Stories

I'm just beginning this journey, so this is all new to me. Although the pain I have lived with for years is not. 🙏🏼...

I started showing signs at age 19 I owe it to modern medicine for turning my life around. Those initial months taking the disease head-on and unmedicated were debilitating...

I was only diagnosed a few months ago but it seems like the pain is setting in so fast and the tramadol’s really not working. For the past three days...

My friend passed away in 2009. I was 33 and about to become an NYC Licensed Teacher that September. I recall a strange, bothersome pain in my buttocks that wouldn’t...

I grew up having severe growing pains that continued into my 50's. I finally went to the doctor to be diagnosed with the AS. I had never heard of AS...

I was diagnosed about 15 years ago. I always saw it listed but never really knew what it was. Now as I’m older and have other problems, out comes this...

Hi, I just had the blood test. I tested negative, but I know it doesn't show up sometimes. I did test positive for weakly lupus, all done by my primary...

I have had this disease since I was 12 yrs old. I am now 60 and every day it gets harder to get moving. I managed my childbearing years with...

I have an appt with my Dr to check and see if this is what I've been suffering with for years. I'm to the point that the pain is unbearable...

I was finally diagnosed at the age of 49 after suffering for many years. Each year my symptoms would get worse until I was doing nothing but sleeping or sitting...

My story started with being diagnosed with fibromyalgia in my early 20s and then with AS at 29. Both are awful and I got a double whammy. I can handle...

I had a really rough week! I'm so sick and tired of being sick and tired. I’m a nurse and in all honesty, most of the people I look after...

I recently found out I have AS on my Xrays and MRI's. Glad I finally have a diagnosis but still learning about things. Glad I found a place to learn...

I am newly diagnosed with AS I also have Lupus SLE. Well, my daughter was diagnosed with AS. She is 19 years old about 2 months ago. I was diagnosed...

My Niece has had AS for 11 years and is in tremendous pain. She has just moved closer to us so that we can try and help. We are having...

Wow - hard to believe I have been living with AS (symptoms) for more than 30 years now. I was always an active child, played sports, cheerleading, dance, gymnastics. I...

I was diagnosed with Ankylosing Spondylitis at age 42. I have good days and bad days. I was waking up daily unable to get right out of bed. I would...

I've spent years being misdiagnosed, and now years trying to find a way to afford the medications that are supposed to slow the progression of my disease. I am at...

I live because I found my moment of then. I used to say as soon as I finished bargaining I would go to the doctor. When I got back from...

I was diagnosed 2 years ago after suffering from a back ache. I take meds for it but they do not always help. The pain goes from the middle of...