Saying Goodbye: An Open Letter to Myself...I know things haven’t been easy on you for quite some time. You feel lost in the world—holding a map with no...reactions5comments
I’ve Had Ankylosing Spondylitis for 5 Years...This year marks my 5 years of having AS. It feels wild! I’ve had AS for half of a decade! I can’t...reactions8comments
What influences a Rheumatologist to prescribe immunosuppressants or biologics?...I am curious to find out if the Rheumatologists gets any form of incentives or kickbacks if they advise most of their...reactions21repliesAlternative TreatmentAwarenessTreatment
The Gifts of My Diagnosis...When you live with a chronic illness, it’s easy to focus on the challenges it brings. Our abilities change, we have to...reactions5comments
A Mummy's Boy: Coping With Loss and Chronic Illness...My mum died in 2021. It was in February, a dreary month in the UK when the skies are grey and the...reactions5comments
Pregnancy & AS...This is a space to discuss all things pregnancy and AS! -What is/was your experience like being pregnant and diagnosed with AS?...reactions1replyIntimacy & RelationshipsFriends & FamilyTips & Advice
etoricoxib 60mg...Anyone else on these for AS? Recently been diagnosed after 7 long years of pain !!! These seem to be working but...reactions2replies
FOMO...AS can cause us to cancel plans, sit out on participating in activities, and miss out on things we might otherwise not...reactions28repliesCopingFriends & FamilyTips & Advice
I Traveled Without Pain (For Once), or How Climate Affects AS...This spring, I had the privilege of traveling (finally!) out of the country — to Sicily, where my grandmother was born in...reactions6comments
An Update on Keegan’s Fibromyalgia Journey...It’s official! Keegan’s doctor diagnosed him with fibromyalgia. To those of you who haven’t seen my previous post, I had been worried...reactions3comments
Anyone else have myasthenia Gravis also? ...Hi. I was looking for another person that had AS and myasthenia Gravis. The 2 of them are at complete ends of...reactions5repliesAwareness
Gut Healing Strategies I Use to Help Manage Axial Spondyloarthritis...Working as a health coach, I often find myself talking with people about improving the health of their gut. I’ve been focussed...reactions16comments
My Pain Management Procedure...I could have never prepared myself for the injections for my muscle spasms. I got multiple injections on each side of my...reactions19comments
My COVID Antivirals Experience...After spending the best part of two years under virtual house arrest in an attempt to protect myself from COVID, it finally...reactions5comments
How I Spend My Birthday With AS...Another year has flown by, bringing me to the month of June, when I had my 35th birthday. I took the day off...reactions7comments
Anyone going to a chiropractor?...Hi, I was wondering if any of you have any experience with going to a chiropractor as "treatment" for your condition? 2...reactions3replies
From a Happy Girl to a Depressed, Isolated Person...I don't know, I must be the only one writing about AS from Bangladesh. My AS symptoms began in October 2021. It...reactions5comments
Have you had trouble accessing methotrexate since Roe v. Wade was overturned?...Some arthritis patients are reporting trouble accessing methotrexate, a well-established arthritis drug, since abortion became illegal in some states in June. While...reactions1reply
Blurry vision ...I woke up this morning and my vision was very blurry, I couldn't focus on anything close to me or far away...reactions3replies
Spondylosis how is it different from AS...I was diagnosed with spondylosis years ago. Is that the beginning of AS? What symptoms, my back is in really bad shape...reactions2repliesAxial Spondyloarthritis
