Pain LevelWhen asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I was diagnosed in 1978 and have lived with...Reactions0reactionsComments2 repliesTips & AdviceCopingMisunderstood
"But You Don't Look Sick?!"Axial spondyloarthritis, though often invisible to the naked eye, can significantly impact daily life. This forum provides a space to share your encounters with this well-intentioned yet sometimes perplexing inquiry...Reactions0reactionsComments21 repliesFriends & FamilyMisunderstood Tips & Advice
Featured How do you respond when someone unfamiliar with AxSpa questions your change of plans?Sometimes we might respond calmly; other times may be more defensive. Do you have a go-to response? Do you use it as a time to educate? Let's vent!...Reactions0reactionsComments10 repliesFriends & FamilyMisunderstood Tips & Advice
Hope is dwindling away…I have had LBP (now realising very much in keeping with AS symptoms) for the last 5 or 6 years, I’ve been to see countless physios that have given me...Reactions0reactionsComments3 repliesNon-Radiographic Axial SpondyloarthritisDiagnosisMisunderstood
Does anyone having extremely bad tendonitis, in elbows, wrists, anklesMy family have no idea what pain Im in. Cant see it, does it exist. What is AS anyway ? Nobody has heard of it and I don't think anyone...Reactions0reactionsComments2 repliesMisunderstood
Gaslighting by Medical Professionalsdoctors wanting you to think it's all inside your head!...Reactions0reactionsComments2 repliesAwarenessMisunderstood Mental Health
Does anyone else wish they couldDoes anyone else have a physician, a supervisor or a spouse that you wish you could let them each take about 2 weeks with your physical health (walk a mile...Reactions0reactionsComments1 repliesMisunderstood Awareness
FeaturedTell us you have AS without saying you have AS....Alright, let's try out this trend. Tell me you have AS without saying you have AS....Reactions0reactionsComments75 repliesCopingMisunderstood Awareness
How soon they forget I have ASI'm a little frustrated..o.k., a LOT frustrated. Once I got answers after too many yrs of searching for an answer to 'why am I tired, why do I need another...Reactions0reactionsComments1 repliesCopingMisunderstood Friends & Family
Conflict between rheumatologists and feeling hopeless My mum tried to switch me to another rheumatologist due to the fact with my first one it was hard to contact them at all between appointments, to discuss if...Reactions0reactionsComments5 repliesDepressionHealthcare TeamMisunderstood
