Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like axial spondyloarthritis (AxSpA)...reactionscomments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like ankylosing spondylitis (AS)...reactionscomments
Chronic Illness: A Life Sentence or A Lifeline?A chronic illness diagnosis can be a very confusing and terrifying experience. Being told that I had a medical condition that will never go away was a huge shock for...reactions5comments
The Many Doctors Who Manage My Axial SpondyloarthritisOne question I get often is "who treats axial spondyloarthritis?" Typically, this question arises from individuals with some of the symptoms of AxSpA but no diagnosis, so I figured why...reactions11comments
Alcohol and AS: What I've RealizedLast year I wrote a few articles about how I cut alcohol out entirely for a few months. At that point, I was recalibrating my relationship with alcohol after spending...reactions11comments
A Look At The Mythology of the SpineI read an interesting bit of mythology around the spine the other day, as I delved into one of my many "Wikipedia holes" — I have a tendency toward late-night...reactions2comments
How's Your Pandemic FOMO?The epic film Love Actually tells us that Christmas is an enchanted time for magical moments and taking stock of our lives. In between making dreams come true, we’re meant...reactions2comments
How Fundraising Helped MeLuckily, I have never suffered with my mental health (touch wood). After my diagnosis, it was the worst I had ever felt in my life. For months I got into...reactions5comments
7 Years in No Diagnosis Land, Part 2In part 1 of No Diagnosis Land, I told you how I started to have symptoms in different parts of my body. During these years, between 2007 and 2013, I...reactions7comments
Keeping Busy During a Flare-UpI think I speak for everyone when I say AS flare-ups are the bain of our existence. There is no worse feeling than waking up in the morning and instantly...reactions10comments
My Experience With BiologicsI have been using biologics for 14 years now. Never really getting used to injecting myself. Not because it’s painful but, in the back of my head, there always is...reactions9comments
Things I No Longer Do With AxSpaIt has been almost two years since my axial spondyloarthritis diagnosis and this year has brought about many new and scary treatments. But, I can finally say I am happy...reactions3comments
I Tried Tai Chi and Qi Gong For Ankylosing SpondylitisI'm always looking for ways to deepen communication with my body, increase my mobility, and quiet my mind. Enter Tai chi and Qi gong. Tai Chi (also known as T'ai...reactions5comments
What Does Dynamic Disability Mean to Me?We’ve all heard of the word disability, but what is a dynamic disability? A dynamic disability is a disability that fluctuates in severity from one moment to the next. Ever...reactions11comments
My Cup Runneth EmptyYou know that saying, "you can't pour from an empty cup"? Well, no one told me when I was diagnosed that ankylosing spondylitis would leave me with a perpetually empty...reactions2comments
The Inconsistency of My Illness Causes Me FearWhen it comes to chronic illness, no two days are the same. The inconsistency and unpredictability that come with a chronic illness is what gets me the most. One day I could be out...reactions4comments
Self-Care: I Set Small Goals & Limit My ActivitiesWhether you realise it or not, you are dealing with everyday struggles and an unpredictability that comes with having AS. Pulling yourself out of bed, exercising, making your dinner or even just showering is 100 times more difficult...reactions9comments
We Need To Talk About Mental HealthI recently ran a Twitter poll asking members of the chronic illness community to vote on the topics that were most compelling to them when it comes to chronic illness...reactions2comments
Irritable Bowel Syndrome and Axial SpondyloarthritisAfter my diagnosis of AxSpa, and once I was already taking Humira (one of the biologics), I experienced some gastrointestinal (GI) issues. Aside from the symptoms of AxSpa around my...reactions2comments
Rumble, Old Man, Rumble!A story of a boxing match that helped me learn to manage my AxSpA flares. October 1974. I am 16 years old. Outside the sun is yet to rise, and...reactions3comments
