What My Bullet Journal Taught Me...I spent some time exploring Bullet Journal techniques several years ago in hopes of adapting it for my Spoonie Chat folks, but...reactions3comments
Ankylosing Spondylitis and Digestive Issues...I’m not able to do much these days.I've been in symptom hell for the past 7 or so weeks. It started at...reactions18comments
My Attempt to Stop My Medication...In 2018, I spent one month in France without my medication. Of course, it wasn’t planned... I left the UK in the...reactions9comments
Have you had problems having methotrexate filled because of the reversal of Roe vs. Wade? ...While not debating or arguing whether you are for or against this recent ruling, has anyone dealt with problems having methotrexate filled...reactions7repliesAwarenessCommunity SupportCoping
Waiting/wanting to die ...To be so conscious of pain… Every movement and every moment brings a different level of pain in a different area of...reactions11replies
How Brain Fog Impacts My Life...We all know brain fog all too well. For many of us, it started out as something small—merely stumbling on our words...reactions9comments
Applying for Disability: Interview With Patient Leader Rick Phillips...Our AS.net community has shared varying experiences regarding disability applications. Some people were approved right away, others appealed and eventually were approved...reactions5comments
AS bones hardening… how long?...I was diagnosed with bamboo spine 3 months ago after 6 months of chronic pain where I’m in a wheel chair now...reactions7replies
Tomesha Campbell...Tomesha Campbell was diagnosed with rheumatoid arthritis and Sjögren's syndrome in 2019. As a Health Coach since 2016, she uses her nutritional...
My Experiences With Switching Biologics For AS...Over my 5 years of having ankylosing spondylitis, I’ve had to switch biologics twice. I’ve tried Inflectra (Remicade) and Humira, and I’m...reactions4comments
The 4-Month Flare...My most recent flare-up started 4 months ago during the weekend of my birthday celebration in New Orleans (yep, I'm a Scorpio!)...reactions28comments
Applying for Disability: Interview With Patient Leader Diana Castaldini...Our AS.net community has shared varying experiences regarding disability applications. Some people were approved right away, others appealed and eventually were approved...reactions6comments
Inability to walk...I’m now 63 years of age and managed my AS quite well and managed to live my life in spite of the...reactions9repliesAxial Spondyloarthritis Coping
Flare Up Feelings...For the past six to eight weeks, I had been going through a terrible flare up. I had no energy at all. When this happens, I constantly feel sick. My...reactions7comments
Using Spoons Wisely: Intentional Socializing ...Early on in my journey of AS, I was trying to please everyone. Despite at the time struggling both physically and emotionally...reactions5comments
Surgery, Procedures, Multiple Treatments, Oh My!...I can honestly say after 4 years of dealing with my AS diagnosis, I have become a guinea pig! And not the...reactions6comments
Great partners/Spouses...We have a really great pet thread going - how about wonderful spouses and partners? My fella and I have been together...reactions1replyIntimacy & RelationshipsCaregivingFriends & Family
I Was Diagnosed With Fibromyalgia...For those who may not know, Fibromyalgia is a chronic condition that causes widespread pain, fatigue, sleep issues, and many other symptoms...reactions4comments
Early AS Signs I Wish I Picked Up On...I am often asked if there were early warning signs prior to my AS diagnosis. I used to believe that there weren’t...reactions29comments
Pop Quiz #1: Learning More About Ankylosing Spondylitis...Test your AS knowledge and take this short quiz! How many did you get correct? Share in the comments below!...reactions1comment
