Applying for Disability: Interview With Patient Leader Rick Phillips...Our AS.net community has shared varying experiences regarding disability applications. Some people were approved right away, others appealed and eventually were approved, and some have been waiting for years to...Reactions0reactionsComments5 comments
AS bones hardening… how long?...I was diagnosed with bamboo spine 3 months ago after 6 months of chronic pain where I’m in a wheel chair now when I was still walking only 6 months...Reactions0reactionsComments7 replies
Tomesha Campbell...Tomesha Campbell was diagnosed with rheumatoid arthritis and Sjögren's syndrome in 2019. As a Health Coach since 2016, she uses her nutritional trainer and expertise to manage her condition through...
My Experiences With Switching Biologics...Over my 5 years of having AS, I’ve now been on 3 different biologics. I’ve tried Inflectra (Remicade), Humira, and I’m currently on Cosentyx. I want to say that biologics...Reactions0reactionsComments2 comments
The 4-Month Flare...A recent flare up started in early November 2021 (it was March when I wrote this!) during the weekend of my birthday celebration in New Orleans (yep, I'm a Scorpio!)...Reactions0reactionsComments28 comments
Applying for Disability: Interview With Patient Leader Diana Castaldini...Our AS.net community has shared varying experiences regarding disability applications. Some people were approved right away, others appealed and eventually were approved, and some have been waiting for years to...Reactions0reactionsComments6 comments
Inability to walk...I’m now 63 years of age and managed my AS quite well and managed to live my life in spite of the disease, but over the last 7 months have...Reactions0reactionsComments4 repliesAxial Spondyloarthritis Coping
Flare Up Feelings...For the past six to eight weeks, I had been going through a terrible flare up. I had no energy at all. When this happens, I constantly feel sick. My inflammation levels were sky high, they are now slowly starting...Reactions0reactionsComments7 comments
Managing Symptoms, Kids and a Job...I posted awhile back and want to give an update. So I've been busy with work and dr appointments. My AS has attacked my left eye since 2015. I lost...Reactions0reactionsComments2 comments
Using Spoons Wisely: Intentional Socializing ...Early on in my journey of AS, I was trying to please everyone. Despite at the time struggling both physically and emotionally, I would suppress it and do everything I...Reactions0reactionsComments5 comments
Surgery, Procedures, Multiple Treatments, Oh My!...I can honestly say after 4 years of dealing with my AS diagnosis, I have become a guinea pig! And not the fluffy cute kind. The kind that feels locked...Reactions0reactionsComments6 comments
Great partners/Spouses...We have a really great pet thread going - how about wonderful spouses and partners? My fella and I have been together for 22 years (crap, I'm old! LOL!) after...Reactions0reactionsComments1 repliesFriends & FamilyCaregivingIntimacy & Relationships
I Was Diagnosed With Fibromyalgia...For those who may not know, Fibromyalgia is a chronic condition that causes widespread pain, fatigue, sleep issues, and many other symptoms. Fibromyalgia has been a question mark in my...Reactions0reactionsComments4 comments
Early AS Signs I Wish I Picked Up On...I am often asked if there were early warning signs prior to my AS diagnosis. I used to believe that there weren’t any and it all happened suddenly. I’ve spoken...Reactions0reactionsComments26 comments
Pop Quiz #1: Learning More About Ankylosing Spondylitis...Test your AS knowledge and take this short quiz! How many did you get correct? Share in the comments below!...Reactions0reactionsComments1 comments
Monday Mornings Can Be the Hardest for Me...Monday morning, time to get up for work. My alarm clock keeps ringing and I keep putting it on snooze. There are 5 minutes until I start for work. Thankfully...Reactions0reactionsComments8 comments
Don't Let a Smile Fool You...Behind that smile of mine hides many things, that I decide who to open up to and tell. Would you be able to tell that I have an invisible illness? Would...Reactions0reactionsComments12 comments
Going Out for a Day and the Result...About a month ago now, I went downtown for a day trip with one of my close friends. I knew immediately when we got the idea that this would be...Reactions0reactionsComments2 comments
The Long-Term Effects of Uveitis...I was freshly out of college and going into grad school when uveitis struck — and it struck hard. I was otherwise perfectly healthy, a privilege that is glaringly obvious...Reactions0reactionsComments2 comments
Help getting a diagnosis...The more I read about this disease the more I’m convinced that I have it. How do I go about talking to my doctor about it without sounding like I’m...Reactions0reactionsComments4 repliesDiagnosis
