Stories

For the past 4 days, my eyes are back to ground zero. All because of 1 of the 4 meds I take for uveitis and was denied by my insurance...

I love fall and it is actually one of my favorite seasons of the year.I have noticed in past seasons that my conditions tends to worsen around late October going...

All of us has been taught our 123's and our abc's in our childhood life.I would like to say that it is very simplistic and elementary things we naturally learn.The...

For once, I haven't had constant flares, I think it has to do w/ my left hip replacement in July of this year. I thought, "Hey, I could probably do...

Diagnosed with AS in March of this year started the injection of adalimumab every two weeks having some horrible side effects for a couple of days after injection any one...

I look back and value the days of my youth when I took my healthy back for granted. I was told by a referring specialist I had spondylitis of the...

I’m sure I’m not alone in this but when I was diagnosed with AS I had no clue what it was or meant and to be honest I still have...

As someone who lives with a chronic illness, I am constantly battling the ever-present challenges of both the disease and life, in general, the best that I can. Like many...

I was a swimmer and dance coach but with my untreated autoimmune disorder back in childhood (vitiligo) I experience a sharp flare-up suddenly at age 21! Losing several kilograms in...

Hi, I am 56 years old. Back in 2007, I was diagnosed with ankylosing spondylitis (AS). I had surgery which took an 11-hour operation to fuse my lower back. In...

I was diagnosed in 2014, with axial spondyloarthritis (AxSpA) after an MRI confirmed inflammation in areas of my spine. For the last three years, I've been fighting for disability benefits...

Hi, as a boy I used to carry coal as we owned the local coal business. I was into my sports rugby wrestling and many more . In my late...

Honestly, I feel great. I don’t (nor does any doctor I’ve met) know why or what to credit; that’s why I’m detailing everything here in case it matters to someone...

I have suffered with back pain for 25 years, with multiple visits to doctors, to only be told endless times that there is nothing medically wrong to justify my pain...

As I wrote before, I am the typical late stage diagnosis. I was started down the pain med path years before my diagnosis. I am on Enbrel and Arava, which...

Diagnosed with RA at 17. Changed to "psoriatic arthritis" at 25. Had X-ray bombardment at 18. Could have caused leukemia, but didn't. It helped the lower spine. I'm 76 now...

I have been diagnosed with Ehlers Danlos syndrome, since my Sister died in 1996, and with it ankylosing spondylitis, among many, many other medical issues. In the beginning, we saw...

I am a 52 year old male with the hlab27 gene. I have 6 children and ten grandchildren. 2 of my children also have AS. I was first diagnosed with...

I'm a 51 year old male with HBP and AS, using NSAIDS for the AS and the flare ups. I was supposed to start Humira before the pandemic but I...

It's been almost four winters I have begged for help With all that has been going on within and without... Four winters, just about when my long blond hair fell...