My Double Jaw Surgery Journey...I remember the first time I was teased because of my jaw dysfunction. I was in middle school and this girl always...reactions22comments
I Live With AS, But AS Doesn’t Define Me...We asked our Facebook community to complete the following sentence, "AS doesn't define me, I am ________." Check out some of the...reactions3comments
I Was Medically Gaslit...Again...About a year ago, I switched family doctors because my last one was ableist and rude towards me. I thought that I...reactions24comments
Walking With Ankylosing Spondylitis and Jimmy Buffett...I love playlists. I have a library of about 3,000 songs, mostly classic rock (I am an old guy, remember), pop, country...reactions17comments
Dancing My AS Off...As a little girl I remember always dancing everywhere. It didn't matter where I was, or who was looking, I danced whenever...reactions4comments
AS & Movement/Exercise...Hi, everyone. I'm very interested to hear what kind of movement and exercise you do — if you can still do exercise...reactions30repliesAxial Spondyloarthritis ExerciseTips & Advice
Conflict between rheumatologists and feeling hopeless ...My mum tried to switch me to another rheumatologist due to the fact with my first one it was hard to contact...reactions5repliesMisunderstood DepressionHealthcare Team
Increased dose...Cosentyx is working but not taking away all of the symptoms. My dr recommended increasing the dosage from 150 to 300 mg...reactions2repliesTreatmentSide Effects
Saying Goodbye: An Open Letter to Myself...I know things haven’t been easy on you for quite some time. You feel lost in the world—holding a map with no...reactions5comments
I’ve Had Ankylosing Spondylitis for 5 Years...This year marks my 5 years of having AS. It feels wild! I’ve had AS for half of a decade! I can’t...reactions8comments
What influences a Rheumatologist to prescribe immunosuppressants or biologics?...I am curious to find out if the Rheumatologists gets any form of incentives or kickbacks if they advise most of their...reactions21repliesAlternative TreatmentAwarenessTreatment
The Gifts of My Diagnosis...When you live with a chronic illness, it’s easy to focus on the challenges it brings. Our abilities change, we have to...reactions5comments
A Mummy's Boy: Coping With Loss and Chronic Illness...My mum died in 2021. It was in February, a dreary month in the UK when the skies are grey and the...reactions5comments
Pregnancy & AS...This is a space to discuss all things pregnancy and AS! -What is/was your experience like being pregnant and diagnosed with AS?...reactions1replyIntimacy & RelationshipsFriends & FamilyTips & Advice
etoricoxib 60mg...Anyone else on these for AS? Recently been diagnosed after 7 long years of pain !!! These seem to be working but...reactions2replies
FOMO...AS can cause us to cancel plans, sit out on participating in activities, and miss out on things we might otherwise not...reactions28repliesCopingFriends & FamilyTips & Advice
I Traveled Without Pain (For Once), or How Climate Affects AS...This spring, I had the privilege of traveling (finally!) out of the country — to Sicily, where my grandmother was born in...reactions6comments
An Update on Keegan’s Fibromyalgia Journey...It’s official! Keegan’s doctor diagnosed him with fibromyalgia. To those of you who haven’t seen my previous post, I had been worried...reactions3comments
Anyone else have myasthenia Gravis also? ...Hi. I was looking for another person that had AS and myasthenia Gravis. The 2 of them are at complete ends of...reactions5repliesAwareness
Gut Healing Strategies I Use to Help Manage Axial Spondyloarthritis...Working as a health coach, I often find myself talking with people about improving the health of their gut. I’ve been focussed...reactions16comments
