What's In My AxSpa Toolbox?Ever since I learned of my axial spondyloarthritis diagnosis, I began to gather tools to add to my coping toolbox! AxSpa can...reactions2comments
Dynamic Disability Means I Get To Define My ExperienceFor so long, using the term "disabled" to describe myself felt so it’s off-limits to me. It still does. Unless my AS...reactions4comments
My Chronic World ContinuesThey said to think more positive. They said tomorrow will be a better day. They said try another treatment plan it might...reactions1comment
I Got Scoped. Twice! My 2021 included a personal medical safari through hematology to treat a life-threatening anemia, gastroenterology to find the source, and close monitoring...reactions1comment
A Letter For Every Time I Feel Like Giving UpDear me, AxSpa warrior: I know you were so excited, that you were having some good days and on a roll. I...reactions2comments
Do I Need a Colonoscopy?I had my first colonoscopy in 2021 due to a life-threatening anemia, unexplained fatigue, weight loss, and abdominal pain. Most cultures have...reactions7comments
My Balance Between Self-Discipline and Self-DeprecationThere is a very fine line between having good self-discipline and striving to live a perfect life. Towing that line has had...reactions3comments
No More Adventures with My DogsMeet Maggie and Charlie. Maggie is a 5-year-old Basset Hound and Charlie is a 4-year-old mix between a German Shepard and a Huskey...reactions5comments
The 2 Types of Grief and How They Affect ASGrief. We all know what grief is, but did you know you can experience grief when you have a chronic illness? I...reactions4comments
Non-Radiographic AxSpa and Spinal InjuriesOne of the hardest things to deal with when living with axial spondyloarthritis is determining the source of pain and whether to...reactions7comments
I Hope That College Remains OnlineI have passed all my exams and I am finally in the final year of my degree! I’m excited and nervous to get...reactions5comments
The Importance of Having a Medical “Dream Team”My biggest regret over the last 16 years of being chronically ill is this: I wish I had assembled a team of...reactions3comments
Autumn and the Seasonal Shift of SymptomsFall is by far my favorite time of year, especially when living in a place with prime foliage. The few weeks at...reactions4comments
Advocates Sharing With Advocates: René and James Chat About a "New Normal"In my last article I interviewed Health Union advocate James Hollens. This is the continuation of that interview. Because we all have...reactions3comments
Who I Was Before AxSpa Is Very Different Than Who I Am NowBefore getting diagnosed, I was always an "on-the-go" kind of person. I used to love to go out. I hated being home...reactions2comments
When You Feel No PainThere are a few times when I feel almost no pain. First, when I’m very sick, like with an infection of some...reactions6comments
Time Spent Managing My Health: An Investment That Comes With a PriceI recall filling a survey on this website and answering a question about the amount of time I spend managing my condition...reactions4comments
A Trip Away With an Uncomfortable BedSince I was about 10 years old, every summer I would go on a holiday with my mam, my aunt and my grandparents...reactions11comments
We Should Collaborate With Our DoctorsGrowing up, I got it into my head that doctors were akin to authority figures or bosses. What they said was law...reactions3comments
Things I Wish I Was Told When Getting Diagnosed with ASGetting diagnosed with AS really young left me growing up not being fully aware of what it meant to live a life...reactions4comments
