Living

When I was a little girl, I couldn't wait to grow up. I wanted it to happen so fast. I looked up to the older ones and wished for it...

Living with ankylosing spondylitis and fibromyalgia is hard. It means being in pain and tired constantly. The never ending pain and fatigue became my new norm. So, I had to...

Since being diagnosed with AS, I have had real difficulties when it comes to finding employment. Prior to my diagnosis, I was working in education, but sacked on account of...

Last week was my first time since becoming this ill that I had gone back to my happy place: live music. When I was in remission concerts used to be...

I am furious, outraged, and all the other negative, angry words one can think of regarding a recent decision of the Florida High School Athletic Association (FHSAA). The sports medicine...

I have lived with AxSpa for many years; along the way I got diagnosed with fibromyalgia as well. I came to a realization last year that living with chronic conditions...

Does AS-related fatigue impact your daily life? If so, you're NOT the only one. Answer the questions below, check out the recording of our discussion with Lisa and Tomesha, and...

Shortly after diagnosis when I was about 18, I remember going to the theater where my sister was working at the time. Me, my mum, and sister saw a show...

2021 is a year that I’d love to forget. It just wouldn’t quit. The worst parts were losing a dear friend by suicide, while my family and I dealt with...

I've always been one of the "move it or lose it" types. Why? Because it's served me, and because movement is one of the main therapies experts recommend for this...

It's been a long 5 years of trying different treatments that have unfortunately not been successful for me. The medications have caused issues for me. Of course with my luck...

When it comes to life lessons, it would seem I prefer to learn them the hard way! This was certainly the case when I decided to try lifestyle strategies to...

A Cold Fish: Someone who lacks empathy and emotion I feel like I am taking a big risk coming out like this, but I feel I am taking one for...

After becoming incredibly ill and home bound, I not only lost my social life but also some friends along the way. This was devastating and heartbreaking because these were the...

Like the majority of people with ankylosing spondylitis, I tested positive for the gene HLA-B27. Following my diagnosis I often wondered about this genetic marker and the line it traced...

You couldn’t pay me to relive 2021. It was the year that just wouldn’t quit. The worst parts were losing a dear friend by suicide, while my family and I...

One of the things I really dislike when I’m in an AxSpa flare is how messy my house can get. I’m definitely one of those “tidy house, tidy mind” people...

The thing about ankylosing spondylitis, like many immune-mediated diseases, is that no matter how much we've figured out how to manage/control/collaborate with/understand it, it is still a disease with a...

It's no secret that living with a chronic illness can be challenging—mentally and emotionally, as well as physically. I remember when I was first diagnosed, there was the mental stress...

I have read some wonderful posts on here about items our community members use to help them cope with their AxSpA symptoms. They inspired me to share a trio of...