Walking With Ankylosing Spondylitis and Jimmy Buffett...I love playlists. I have a library of about 3,000 songs, mostly classic rock (I am an old guy, remember), pop, country, and some modern rock. I love putting music...reactions17comments
Dancing My AS Off...As a little girl I remember always dancing everywhere. It didn't matter where I was, or who was looking, I danced whenever I heard music come on. It's always been...reactions4comments
AS & Movement/Exercise...Hi, everyone. I'm very interested to hear what kind of movement and exercise you do — if you can still do exercise, of course. While there are things I can't...reactions19repliesAxial Spondyloarthritis ExerciseTips & Advice
Conflict between rheumatologists and feeling hopeless ...My mum tried to switch me to another rheumatologist due to the fact with my first one it was hard to contact them at all between appointments, to discuss if...reactions5repliesMisunderstood DepressionHealthcare Team
Increased dose...Cosentyx is working but not taking away all of the symptoms. My dr recommended increasing the dosage from 150 to 300 mg. Does anyone have any experience with this dosage...reactions2repliesTreatmentSide Effects
Saying Goodbye: An Open Letter to Myself...I know things haven’t been easy on you for quite some time. You feel lost in the world—holding a map with no compass. You constantly feel the shadow of your...reactions5comments
I’ve Had Ankylosing Spondylitis for 5 Years...This year marks my 5 years of having AS. It feels wild! I’ve had AS for half of a decade! I can’t believe it. Things have changed so much since...reactions8comments
What influences a Rheumatologist to prescribe immunosuppressants or biologics?...I am curious to find out if the Rheumatologists gets any form of incentives or kickbacks if they advise most of their patients to take Biologics. Most of the people...reactions21repliesAlternative TreatmentAwarenessTreatment
The Gifts of My Diagnosis...When you live with a chronic illness, it’s easy to focus on the challenges it brings. Our abilities change, we have to make time to see doctors and manage symptoms...reactions5comments
A Mummy's Boy: Coping With Loss and Chronic Illness...My mum died in 2021. It was in February, a dreary month in the UK when the skies are grey and the clouds are heavy, their bellies swollen with the...reactions5comments
Pregnancy & AS...This is a space to discuss all things pregnancy and AS! -What is/was your experience like being pregnant and diagnosed with AS? What tips or advice would you share with...reactions1replyIntimacy & RelationshipsFriends & FamilyTips & Advice
etoricoxib 60mg...Anyone else on these for AS? Recently been diagnosed after 7 long years of pain !!! These seem to be working but I’ve heard you can’t be on these long...reactions2replies
FOMO...AS can cause us to cancel plans, sit out on participating in activities, and miss out on things we might otherwise not have. This can strain friendships, relationships, and loving...reactions28repliesCopingFriends & FamilyTips & Advice
I Traveled Without Pain (For Once), or How Climate Affects AS...This spring, I had the privilege of traveling (finally!) out of the country — to Sicily, where my grandmother was born in 1924. My friend and I had been planning...reactions6comments
An Update on Keegan’s Fibromyalgia Journey...It’s official! Keegan’s doctor diagnosed him with fibromyalgia. To those of you who haven’t seen my previous post, I had been worried about additional diagnoses Keegan may have. After all...reactions3comments
Anyone else have myasthenia Gravis also? ...Hi. I was looking for another person that had AS and myasthenia Gravis. The 2 of them are at complete ends of how you should try and live with them...reactions5repliesAwareness
Gut Healing Strategies I Use to Help Manage Axial Spondyloarthritis...Working as a health coach, I often find myself talking with people about improving the health of their gut. I’ve been focussed on healing my gut for about 8 years...reactions16comments
My Pain Management Procedure...I could have never prepared myself for the injections for my muscle spasms. I got multiple injections on each side of my neck and down along the spasms on my...reactions19comments
My COVID Antivirals Experience...After spending the best part of two years under virtual house arrest in an attempt to protect myself from COVID, it finally found its way to me. Annoyingly, I was...reactions5comments
How I Spend My Birthday With AS...Another year has flown by, bringing me to the month of June, when I had my 35th birthday. I took the day off of work. I decided this year to take...reactions7comments
