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Forums

Read conversations, start a discussion, and connect with others about Axial Spondyloarthritis.

FeaturedActive 6 days ago

If you could send a message to your younger self, what would it say?

Imagine if you could turn back the clock and offer guidance to your younger self, the person who first embarked on this journey with AxSpa. We invite you to share...

Active 8 days ago

Pain Level

When asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I was diagnosed in 1978 and have lived with...

What are your tips for preparing for a visit with your doctor?

Share your best tips for preparing for a doctor's visit when dealing with AS/AxSpa. Whether it's gathering medical history, noting down symptoms, or bringing up concerns, your insights can help...

Lifestyle Changes: What's Helped You?

What lifestyle changes have helped you cope with your AS? What changes haven't helped at all? Share the good and the bad below....

Christmas Gifts For People With AS

We are deep into the season of giving and it's got me thinking about what kind of things would make good gifts for those of us with chronic illnesses instead...

Does the weather affect your AS?

I'm at odds with this because I'd always thought the weather doesn't affect my AS. However, the older I've got, the more I've started to question if perhaps the rain...

What's Your Injection Routine?

I was wondering if anyone who takes injections has thought up of any kind of routine to make the process seem a bit more normal and less daunting. At the...

What's something you wish you were told when you were diagnosed?

We learn a lot from our diagnosis through experience, trial and error, and sharing information. What's one thing you wish you would have been told when you were first diagnosed?...

Biologics Side Effects

I recently started biologic injections (Cosentyx) to help manage my axSpA. 2 days after my injection I get flu like symptoms (nausea, headache, brain fog, fatigue). This seems to pass...

"But You Don't Look Sick?!"

Axial spondyloarthritis, though often invisible to the naked eye, can significantly impact daily life. This forum provides a space to share your encounters with this well-intentioned yet sometimes perplexing inquiry...

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