Currently getting diagnosed...Hello, first post here.. I'm 32 w/ family history of AS and I've been putting off going to the rheumatologist for years. My Dad has severe AS ever since I...Reactions0reactionsComments1 repliesNewly Diagnosed ExerciseDiagnosis
I Stood Up For Myself!...I’ve been a shy, anxious person my whole life. I don’t remember a time when I found it easy to talk to people. I was even anxious around extended family...Reactions0reactionsComments3 comments
Finally Finding Relief...I've had 5 long years of an agonizing flare that I thought would never subside. This journey to and through diagnosis of spondyloarthritis has seen symptoms linger, intensify, and morph...Reactions0reactionsComments19 comments
The Pain That Wasn’t AS...It had been a year without a flare, the first I could remember in more than a decade. The years of fine tuning, taking care of my health, figuring out...Reactions0reactionsComments8 comments
Keep On Dancing: Going to a Concert With AxSpA...Axial spondyloarthritis has a way of creeping into every activity I do, like a bright red sock accidentally mixed in with a load of white laundry. Some garments turn bright...Reactions0reactionsComments4 comments
My First AxSpa Medication Led to Neutropenia...I am in charge of my health, I keep a close eye on my blood tests and other investigations, I follow my case living with AxSpa thoroughly. I have been...Reactions0reactionsComments12 comments
The Never-Ending War Between Pain and Fatigue...Lately my days have been spent glued to my bed, barely feeling human. I haven’t been able to write, work on my art, or do anything really aside from zone...Reactions0reactionsComments13 comments
Resistance Bands for Ankylosing Spondylitis...In my pre-diagnosis days, the only thing I enjoyed more than a trip to the pub was one to the gym. In the months before AS turned up to spoil the party, I...Reactions0reactionsComments10 comments
How do you manage your fatigue? ...Through prompts and polls, you've told us that fatigue is your most prevalent symptom other than pain and stiffness. How do you manage your fatigue?...Reactions0reactionsComments6 repliesSymptomsTips & AdviceFatigue
Biologics...Diagnosed with AS in late 90's, started on ENBREL 2009, after hip replacement, stiffness was minimal, and pain literally vanished but now in 2022, the ENBREL is NOT WORKING as...Reactions0reactionsComments1 repliesAxial Spondyloarthritis DepressionAlternative Treatment
Cultivating Calmness...I have now lived with ankylosing spondylitis for the past 12 years. What a journey! What a rollercoaster! So much has happened since my diagnosis. Lots of experiments and learnings...Reactions0reactionsComments2 comments
How I Garden With Arthritis...I come from a long line of gardeners. My great grandfather was a proper professional English Gardener. My grandmother grew lots of veggies, including a crop of carrots pushed into...Reactions0reactionsComments4 comments
scared...im 52 and have been dealing with as for 20 plus years. with the help of cbd oil my pail level is a 3 out of 10. ive tried so...Reactions0reactionsComments5 repliesTips & AdviceCopingFlares
My First Trips With AS...When I got diagnosed with ankylosing spondylitis it was during the beginning of the COVID-19 pandemic. As we all know, everything was closed and traveling was not an option in...Reactions0reactionsComments3 comments
To Everyone Who Pretends They're My Doctor.......Ever wanna roll your eyes at someone who clearly has no idea what your disease is about — but who feels the need to share their thoughts or ask strange...Reactions0reactionsComments11 comments
Plans For The Summer?...We are officially in Summer! I mean you would not be able to tell here in London at the moment as the weather is currently absolutely miserable. But hopefully that...Reactions0reactionsComments17 repliesFriends & FamilyTravelWeather
An Amazing Week...I am always grateful for a good week. But there is always a sense of sadness that comes with it. A sadness that this is what I miss out on...Reactions0reactionsComments8 comments
Wax Off, Wax On...This is about my ankylosing spondylitis and uveitis and how some days I move my hands, (when I CAN, lol) to wax off the yucky stuff in my eyes, while...Reactions0reactionsComments11 comments
Making Space for Self Compassion...Being kind to yourself is important when you have a chronic illness like ankylosing spondylitis. Some days self-compassion means cutting myself some slack when I feel too tired, sore, or...Reactions0reactionsComments0 comments
Setting Limits in Social Situations...It is a common trend in the Spondylitis community. Canceling plans. On Monday we were ready to go out with friends on Saturday. Come Saturday, we can’t bring ourselves to...Reactions0reactionsComments6 comments
