What Health Coaches Sometimes Get Wrong About Chronic ConditionsI was scrolling through social media when I stumbled upon a quote from a health coach that read, "You can make time...reactions2comments
The Struggle for Sleep With ASMy AS has caused endless disruption to my sleep. At my worst, I couldn’t sleep for more than three hours at once...reactions2comments
Why I Stepped Back From This Community for a BreakI've been a devoted part of this community for many years—as a writer, moderator, and Patient Leadership Council member. I've even been...reactions1comment
Switching Biologics With AxSpaSwitching meds. No big deal right?! This one in particular wasn’t successful but not to worry, there are so many biologics on...reactions11comments
Managing Holiday Gatherings With AxSpaI left France 15 years ago and I have lived in the UK ever since, but I visit for the holidays. Those...reactions5comments
Thinking About SnowOh, I so dislike Winter. I mean, I really do. I hate it. I like warmth. My joints and mood are much...reactions4comments
Coping With Others’ Judgments and Emerging as We AreWe recently moved into a new community. We've been in our new home for over a year now. Through healing, there's an...reactions9comments
Food for Thought: Why Diet Change Didn’t Work for MeBeing told that you will have to take medication for the rest of your life is scary. What if it stops working?...reactions14comments
Taking Steps To Make Life With AS EasierMy planning and organization skills have always left a lot to be desired. I often find myself going on holiday with zero...reactions2comments
How Axial Spondyloarthritis Led Me to My CareerWhen I was 18, I was only one year into my university degree and nowhere near knowing what I wanted to “do...reactions1comment
Spinal Surgery Complications: I Have a Loose AS ScrewOuch, that hurt. That was what I told my back surgeon recently when he touched one of those spots that ache constantly. You may...reactions4comments
It's Time to Throw Away the Schober Test for ASThe journey to a diagnosis of ankylosing spondylitis (AS) is riddled with challenges that prevent patients from receiving the diagnoses and treatment...reactions1comment
No, You Didn't Give Yourself AxSpa or ASI hear a lot of people saying that they feel they're in some way responsible for their chronic illness (like this MultipleSclerosis.net...reactions2comments
My 6 Tips For Spondylitis WellnessThe most troublesome spondylitis symptoms line up perfectly with crucial aspects of living life on our own terms. Pain, fatigue, stiffness, and...reactions1comment
Major Surgery With AxSpAAfter a diagnosis of a chronic condition that degrades your joints over time, it isn’t surprising you may eventually need surgery. But...reactions8comments
What My Bullet Journal Taught MeI spent some time exploring Bullet Journal techniques several years ago in hopes of adapting it for my Spoonie Chat folks, but...reactions3comments
Bad Air Quality, Wildfires, and Flare-UpsLiving with a chronic condition like AxSpa can be challenging on its own, but when external factors exacerbate the symptoms, the struggle...reactions2comments
Doing Halloween Safely At Home!Celebrating Halloween with AxSpa can be difficult. Some of us can't trick-or-trick due to mobility issues, don't feel comfortable going out because...reactions1comment
It Finally Happened: I Fractured My SpineI spent about half a year thinking I was experiencing a recurrent, terrible axial spondyloarthritis (AxSpA) flare-up only to learn that I...reactions8comments
My Experience of Trying Acupuncture For My ASI’ve been receiving care from a chronic pain clinic, and a few months ago they offered me acupuncture. I had a telephone...reactions10comments
