The 3 C's of My PainAll of us has been taught our 123's and our abc's in our childhood life.I would like to say that it is very simplistic and elementary things we naturally learn.The... By Lily59223 min readBookmark for laterReactions 0 reactions Comments5 comments
Learning to Slow Down with Ankylosing SpondylitisFor once, I haven't had constant flares, I think it has to do w/ my left hip replacement in July of this year. I thought, "Hey, I could probably do... By momof12 min readBookmark for laterReactions 0 reactions Comments5 comments
New to ASDiagnosed with AS in March of this year started the injection of adalimumab every two weeks having some horrible side effects for a couple of days after injection any one... By Debbie-aks1 min readBookmark for laterReactions 0 reactions Comments3 comments
Feelings Of a Locked BackI look back and value the days of my youth when I took my healthy back for granted. I was told by a referring specialist I had spondylitis of the... By Lily59222 min readBookmark for laterReactions 0 reactions Comments1 comments
How to Explain to Friends and FamilyI’m sure I’m not alone in this but when I was diagnosed with AS I had no clue what it was or meant and to be honest I still have... By Kim Broughal1 min readBookmark for laterReactions 0 reactions Comments5 comments
Throwaway SocietyAs someone who lives with a chronic illness, I am constantly battling the ever-present challenges of both the disease and life, in general, the best that I can. Like many... By Jp773 min readBookmark for laterReactions 0 reactions Comments3 comments
History of My LifeI was a swimmer and dance coach but with my untreated autoimmune disorder back in childhood (vitiligo) I experience a sharp flare-up suddenly at age 21! Losing several kilograms in... By Yeganeh.M1 min readBookmark for laterReactions 0 reactions Comments7 comments
Failed back surgeriesHi, I am 56 years old. Back in 2007, I was diagnosed with ankylosing spondylitis (AS). I had surgery which took an 11-hour operation to fuse my lower back. In... By DannyB 19651 min readBookmark for laterReactions 0 reactions Comments13 comments
Evolution to AxSpA DiagnosisI was diagnosed in 2014, with axial spondyloarthritis (AxSpA) after an MRI confirmed inflammation in areas of my spine. For the last three years, I've been fighting for disability benefits... By dmcclellan1 min readBookmark for laterReactions 0 reactions Comments3 comments
A Man is Pain and His MusicHi, as a boy I used to carry coal as we owned the local coal business. I was into my sports rugby wrestling and many more . In my late... By yesitsme233 min readBookmark for laterReactions 0 reactions Comments6 comments
Remission? Wow. Remission!Honestly, I feel great. I don’t (nor does any doctor I’ve met) know why or what to credit; that’s why I’m detailing everything here in case it matters to someone... By Lucasrenzi22 min readBookmark for laterReactions 0 reactions Comments9 comments
Finally a DiagnosisI have suffered with back pain for 25 years, with multiple visits to doctors, to only be told endless times that there is nothing medically wrong to justify my pain... By nurse mom2 min readBookmark for laterReactions 0 reactions Comments6 comments
Pain ManagementAs I wrote before, I am the typical late stage diagnosis. I was started down the pain med path years before my diagnosis. I am on Enbrel and Arava, which... By Landers661 min readBookmark for laterReactions 0 reactions Comments0 comments
Long Ago I Recieved A Wrong DiagnosisDiagnosed with RA at 17. Changed to "psoriatic arthritis" at 25. Had X-ray bombardment at 18. Could have caused leukemia, but didn't. It helped the lower spine. I'm 76 now... By Jasbeau1 min readBookmark for laterReactions 0 reactions Comments2 comments
Where to Go?I have been diagnosed with Ehlers Danlos syndrome, since my Sister died in 1996, and with it ankylosing spondylitis, among many, many other medical issues. In the beginning, we saw... By Angeleigh1 min readBookmark for laterReactions 0 reactions Comments2 comments
It Could Be WorseI am a 52 year old male with the hlab27 gene. I have 6 children and ten grandchildren. 2 of my children also have AS. I was first diagnosed with... By Cindclin1 min readBookmark for laterReactions 0 reactions Comments4 comments
Ankylosing Spondylitis, Gout and DiverticulitisI'm a 51 year old male with HBP and AS, using NSAIDS for the AS and the flare ups. I was supposed to start Humira before the pandemic but I... By Arnaldo1 min readBookmark for laterReactions 0 reactions Comments2 comments
Invisible & Not Believed. A Poem By Sherry LIt's been almost four winters I have begged for help With all that has been going on within and without... Four winters, just about when my long blond hair fell... By momof12 min readBookmark for laterReactions 0 reactions Comments6 comments
My Diagnosis Lead To Two Things, Only Two....I am the classic "late diagnosis". I am 54 now, and was diagnosed with A.S. three years ago. My memories of back pain go way back to my childhood. I... By Landers661 min readBookmark for laterReactions 0 reactions Comments3 comments
10 Things You Shouldn’t Say to Someone With a Chronic IllnessI am sure that you, as someone suffering from one (or more) of the above, have encountered people who just don’t get it. First of all, I feel the urge... By Lenka4 min readBookmark for laterReactions 0 reactions Comments6 comments