I Survived Hurricane Ian With AS...I moved to Orlando, Florida from NY about a year ago. I wanted a better environment for my children as well as...reactions6comments
Hey, Rheumatologists: Do Better...I’m in a somewhat unique position as an ankylosing spondylitis patient. Not only am I a patient, but I’m also a chronic...reactions1comment
Healing Is A Process...A few articles from my peers has made me reflect on the stage I am at with AxSpa. I have learned to...reactions16comments
Going on My First Trip Post Diagnosis and Pandemic...Of course I was very excited to explore Mexico and the USA, but I had no idea how things were going to...reactions2comments
Fatigue and Sadness...Lately I've felt so fatigued (my fault, I push myself to be "normal"), and then the sadness comes. Does anyone else cry...reactions6comments
My Tug of Spondyloarthritis War...Do you ever get the idea that your joints and you have a distinct difference of opinion about which way to go?...reactions2comments
An Invitation to an Event Full of Emotions...One thing I miss about the beginning of the pandemic is not having to worry about events. Not having to worry of...reactions4comments
Using a Wheelchair in Public for the First Time...I’ve been using mobility aids for a while. My main two have been my rollator walker and my cane. If you’ve seen...reactions7comments
Is It Time To Turn The Page?...Things have changed so much during my 21 years with arthritis. I was 24 when my symptoms began. My mother, her parents...reactions1comment
Flying With AS: Tips and Tricks...I remember the good ol' days of flying to a new city or country and spending the entire flight in a mindset...reactions10comments
"Trapped" – A Poem by Sarah Lee...Our advocate Sarah Lee lives with ankylosing spondylitis and used her experience with a chronic invisible illness as inspiration for her poem...reactions1comment
My Failed Attempt at Reintroducing Massage...Getting a massage used to be one of my favorite things. Heading to the spa a few times a year felt like...reactions4comments
Journal: Now More Than Ever...August 9, 2022 Woke up early today - my eyes just popped open. Looked at the clock - 5:32 am staring at...reactions7comments
It Took 7 Years to Get a Diagnosis...Diagnosis: hello there. I'm still flaring. Started on the 10th of July. 10 days after my third Pfizer vaccine. I am having...reactions6comments
Welcome to AxialSpondyloarthritis.net Stories...At AxialSpondyloarthritis.net (AxSpA), we believe that we are stronger together than we are alone. Living with AxSpA can be a challenge, but...reactions3comments
I Had a Beach Weekend - Here’s How it Went!...Traveling has looked very different for a lot of us over the past 2 years. For me, I haven’t gone anywhere that...reactions2comments
Self-Care In Stressful Times...We’re probably living in a time of peak opinion, opining, emoting, and hot takes. The feelings seem to fly out of our...reactions2comments
Getting Back in the Driver’s Seat With Axial Spondyloarthritis...Like many people my age, I grew up with parents and grandparents who saw doctors as the ultimate authority. It never entered...reactions1comment
I Lost Friends Due to My Chronic Illness...As I’ve written about before, I’ve lost a lot to AS. One of the things that hurts the most (personally) is losing...reactions2comments
Nightmares and Their Link to Inflammatory Arthritis...Authors of a study published in Brain and Behavior in March 2019 reported an unexpected discovery. Researchers were originally investigating the link...reactions5comments
