Full of Different Emotions Waiting to Start My Next BiologicIt’s been an anxious wait, since seeing my rheumatologist mid-July. I felt so confident leaving his office. Finally, felt listened to, that my pains needed some help. My pains had...Reactions0reactionsComments3 comments
The "Flu-mira"It has been more than a year since I started treating my ankylosing spondylitis with Humira. This treatment has been life-changing. Even though I still might get some rigidity or...Reactions0reactionsComments1 comments
3 Journaling Prompts For AS Self-CareWhen I’m really down, I tend to turn toward writing. There’s something about putting pen to page, or fingers to keyboard, that alchemizes the experience of emotion. It gives it...Reactions0reactionsComments10 comments
My Experience With Switching BiologicsI started biologics in July of 2020, a nerve-wracking experience for me. I was on Cimzia for 3 months, I did not have a pleasant experience with Cimzia. I wrote articles about this that you can read. I...Reactions0reactionsComments5 comments
My Third Of Many COVID Jabs?Last Thursday I was lucky enough to get my third Pfizer vaccination to protect me from this pesky coronavirus that doesn’t seem to be leaving us anytime soon. This COVID...Reactions0reactionsComments2 comments
I Cherish My Precious AttentionWith AxSpa we can experience brain fog, difficulty to stay focused, lack of attention, and short attention span. That is the kind of thing that strikes me the most with...Reactions0reactionsComments8 comments
What Brain Fog Looks Like for MeDo you ever struggle with remembering where you put things, forming complete thoughts, or even remembering what you were thinking about doing 2 minutes ago and now you’re standing in...Reactions0reactionsComments21 comments
My AxSpA WeathermanIt’s raining again, I think to myself. I peek out the window and sure enough, there’s a downpour. I don’t need to see rain in the forecast, I can feel...Reactions0reactionsComments3 comments
5 Things That Make Shopping EasierShopping is not my favorite thing. It was kind of fun before arthritis, but these days it’s just something that I have to get done. It’s the classic trickster’s trap...Reactions0reactionsComments6 comments
My Experience with Ontario Disability (ODSP)Right before Covid hit I had made the hard decision to apply for Ontario Disability (ODSP) and quit my job. I had been considering it for months as my symptoms...Reactions0reactionsComments2 comments
All Wins Are Big WinsOne of the most frustrating things that happens when living with AS is the tendency to judge ourselves against our pre-diagnosis selves or others who live without AS. I have certainly...Reactions0reactionsComments2 comments
Write It DownI have always wanted to be a writer. Secretly. Secretly, because the world I grew up in didn’t have writers in it. Or writers didn’t come from or inhabit our...Reactions0reactionsComments10 comments
My COVID-19 Booster Vaccine ExperienceI was supposed to get my third Covid vaccine on the 9th of October. I postponed it as I was feeling so unwell from an awful flare. This flare has been going...Reactions0reactionsComments1 comments
First Event Going Out With AxSpaIt has been 2 and a half years of being on sick leave. I got lucky in a way, as my diagnosis happened right before the pandemic. As Covid came...Reactions0reactionsComments2 comments
A Spoonie ThanksgivingAs a London boy, my knowledge of Thanksgiving is very limited and mostly stolen from episodes of Friends which I used to watch as a teen. However, from what I...Reactions0reactionsComments10 comments
What Helps Me Get Through My FlaresGetting my diagnosis was the easy part. On the other hand, getting through flares, that was a different story. My doctors never explained to me anything about what flares were...Reactions0reactionsComments0 comments
The Struggle to Maintain Friendships with Chronic FatigueBuilding connections with others is one of the most special components of the human experience. Our connection, bonds, and memories with those who understand us is what makes life sparkle...Reactions0reactionsComments5 comments
The Art of At-Home MassageLight up some candles. Get the aromatherapy going. Put on some soothing music. It's time for an at-home massage. At least, that's what it's like when I set up an...Reactions0reactionsComments2 comments
The Upside of Getting a DiagnosisThe night I found out I had AS is permanently imprinted on my mind. I was working late supervising a new team member and saw the doctor’s number come up...Reactions0reactionsComments2 comments
There’s No "One Size Fits All" With Axial SpondyloarthritisIf you and I were to sit down and compare notes about our health we would probably have much in common. I’m guessing we both have either a confirmed or...Reactions0reactionsComments3 comments