Strength Training and Ankylosing Spondylitis...Over the last few blogs, you may have gathered I am a yogi and personally believe it is the most important form of movement for AS. That is why I...Reactions0reactionsComments2 comments
Puppy Pain: Getting a Puppy and Living With AS...A few months ago my wife and I were on vacation at our little cabin in the Blue Ridge Mountains. I was enjoying the peace, quiet, and the hot tub...Reactions0reactionsComments8 comments
Gaslighting by Medical Professionals...doctors wanting you to think it's all inside your head!...Reactions0reactionsComments2 repliesAwarenessMisunderstood Mental Health
Pure c4s for AS? Anybody????...I have a friend that recommends this Pure c4s stuff from eterna pure. She basically says it's a miracle drug. I have my doubts. It is also known as summit...Reactions0reactionsComments1 repliesAlternative Treatment
Nadine Cruz...Nadine was previously a health leader on AxialSpondyloarthritis.net. Hi There my name is Nadine but everyone calls me Nay. I’m 38 years old and was born and raised in Bronx...
Humair infusions...Recently diagnosed with advanced AS. Starting Humair infusions next week. Wondering what to expect with this treatment and interested in others experiences. Ive gone to a no dairy, no red...Reactions0reactionsComments4 repliesTreatmentDiagnosisNewly Diagnosed
Jaw and kneck ache (feels like toothache)...Can anyone please tell me if my jaw and kneck is hurting because of ankylosing spondylitis? There is a spot on the front of my kneck that is realy tender...Reactions0reactionsComments3 repliesAwareness
Leg pain...Hi, I’m wondering if anyone gets severe shin pain with this disease. Why?...Reactions0reactionsComments4 repliesFlare ManagementSymptoms
COVID-19 Is In My House...I don’t know where to begin with this. I felt so anxious and panicky. I felt like I was not in control of my emotions. For the past two years...Reactions0reactionsComments2 comments
Ireland’s National Arthritis Week ...Here in Ireland Arthritis week takes place between the 4th and 10th of April. I always like it when there’s an international or national day/week dedicated to arthritis or AxSpa...Reactions0reactionsComments0 comments
The Anxiety That Comes With Being Homebound...One way in which disability has greatly impacted me is how much anxiety it has caused, specifically in social settings. I’ve always been a shy individual—carefully trying to find the...Reactions0reactionsComments8 comments
Empowering Myself Through Negative Judgements...Recently I made an Instagram reel regarding how abled individuals, or those we surround ourselves with, are so quick to have opinions on how we choose to cope and go...Reactions0reactionsComments3 comments
Covid booster ...If you are on a biologic, when is the best time in the cycle of the shot to get the booster? I had a tough time after each of my...Reactions0reactionsComments1 repliesTips & Advice
What’s in Keegan’s Flare-Up Kit?...Do you have a flare-up kit? If not, I highly recommend it. We never consciously thought about putting a flare-up kit together. But what I’ve noticed in the last few...Reactions0reactionsComments10 comments
Trouble Falling AS-leep...I have always been a bit of a night owl, but since AS forced its way into my life, it has taken things to a whole new level. The fact that I’m...Reactions0reactionsComments27 comments
Getting Rejected for Disability Aid...At the end of my article "Too Disabled to Employ, Not Disabled Enough to Help", I was about to apply a second time for disability allowance, following countless unsuccessful attempts...Reactions0reactionsComments36 comments
The Mind-Body-Spirit Axis: Holistic Flare Tips...I’ve noticed that my flare ups are 100 times worse when my mind, body, and spirit are not aligned. More pain. More tears. More feeling of a lack of control...Reactions0reactionsComments5 comments
MRI Results...Hi, I received my MRI results by phone, was told no inflammation just bulging disc. But when the report came through the post it mentions marrow edema/cyst on iliac side...Reactions0reactionsComments1 replies
Covid 19 Vaccines ...Hello everyone! I'm just wondering how many vaccines you have received? And if you had to pause taking your immune suppressants for this. I've had four so far. Here in...Reactions0reactionsComments4 repliesTips & Advice
My Experience With Low Dose Naltrexone for AS...For many years now my approach to living well with ankylosing spondylitis has involved a healthy dose of curiosity and a willingness to try new things. Strategies that work well...Reactions0reactionsComments5 comments
