Setting Limits in Social Situations...It is a common trend in the Spondylitis community. Canceling plans. On Monday we were ready to go out with friends on Saturday. Come Saturday, we can’t bring ourselves to...Reactions0reactionsComments6 comments
Personal Needs and Self-Care as Practice...I’m still working out the details of what self-care means for me, and if I’m being honest my idea of self-care and my own personal needs are always changing. There...Reactions0reactionsComments5 comments
Cbd ...I have been using 1000mg cbd lotion on painful spots. Some days I would love to take a bath in it! I am wondering if anyone else has found topical...Reactions0reactionsComments12 replies
newly diagnosed but in severe ankle pain for months...I have just been recently diagnosed AS/bamboo spine (90 to 95% they tell me) but I’ve been in extreme pain since January. I’ve just taken Humira 2nd dose and it...Reactions0reactionsComments4 repliesTreatmentNewly Diagnosed Coping
Gut Issues, IBS-C, and Ankylosing Spondylitis...Editor's note: Read the first part of Katie's journey here. Have you ever experienced stomach pain and the need to evacuate your bowels so severely that you start sweating, shaking...Reactions0reactionsComments12 comments
It's Already 2 Years Since My Diagnosis...It has been 2 years since I received my diagnosis of AxSpa and fibromyalgia. I remember this day like it was yesterday. It's a day I will always remember. A...Reactions0reactionsComments4 comments
Feeling stuck and unsure...Hi all, I'm Carli, 37 F. Diagnosed finally in December of 2021. Looooong journey to get here, and now I'm struggling. I took a new job in January. It is...Reactions0reactionsComments3 repliesDepressionCoping
Chills...Hello. I am new to this community and diagnosis although my symptoms are nothing new. Aside from pain and fatigue, does anyone else experience chills? Thank you....Reactions0reactionsComments4 replies
Having Independence as a Disabled Person...In 2021, I started identifying as disabled. My chronic fatigue took over my life in late 2020, and a few months later, in early 2021, I decided to start using...Reactions0reactionsComments5 comments
Social Media Self-Care...I'd be surprised to hear that most people aren't feeling like a combustible blend of exhausted, wary, and squashed flat under the weight of these wild times. Add a twist...Reactions0reactionsComments3 comments
Functional disorder...Hi all, I have a functional disorder that causes me to have a lot of different illnesses. I’ve got fibromyalgia, and because of this, I can’t wee anymore. I have...Reactions0reactionsComments2 comments
Plans for the weekend? ...The weather is getting nice! What plans do you have for the weekend? How do you make them AS friendly?...Reactions0reactionsComments7 repliesExerciseFriends & Family
Anklosying Spondylitis...I was recently diagnosed with AS. My rheumatologist first started me on Plaquenil even though I told her my last RA doctor gave me Plaquenil, and it made me so...Reactions0reactionsComments1 comments
Looking for a Support Group 😊...Hi, my name is Emily and I am going through the process of getting a care plan for my AS. I’m new to having AS and some of the stuff...Reactions0reactionsComments11 comments
A Different Life...I was diagnosed with AS, PsA and RA definitely and finally in 2013. I had repeated bouts of orbital myositis in 2009 and was on a high dose of prednisone...Reactions0reactionsComments2 comments
Evaluating My AS Offensive Scheme...I love the names of NFL offenses. I only have a rudimentary understanding of what they mean, but the names intrigue me. This past season I heard names for all...Reactions0reactionsComments8 comments
Living My Best AS Life!...When I was first diagnosed in 2018, I thought my life was over. I had already lost my job, and I lost my apartment, and I lost friends. I lost...Reactions0reactionsComments10 comments
Psoriasis and AS: The Stress Connection...Several years ago, my boyfriend and I moved into a new, lovely apartment with a killer view of the NYC skyline. We were so excited for the move, but it...Reactions0reactionsComments3 comments
Your Guide to Living With Ankylosing Spondylitis...Our site has been here since 2019, and in that time, we've published hundreds of articles. Our Patient Leaders have share their stories, journeys, tips, and tricks with us. Whether...Reactions0reactionsComments0 comments
How I Pass Time on Bedbound Days...One of the worst feelings in the world is having a day where you’re glued to your bed, but knowing that time is going to move even slower because of...Reactions0reactionsComments4 comments
