When Friendships Don’t Survive Your Chronic Illness...Lil and I met at work in our early 20s. She was hilarious and outrageous and we clicked instantly. Going anywhere with her was an adventure. Something spontaneous would always...reactions6comments
Another Year Older With AxSpa...Another year has passed and I made it through. Turning 36 years old, another year of AxSpa by my side. I thought by now things would have been a bit...reactions4comments
Sex and AS: Position Pain Ratings and Tips for Pain Free Passion...Newsflash - people with chronic illnesses and disabilities enjoy sex too! You wouldn’t think it as a lot of the time we are desexualised by society – but we get...reactions8comments
The Healing Power of Silliness...Any parent of a 4-year-old and 2-year old will admit that things tend to get pretty silly in their house. Add in an AxSpa diagnosis, and silliness becomes a core...reactions1comment
When the Cost of Care Makes Access an Issue...When I was growing up, my family reserved hospital visits for emergencies that couldn't wait until the doctor's office opened in the morning. During that first year of my diagnosis...reactions4comments
Dealing With the Lack of Knowledge of AS in Healthcare...Before I was diagnosed with ankylosis spondylitis, I’d never heard of it. I spent a lot of time researching my condition, then explaining to friends and family what AS is...reactions4comments
When it’s cold? ...I try my hardest to keep warm. I have good days and bad days. Sometimes I don’t know what to do to keep warm. I hate to disturb my partner...reactions12repliesSymptomsCommunity Support
Anyone else have Passive Suicidal Ideations?...I have noticed more PSI as my disease progresses. I already have Anhedonia, but the thought of just dying by some means other than my own doing sounds better lately...reactions3repliesAnkylosing SpondylitisMental Health
My 4 Arthritis Self-Care Basics...Self-care makes up a substantial portion of our quality of life, especially for those of us living with arthritis. However, similar to nutritious food, safe shelter, and a healthy environment...reactions5comments
Why I’m Not on a Biologic...There’s a conversation my rheumatologist and I have on replay at every appointment I attend. It starts with my doctor sharing the results of my blood tests and imaging reports...reactions5comments
Newly diagnosed Ankylosing Spondylitis...Hi all 👋 I hope you're all doing well. I wanted to seek some advice on my recent AS diagnosis. I dont know anyone with the condition so Im hopeful...reactions4replies
Reducing Medication Intake Is My Agenda Whilst Living With AxSpa...After my diagnosis I visited doctors to seek advice, discuss treatment recommendations, and find ways to cope with AxSpa symptoms. From the start, I have always had in mind to...reactions13comments
Uvitis ...So my eye Dr said that I have degenerative charges to my vision my vision is blurry and a symptom that I've also experienced is double vision and they are...reactions10repliesAxial Spondyloarthritis Comorbidities
My Journey as an Athlete Living With AS...I have been an athlete most of my life. I discovered the sport of tennis when I lived in France at the age of 7. The beginning of a beautiful...reactions5comments
My Experience Getting Infliximab Infusions...I get inflixmab infusions (under the brand name Inflectra) every four weeks. Inflectra is a biosimilar of Remicade. I get 6 vials of 100mg infused and have been at this...reactions3comments
Overall stiffness...Hi All, just wanted to ask as this is all new to me. Do you experience stiffness? Stiffness in the hips, sacroiliac joints and spine to the point where you...reactions4replies
Why don’t we have a live chat feature?...Surely there are people who need to talk to others more frequently....reactions3repliesAnkylosing Spondylitis
Identifying Flare Ups...How do most people with AS accurately identify a flare up?...reactions6replies
biologics or steroids and having AnkylosingSpondylitis....If you’re not on biologics or steroids right now and fully vaccinated with regards to my AS am I classed as immune suppressed? Also is my immune system over active...reactions2repliesAnkylosing Spondylitis
Calcium supplements if you have AS?...I have been told I have osteopenia - the beginnings of osteoporosis. Is taking a Calcium ssupplement safe if you already have fusion in your spine? I exercise regularly, but...reactions1replyTips & AdviceAnkylosing SpondylitisComorbidities