It Could Be WorseI am a 52 year old male with the hlab27 gene. I have 6 children and ten grandchildren. 2 of my children also have AS. I was first diagnosed with...Reactions0reactionsComments4 comments
Ankylosing Spondylitis, Gout and DiverticulitisI'm a 51 year old male with HBP and AS, using NSAIDS for the AS and the flare ups. I was supposed to start Humira before the pandemic but I...Reactions0reactionsComments2 comments
Invisible & Not Believed. A Poem By Sherry LIt's been almost four winters I have begged for help With all that has been going on within and without... Four winters, just about when my long blond hair fell...Reactions0reactionsComments6 comments
My Diagnosis Lead To Two Things, Only Two....I am the classic "late diagnosis". I am 54 now, and was diagnosed with A.S. three years ago. My memories of back pain go way back to my childhood. I...Reactions0reactionsComments3 comments
10 Things You Shouldn’t Say to Someone With a Chronic IllnessI am sure that you, as someone suffering from one (or more) of the above, have encountered people who just don’t get it. First of all, I feel the urge...Reactions0reactionsComments6 comments
Young and DisabledI first began showing symptoms of Ankylosing Spondylitis when I was 16 years old. I was officially diagnosed with AS three years later. While the diagnosis offered relief, it started...Reactions0reactionsComments2 comments
Just another bad dayFriday morning, 6 am, the voice of my husband trying to wake up the kids for school. I tried to open my eyes wide, but I was so extremely tired...Reactions0reactionsComments5 comments
You are just a monster ... I am not scared!On the good days (still in pain but manageable), I feel like I am on top of the world. I am so thankful for those days when they come along...Reactions0reactionsComments5 comments
My Son, the ZebraWhat’s wrong with my son? I asked doctor number one. He’s perfectly fine. He should go out and just have fun. But his chest pain is bad When he plays...Reactions0reactionsComments6 comments
AS and Colitis with Abdominal PainMy ankylosing spondylitis (AS) started as a teenager but back then all they called it was “bad back”. I am now 72 and have name for my back ailment. ...Reactions0reactionsComments2 comments
The struggles having a chronic illnessHello my name is Nicky. I am 33 years old. I am a mommy to 3 kiddos that are my world and one of my reason for waking up every...Reactions0reactionsComments2 comments
No One Gets It...So right now I am definitely (hopefully) in the peak of my condition. My AS has been super intense with flares and inflammation after the birth of my second son...Reactions0reactionsComments15 comments
Trying to Find Answers After Being Told Different ThingsI was diagnosed with rheumatoid arthritis in 2017. I've tried about 8 medications. I am now on Simponi Aria infusions. I started having severe back pain about 6 months ago...Reactions0reactionsComments2 comments
Just Diagnosed with Ankylosing SpondylitisI'm 64 and went to a chiropractor for the first time for pain in my mid-back that just would not go away. Since I was a new patient he did...Reactions0reactionsComments3 comments
Looking for new cureI have had AxSpA for about 24 years. I am 73 and yes I have tried everything from stem cell therapy, opioids, exercise and physical therapy, stretches, spinal stimulator, massages...Reactions0reactionsComments4 comments
The Problem Is Not In My HeadHi there, fellow AxSpa warriors! My name is Lenka, I’m 29 and I’m a girl from Slovakia. I have a story to tell. Brace yourself, grab a popcorn and a...Reactions0reactionsComments11 comments
Living at Age 67 with ASI was diagnosed in 1978. I have had 2 hip replacements and surgery on both hands. I use a hot tub daily and it really helps. I'm also on pain...Reactions0reactionsComments13 comments
Canceled DreamsI had just given birth to a healthy 8 pound baby boy, unknowing that I was waking up a health demon! It was 29 years ago on June 12th that...Reactions0reactionsComments4 comments
5AM: A Poem About Ankylosing Spondylitis5AM She rolled over Wrapped in her skeleton Devoured by it’s pain No No No Don’t roll again Ashamed, a shame, a pain She lifted her body Off the bed...Reactions0reactionsComments5 comments
My Journey with Ankylosing SpondylitisMy Name is Gillian and I live in Bromley Kent. l have two sons Mark and Lee l started to get pain and stiffness in my lower back and neck...Reactions0reactionsComments6 comments