Anyone else have Passive Suicidal Ideations?...I have noticed more PSI as my disease progresses. I already have Anhedonia, but the thought of just dying by some means other than my own doing sounds better lately...reactions3repliesAnkylosing SpondylitisMental Health
My 4 Arthritis Self-Care Basics...Self-care makes up a substantial portion of our quality of life, but like good food, safe shelter, and a healthy environment it often gets less attention than our social life...reactions4comments
Why I’m Not on a Biologic...There’s a conversation my rheumatologist and I have on replay at every appointment I attend. It starts with my doctor sharing the results of my blood tests and imaging reports...reactions5comments
Newly diagnosed Ankylosing Spondylitis...Hi all 👋 I hope you're all doing well. I wanted to seek some advice on my recent AS diagnosis. I dont know anyone with the condition so Im hopeful...reactions4replies
Reducing Medication Intake Is My Agenda Whilst Living With AxSpa...After my diagnosis I visited doctors to seek advice, discuss treatment recommendations, and find ways to cope with AxSpa symptoms. From the start, I have always had in mind to...reactions13comments
Uvitis ...So my eye Dr said that I have degenerative charges to my vision my vision is blurry and a symptom that I've also experienced is double vision and they are...reactions12repliesAxial Spondyloarthritis Comorbidities
My Journey as an Athlete Living With AS...I have been an athlete most of my life. I discovered the sport of tennis when I lived in France at the age of 7. The beginning of a beautiful...reactions5comments
My Experience Getting Infliximab Infusions...I get inflixmab infusions (under the brand name Inflectra) every four weeks. Inflectra is a biosimilar of Remicade. I get 6 vials of 100mg infused and have been at this...reactions3comments
Overall stiffness...Hi All, just wanted to ask as this is all new to me. Do you experience stiffness? Stiffness in the hips, sacroiliac joints and spine to the point where you...reactions4replies
Why don’t we have a live chat feature?...Surely there are people who need to talk to others more frequently....reactions3repliesAnkylosing Spondylitis
Identifying Flare Ups...How do most people with AS accurately identify a flare up?...reactions6replies
biologics or steroids and having AnkylosingSpondylitis....If you’re not on biologics or steroids right now and fully vaccinated with regards to my AS am I classed as immune suppressed? Also is my immune system over active...reactions2repliesAnkylosing Spondylitis
Calcium supplements if you have AS?...I have been told I have osteopenia - the beginnings of osteoporosis. Is taking a Calcium ssupplement safe if you already have fusion in your spine? I exercise regularly, but...reactions1replyTips & AdviceAnkylosing SpondylitisComorbidities
Discovering a Different Version of Myself With AS...Developing AS changed my life in in all kinds of ways. Things I had enjoyed were now off-limits. Plans I’d made were cancelled. People I had felt connected to grew...reactions1comment
Explaining Spondylitis to Kids...Two facts about me: If a kid has any questions, I am going to find the best way to answer them. But, that is not always easy. Axial spondyloarthritis is...reactions3comments
Anyone else have taste and appetite changes?...Hello! As soon as I got my first infusion, my taste changed. I described many things as tasting like “dirty lake water”. It use to last for a week or...reactions3repliesAnkylosing SpondylitisDiet & NutritionFlares
Life Has Flipped Upside Down...I'm a single mother of 2 boys. Before my diagnosis I worked as a full time carer for the elderly 8 days on to get 2 off. I loved everything...reactions1comment
Interstitial cystitis and Axial Spond...Hi, I’m in a really bad flare up (spine, ribs, hips, shoulders, wrists and feet), and I have now got interstitial cystitis which adds to my problems at night! Does...reactions3repliesAxial Spondyloarthritis
Three Years Since My AS Diagnosis...You would think getting a diagnosis would have answered all the questions about what was going on in my body. The answers to questions like: What led me to be...reactions3comments
