Re-Thinking a Career That Works for AS...Finding a job that works for AS can be hard. I recently had a coaching client who realized the job he once loved was making life with AS worse. It...reactions5comments
Tips For Surviving The Winter With AS...I’ve never been the biggest fan of winter. Deep down I’m a massive child who just wants to wear shorts and a football shirt. All this freezing outside in a big coat...reactions9comments
Will you take our In America survey and help others understand the impact of AxSpA?...To learn more about the challenges of living with AxSpA, we are conducting our In America survey. By taking our survey, you can bring awareness to the realities of life...reactions2repliesResearch & Clinical Trials
The Art of Unwinding: Taking a Solo Trip to a Cabin to Destress...Being a stay-at-home parent, living with AxSpa, and dealing with fibromyalgia isn’t just enough for someone’s plate, but makes one’s plate overflowing. Keegan, my husband with AxSpa, recently celebrated his...reactions2comments
How I Have Improved My Sleep With AxSpa...To kick this blog off, I’ll mention that this journey to improve my sleep came from having a lot of fatigue. Although I could sleep well and still feel fatigue...reactions1comment
Finally Relief!...My last update spoke about my new care team. Wanted to quickly update my new treatment success. I’m diagnosed now with AxSpa (NR), fibromyalgia and Sjogren’s. I have completed about...reactions3repliesComplimentary TreatmentComorbiditiesNon-Radiographic Axial Spondyloarthritis
How can we go into remission and Live easy Life #Stand4AS...When I was 16 I felt pain in my lower back. Day by day I feel more pain whenever I sit for a long time in school or at home...reactions1replyAxial Spondyloarthritis
Family history ...Hi everyone I know we all have our different views on biology medicine and would never tell anyone or expect anyone to tell me what to do. I live in...reactions167repliesAxial Spondyloarthritis
The Combo of Getting Sick and Having AxSpa...When I try to tell my friends and family that I'm vulnerable to getting sick, they act like I'm whining and complaining again. Sometimes they say: "Everyone gets sick in...reactions2comments
HLAB27 negative ...So I had some blood work done to see if I Cary the HLAB27 gene and it came back negative. Where do I go from here? Can one still have...reactions6replies
Finally Growing Used to My Bi-Weekly Injections...It has taken over two years, but I am finally growing comfortable with my self-administered injections. In June 2020, I began using adalimumab as my primary treatment. It was the...reactions4comments
AxSpa symptoms and menstrual cycle...I have started to have pain in my left hip sometimes since beginning of Summer. It will be on and off, and worse at night or after the night, I...reactions3repliesSymptomsNon-Radiographic Axial Spondyloarthritis
New Year...Hello everyone I just want to wish everyone on here a very happy, healthy New year. Thank you so much for messages, your amazing support which I value so much...reactions30repliesCommunity SupportAnkylosing SpondylitisAxial Spondyloarthritis
Does anyone having extremely bad tendonitis, in elbows, wrists, ankles...My family have no idea what pain Im in. Cant see it, does it exist. What is AS anyway ? Nobody has heard of it and I don't think anyone...reactions2repliesMisunderstood
Balancing rest and activity during a flare...Hi all, I have nr-axspa and am currently in the throes of a 12 day and counting flare up. It’s been so tough, as I know everyone in this community...reactions6repliesAxial Spondyloarthritis
AxSpa and Sicca Syndrome...In the common sides effects of Humira, you can find a long list of things. I think I have Sicca syndrome, including dry eyes and dry mouth. In fact, when...reactions9comments
Remission ...Being recently diagnosed with axial Spondyloarthritis last year I went to my Rumatology Dr and she said that I was in remission and it's been a great two and a...reactions3replies
Doing Better With AS...Doing things can be difficult when you’ve got axial spondyloarthritis and fibromyalgia. Motivation is nothing compared to pain and fatigue. No matter how much I wanted to do things and...reactions1comment
Update Since I've Last Posted...So, a year ago I posted my rheumy at Mayo diagnosed me with AxSpa; however, I recently read his notes where he stated he wasn't sure. However, at my followup...reactions3replies
