Seeing the Funny Side of Brain Fog...Brain fog is definitely one of the more annoying symptoms of AS. It’s bad enough that this condition robs us of our mobility at times but stealing our brain power as...Reactions0reactionsComments15 comments
Life Changing, but Not So Bad...I am 41 years old and I was just diagnosed a year ago. My rheumatologist says I am at stage 3 right now. I always knew that there was something...Reactions0reactionsComments4 comments
Finally Got 2 Weeks of Heaven...These past 2 weeks felt like heaven. For anyone suffering from a chronic illness, it's a wish come true to be able to get good days. I was one of...Reactions0reactionsComments3 comments
My (Not Quite) Guilty Pleasures...As a rule, guilty pleasures are things that we enjoy despite a certain amount of low regard by society or our specific peer group. It's usually embarrassing to admit our...Reactions0reactionsComments3 comments
Pop Quiz #2: Learning More About Ankylosing Spondylitis...We're back with another pop quiz to test your knowledge! Let us know how you did in the comments below! Have a question or perspective you want to share with...Reactions0reactionsComments2 comments
I Was Okay Yesterday, But Today I'm Not...It's storytime. Are you ready? I’m out to dinner with some people — friends of a friend — who are casually talking about a work colleague. The colleague clearly has...Reactions0reactionsComments8 comments
My Double Jaw Surgery Journey...I remember the first time I was teased because of my jaw dysfunction. I was in middle school and this girl always used to make fun of me because my...Reactions0reactionsComments22 comments
I Live With AS, But AS Doesn’t Define Me...We asked our Facebook community to complete the following sentence, "AS doesn't define me, I am ________." Check out some of the responses in the video below, then share your...Reactions0reactionsComments3 comments
I Was Medically Gaslit...Again...About a year ago, I switched family doctors because my last one was ableist and rude towards me. I thought that I had found a better doctor, things were good...Reactions0reactionsComments24 comments
Walking With Ankylosing Spondylitis and Jimmy Buffett...I love playlists. I have a library of about 3,000 songs, mostly classic rock (I am an old guy, remember), pop, country, and some modern rock. I love putting music...Reactions0reactionsComments17 comments
Dancing My AS Off...As a little girl I remember always dancing everywhere. It didn't matter where I was, or who was looking, I danced whenever I heard music come on. It's always been...Reactions0reactionsComments4 comments
AS & Movement/Exercise...Hi, everyone. I'm very interested to hear what kind of movement and exercise you do — if you can still do exercise, of course. While there are things I can't...Reactions0reactionsComments9 repliesAxial Spondyloarthritis Tips & AdviceExercise
Conflict between rheumatologists and feeling hopeless ...My mum tried to switch me to another rheumatologist due to the fact with my first one it was hard to contact them at all between appointments, to discuss if...Reactions0reactionsComments5 repliesDepressionHealthcare TeamMisunderstood
Increased dose...Cosentyx is working but not taking away all of the symptoms. My dr recommended increasing the dosage from 150 to 300 mg. Does anyone have any experience with this dosage...Reactions0reactionsComments2 repliesSide EffectsTreatment
Saying Goodbye: An Open Letter to Myself...I know things haven’t been easy on you for quite some time. You feel lost in the world—holding a map with no compass. You constantly feel the shadow of your...Reactions0reactionsComments5 comments
I’ve Had Ankylosing Spondylitis for 5 Years...This year marks my 5 years of having AS. It feels wild! I’ve had AS for half of a decade! I can’t believe it. Things have changed so much since...Reactions0reactionsComments8 comments
What influences a Rheumatologist to prescribe immunosuppressants or biologics?...I am curious to find out if the Rheumatologists gets any form of incentives or kickbacks if they advise most of their patients to take Biologics. Most of the people...Reactions0reactionsComments21 repliesTreatmentAlternative TreatmentAwareness
The Gifts of My Diagnosis...When you live with a chronic illness, it’s easy to focus on the challenges it brings. Our abilities change, we have to make time to see doctors and manage symptoms...Reactions0reactionsComments5 comments
A Mummy's Boy: Coping With Loss and Chronic Illness...My mum died in 2021. It was in February, a dreary month in the UK when the skies are grey and the clouds are heavy, their bellies swollen with the...Reactions0reactionsComments5 comments
Pregnancy & AS...This is a space to discuss all things pregnancy and AS! -What is/was your experience like being pregnant and diagnosed with AS? What tips or advice would you share with...Reactions0reactionsComments1 repliesFriends & FamilyTips & AdviceIntimacy & Relationships
