Getting Rejected for Disability Aid...At the end of my article "Too Disabled to Employ, Not Disabled Enough to Help", I was about to apply a second time for disability allowance, following countless unsuccessful attempts...Reactions0reactionsComments36 comments
The Mind-Body-Spirit Axis: Holistic Flare Tips...I’ve noticed that my flare ups are 100 times worse when my mind, body, and spirit are not aligned. More pain. More tears. More feeling of a lack of control...Reactions0reactionsComments5 comments
MRI Results...Hi, I received my MRI results by phone, was told no inflammation just bulging disc. But when the report came through the post it mentions marrow edema/cyst on iliac side...Reactions0reactionsComments1 replies
Covid 19 Vaccines ...Hello everyone! I'm just wondering how many vaccines you have received? And if you had to pause taking your immune suppressants for this. I've had four so far. Here in...Reactions0reactionsComments4 repliesTips & Advice
My Experience With Low Dose Naltrexone for AS...For many years now my approach to living well with ankylosing spondylitis has involved a healthy dose of curiosity and a willingness to try new things. Strategies that work well...Reactions0reactionsComments5 comments
Going Through a Breakup With a Disability...This is something I wasn’t sure I wanted to talk about openly. It’s hard when you’re in a relationship with someone and want to respect their privacy. Though this is...Reactions0reactionsComments6 comments
Diagnosis in Question...Hi everyone, I am wondering if anyone else has ever been in this situation. My diagnosis has kept evolving over the past year due to lots of inconclusive or negative...Reactions0reactionsComments4 repliesTreatmentDiagnosisNon-Radiographic Axial Spondyloarthritis
You Are Valid!...Living with AxSpA is a daily fight, and yet on top of this we are expected to fight for ourselves as patients and humans. Doubt, misdiagnosis, and getting taken seriously...Reactions0reactionsComments5 comments
An Open Letter of Explanation to My Friends...One of the most frustrating aspects of living with a chronic condition like AS is that often our friends and family don’t fully understand our situation. I can’t say I...Reactions0reactionsComments0 comments
Flare Up Emotional Support Toolkit...When I'm in a major flare-up, I already know what I need to do in terms of physical pain management. I need to make sure I’m taking my medication, I...Reactions0reactionsComments6 comments
Early Signs of AS That I Didn't Pick Up On...I am often asked if there were early warning signs prior to my AS diagnosis. I used to believe that there weren’t any and it all happened suddenly. I’ve spoken...Reactions0reactionsComments0 comments
Trying To Find Some Positivity Out of My Rheumatology Appointment...Today was my 3 month follow up appointment with my rheumatologist. I am trying keep a smile on my face and find some positivity out of today's appointment. I don't...Reactions0reactionsComments1 comments
My Meal Prep Heroes...My paternal grandmother was Team Meal Prep before it was cool. She had no choice, working full-time while raising 4 kids on her own, taking in sewing and commissions, and dealing...Reactions0reactionsComments4 comments
Having Depression and Ankylosing Spondylitis...I feel like it’s almost impossible to have AS and not have mental health issues, too. It just affects every part of our lives. Having depression and AS feels like...Reactions0reactionsComments4 comments
The Easing of COVID Restrictions and My Fourth Vaccine...As Covid restrictions ease here in Ireland, my anxiety levels are doing the opposite. I understand that we can’t live forever in a lockdown, we as a world need to...Reactions0reactionsComments3 comments
Do You Experience Migraines? ...Do you experience migraines? Do you think it is linked to AS? I have always suffered from migraines. But since my AS started the amount and the intensity of my...Reactions0reactionsComments2 repliesSide EffectsTips & AdviceSymptoms
Signs Someone is Struggling With Their Illness...There’s a lot of weight that comes with living with a chronic illness. We often don’t show it, because if we did surrender to that struggle, it would be difficult...Reactions0reactionsComments0 comments
Breaking the Vicious Cycle...I’ve returned to that point again, one I’m sure you’ll recognize. The dreaded flare. Bit by bit the pain has crept back in, interrupting my sleep and turning me into...Reactions0reactionsComments3 comments
Uveitis & other eye diseases caused by AS and the treatments...I would like to know how others who have any eye diseases that are know to be a symptom of AS how they deal w/ it & what, if any...Reactions0reactionsComments7 repliesResearch & Clinical TrialsTreatmentTips & Advice
Spiritual Health, Caregiving, and AS...While not a topic that pops up often, it’s one that’s close to my heart. The journey I’ve taken with Keegan, my husband with AS, shifted my perspective on spirituality...Reactions0reactionsComments2 comments