etoricoxib 60mg...Anyone else on these for AS? Recently been diagnosed after 7 long years of pain !!! These seem to be working but I’ve heard you can’t be on these long...Reactions0reactionsComments2 replies
FOMO...AS can cause us to cancel plans, sit out on participating in activities, and miss out on things we might otherwise not have. This can strain friendships, relationships, and loving...Reactions0reactionsComments28 repliesFriends & FamilyTips & AdviceCoping
I Traveled Without Pain (For Once), or How Climate Affects AS...This spring, I had the privilege of traveling (finally!) out of the country — to Sicily, where my grandmother was born in 1924. My friend and I had been planning...Reactions0reactionsComments6 comments
An Update on Keegan’s Fibromyalgia Journey...It’s official! Keegan’s doctor diagnosed him with fibromyalgia. To those of you who haven’t seen my previous post, I had been worried about additional diagnoses Keegan may have. After all...Reactions0reactionsComments3 comments
Anyone else have myasthenia Gravis also? ...Hi. I was looking for another person that had AS and myasthenia Gravis. The 2 of them are at complete ends of how you should try and live with them...Reactions0reactionsComments5 repliesAwareness
Gut Healing Strategies I Use to Help Manage Axial Spondyloarthritis...Working as a health coach, I often find myself talking with people about improving the health of their gut. I’ve been focussed on healing my gut for about 8 years...Reactions0reactionsComments16 comments
My Pain Management Procedure...I could have never prepared myself for the injections for my muscle spasms. I got multiple injections on each side of my neck and down along the spasms on my...Reactions0reactionsComments17 comments
My COVID Antivirals Experience...After spending the best part of two years under virtual house arrest in an attempt to protect myself from COVID, it finally found its way to me. Annoyingly, I was...Reactions0reactionsComments5 comments
How I Spend My Birthday With AS...Another year has flown by, bringing me to the month of June, when I had my 35th birthday. I took the day off of work. I decided this year to take...Reactions0reactionsComments7 comments
Anyone going to a chiropractor?...Hi, I was wondering if any of you have any experience with going to a chiropractor as "treatment" for your condition? 2 years ago I went to see a chiropractor...Reactions0reactionsComments3 replies
From a Happy Girl to a Depressed, Isolated Person...I don't know, I must be the only one writing about AS from Bangladesh. My AS symptoms began in October 2021. It hasn't even been a year, but God, I...Reactions0reactionsComments5 comments
Have you had trouble accessing methotrexate since Roe v. Wade was overturned?...Some arthritis patients are reporting trouble accessing methotrexate, a well-established arthritis drug, since abortion became illegal in some states in June. While methotrexate is FDA-approved to treat inflammatory forms of...Reactions0reactionsComments1 replies
Blurry vision ...I woke up this morning and my vision was very blurry, I couldn't focus on anything close to me or far away. It lasted for a couple of hours. I...Reactions0reactionsComments3 replies
Spondylosis how is it different from AS...I was diagnosed with spondylosis years ago. Is that the beginning of AS? What symptoms, my back is in really bad shape, stenosis, scoliosis, 5 disc's herniated and or bulging..I...Reactions0reactionsComments2 repliesAxial Spondyloarthritis
Walk Away From Pain...I am a walker! I used to be a runner, but those days are long behind me. Still, when I am out on the open road with just my two...Reactions0reactionsComments6 comments
What My Bullet Journal Taught Me...I spent some time exploring Bullet Journal techniques several years ago in hopes of adapting it for my Spoonie Chat folks, but it didn’t come together well enough to share...Reactions0reactionsComments3 comments
Ankylosing Spondylitis and Digestive Issues...I’m not able to do much these days. I've been in symptom hell for the past 7 or so weeks. It started at the end of May with what I...Reactions0reactionsComments18 comments
My Attempt to Stop My Medication...In 2018, I spent one month in France without my medication. Of course, it wasn’t planned... I left the UK in the hurry, as my dear grandmother was admitted to...Reactions0reactionsComments9 comments
Have you had problems having methotrexate filled because of the reversal of Roe vs. Wade? ...While not debating or arguing whether you are for or against this recent ruling, has anyone dealt with problems having methotrexate filled because of the reversal of Roe vs. Wade?...Reactions0reactionsComments7 repliesCommunity SupportCopingAwareness
Waiting/wanting to die ...To be so conscious of pain… Every movement and every moment brings a different level of pain in a different area of body… stabbing hip pain, burning rivers of lava...Reactions0reactionsComments11 replies
