How We Talk to Our Young Kids About AxSpa...Becoming a parent brings so many unanticipated joys and challenges, but one my husband and I never thought about before was how we would talk to the kids about AxSpa...Reactions0reactionsComments4 comments
Active 3 days agoStomach twitching and pain early morning ...Hi everyone. Had AS for 10 years with several flare ups a year in the hips, lower back and lower ribs. Have managed flare ups with anti inflammatory breathing exercises...Reactions0reactionsComments8 repliesSymptoms
12 months in and Neuropathic pain driving me mental...After finding a new med that worked better then Humira for me my AS bamboo spine started to settle but for last 4 months it started a burning sensation in...Reactions0reactionsComments3 repliesCoping
Mattress recommendations for AS sufferer...Hi, I have AS and Osteoporosis and I am really struggling with morning pain which is way more than I normally suffer with and wondered if changing my current mattress...Reactions0reactionsComments22 repliesCopingTips & Advice
Now Diagnosed with Heart Disease....I haven’t been a member here for long but I appreciate all the kind and supportive comments I read in the Forum for everyone’s posts. Well I just got a...Reactions0reactionsComments2 repliesMental HealthDiagnosis
Horrendous sholder pain...Since last Saturday I've been having horrible sholder pain it hurts to breathe it hurts to move any suggestions on this im on methotrexate and celebrex and prednisone and nothing...Reactions0reactionsComments4 replies
Friday Frustrations...It's the end of the work week! Feel free to let out your frustrations from the week to help make the weekend a little lighter. *Please remain respectful and supportive...Reactions0reactionsComments13 repliesCopingAwareness
The Lone Wolf...We are wolves. Wolves are powerful, smart, loyal, and travel in packs. In a perfect world, humans should be the same. We have our families and friends we sick by...Reactions0reactionsComments4 comments
Like I need one more problem ...Just got the results of the Calcium Score CT Scan that my physician ordered. The range apparently starts a zero (ideal). My score is 651. That seems an awful long...Reactions0reactionsComments1 replies
My 5 Necessary Conveniences...I can’t be the only one battling the unfortunate notion that there’s something lazy, inferior, or otherwise wrong about seeking the easiest ways to do things for myself. Years of...Reactions0reactionsComments4 comments
6 Steps For Self-Care Success...Authentic self-care is grounded in the actions required to align our needs, desires, and commitments with our actions. It’s a deep process, especially when we aren’t used to spending so...Reactions0reactionsComments2 comments
Is It AS or RA?...Just wondering how to know if it’s as or ra, been diagnosed with ra seronegative but also positive for the HLA-B27 antigen. Been in pain for years, back and joints...Reactions0reactionsComments7 replies
Baby Steps Are a Big Deal For a Baby...I have a hate-love relationship for the term “baby steps.” Maybe this is because of my perspective as a parent (and the hard work it takes to teaching the basics...Reactions0reactionsComments4 comments
Signs Throughout My Life That It Was More Than Just Tiredness...Growing up, I went through stages of depression, anxiety, and always not feeling well for long periods of time. I thought it was maybe just my body going through another...Reactions0reactionsComments1 comments
How do others cope with pain?...Been recently diagnosed with AS. I used to be a full time support worker for the elderly until my symptoms flared and left me in bed the past 7 months...Reactions0reactionsComments9 repliesNewly Diagnosed CopingMental Health
March 23, 2023: Instagram Live - Lifestyle Changes and AS ...Join us on Wednesday, March 22, 2023 at 4:00pm EST for our next IG Live event with Lana and Anne-Marie Raymond as they discuss Lifestyle and AS. What lifestyle changes...Reactions0reactionsComments0 replies
Has anyone else been told that AS is not a Disability?...I was diagnosed in February 2021. The specialist that I see for treatment has started my on Humira after 12 months of unsuccessful treatment on 3000mg daily of Sulphasalazine. He...Reactions0reactionsComments1 repliesCoping
One thing after another…...I’m a 60-year-old female who has lived with non-radiographic axial spondyloarthritis since my late teens. It started with SI joint pain, hip bursitis and enthesopathy, IBS, and fatigue. Later, a...Reactions0reactionsComments6 comments
Discussing and Disclosing AS At Work...You’re sitting at your desk with a heat pad plugged in, on high, and strapped to your lower back. A co-worker walks by, notices your setup, and stops to ask...Reactions0reactionsComments7 comments
Researching Axial Spondyloarthritis For Myself...One of the most critical issues I think we've all been facing in the past few years is the regularity of disinformation. We have seen it during political elections and...Reactions0reactionsComments5 comments
