So what's your pain REALLY likeHi. I'm new here. Don't have a diagnosis, but I'm on the route to one, if AS is what my symptoms are. I'll briefly tell my tell history.... So at...reactions3repliesNewly Diagnosed Flares Symptoms
Do you know anyone else (in person) who has the same condition as you?I don't know anyone else, apart from my online friends, who have this condition. I'm curious to see if you do....reactions12repliesAwarenessCommunity SupportFriends & Family
Interstitial cystitis and Axial SpondHi, I’m in a really bad flare up (spine, ribs, hips, shoulders, wrists and feet), and I have now got interstitial cystitis which adds to my problems at night! Does...reactions3repliesAxial Spondyloarthritis
Stopping Humira ??Hello I have been on Humira and it has been almost constant UTIs and other issues. Now on my last blood work my liver tests are elevated. So I have...reactions4repliesInsurance & DisabilityAlternative Treatment
biologics or steroids and having AnkylosingSpondylitis.If you’re not on biologics or steroids right now and fully vaccinated with regards to my AS am I classed as immune suppressed? Also is my immune system over active...reactions2repliesAnkylosing Spondylitis
Bloodwork resultsHello! About a week ago, I had my yearly physical. I am newish to this provider as we have only lived in the area for about 15 months. I had...reactions6repliesVenting
Calcium supplements if you have AS?I have been told I have osteopenia - the beginnings of osteoporosis. Is taking a Calcium ssupplement safe if you already have fusion in your spine? I exercise regularly, but...reactions1replyTips & AdviceAnkylosing SpondylitisComorbidities
Anyone else have taste and appetite changes?Hello! As soon as I got my first infusion, my taste changed. I described many things as tasting like “dirty lake water”. It use to last for a week or...reactions3repliesAnkylosing SpondylitisDiet & NutritionFlares
Pure c4s for AS? Anybody????I have a friend that recommends this Pure c4s stuff from eterna pure. She basically says it's a miracle drug. I have my doubts. It is also known as summit...reactions1replyAlternative Treatment
