Do different seasons bring on different symptoms?...For me, winter causes more lumbar, SI joints, and peripheral joint pain, whereas summer causes more fatigue, brain fog, and muscle pain. I also have fibromyalgia and feel like that...reactions38repliesSymptomsWeather
Getting My Driver's License With Ankylosing Spondylitis...I got my license this month! After 7 years of constantly failing tests, I finally did it. Driving is not for everyone, some struggle with it more than others. I...reactions4comments
Understanding is Love: My New Mantra...“Understanding is love’s other name. If you don’t understand you can’t love.” -Thich Nhat Hanh If you met me and told me about a problem you are having in your...reactions4comments
Pain shaming...Has anyone gone to doctors or physical therapists and they basically shame you for your pain? I had a nasty flare and could barely walk. I was using a rollator...reactions4repliesExerciseTreatment
Trauma and Health Anxiety...During 2020 — when the pandemic began — I developed what I call extreme health anxiety. Living with ankylosing spondylitis (AS) just made it all the worse. I lived (and...reactions2comments
Having a Rough Day...This is mentally killing me. Going on disability was hard enough, that alone makes me feel so useless. I thank god everyday for my amazing wife who understands me and...reactions1comment
How soon they forget I have AS...I'm a little frustrated..o.k., a LOT frustrated. Once I got answers after too many yrs of searching for an answer to 'why am I tired, why do I need another...reactions1replyCopingMisunderstood Friends & Family
5 Low-Key Arthritis Advocacy Moves...I grew up around a bunch of civic minded folks. The adults in my life took an active part in our community. Between helping people get to doctor's visits and...reactions4comments
How Working On My General Health Helped My Symptoms...There’s a certain hopeless finality in being told you have a disease with no cure. I didn’t for a moment question the highly trained specialist sitting before me when he...reactions5comments
Currently getting diagnosed...Hello, first post here.. I'm 32 w/ family history of AS and I've been putting off going to the rheumatologist for years. My Dad has severe AS ever since I...reactions1replyNewly Diagnosed DiagnosisExercise
I Stood Up For Myself!...I’ve been a shy, anxious person my whole life. I don’t remember a time when I found it easy to talk to people. I was even anxious around extended family...reactions3comments
Finally Finding Relief...I've had 5 long years of an agonizing flare that I thought would never subside. This journey to and through diagnosis of spondyloarthritis has seen symptoms linger, intensify, and morph...reactions19comments
The Pain That Wasn’t AS...It had been a year without a flare, the first I could remember in more than a decade. The years of fine tuning, taking care of my health, figuring out...reactions8comments
Keep On Dancing: Going to a Concert With AxSpA...Axial spondyloarthritis has a way of creeping into every activity I do, like a bright red sock accidentally mixed in with a load of white laundry. Some garments turn bright...reactions4comments
My First AxSpa Medication Led to Neutropenia...I am in charge of my health, I keep a close eye on my blood tests and other investigations, I follow my case living with AxSpa thoroughly. I have been...reactions12comments
The Never-Ending War Between Pain and Fatigue...Lately my days have been spent glued to my bed, barely feeling human. I haven’t been able to write, work on my art, or do anything really aside from zone...reactions13comments
Resistance Bands for Ankylosing Spondylitis...In my pre-diagnosis days, the only thing I enjoyed more than a trip to the pub was one to the gym. In the months before AS turned up to spoil the party, I...reactions10comments
How do you manage your fatigue? ...Through prompts and polls, you've told us that fatigue is your most prevalent symptom other than pain and stiffness. How do you manage your fatigue?...reactions6repliesFatigue SymptomsTips & Advice
Biologics...Diagnosed with AS in late 90's, started on ENBREL 2009, after hip replacement, stiffness was minimal, and pain literally vanished but now in 2022, the ENBREL is NOT WORKING as...reactions1replyAlternative TreatmentAxial Spondyloarthritis Depression
Cultivating Calmness...I have now lived with ankylosing spondylitis for the past 12 years. What a journey! What a rollercoaster! So much has happened since my diagnosis. Lots of experiments and learnings...reactions2comments
