used to absolutely love summer. I would tan, go out for day trips a lot, and spend days on the beach...reactions30comments
4 Video Games That Help Me Get Through High Pain DaysOver the last two years, I’ve had to say goodbye (or hopefully just "see you later") to some of my favorite hobbies...reactions3comments
Being Homebound and Coping with LonelinessI’ve spent much of the last two years feeling an overwhelming sense of loneliness and isolation. Though the online community has helped...reactions2comments
The Never-Ending War Between Pain and FatigueLately my days have been spent glued to my bed, barely feeling human. I haven’t been able to write, work on my...reactions13comments
The Waiting GameThis chapter of my journey has been a waiting game. Something I’m sure many of you know all too well. It’s like...reactions3comments
Combating Chronic Fatigue: 3 Different Types of RestAs we all know, chronic fatigue is without a doubt one of the most challenging symptoms. It will outright stop you in...reactions6comments
Making Online Friends Changed My LifeAfter becoming incredibly ill and home bound, I not only lost my social life but also some friends along the way. This...reactions2comments
We're SorryRecently, we featured a giveaway promotion of a cane in our weekly newsletter. One of our members brought to our attention that...reactionscomments
