4 Responses To Stigma Against Disability...As a 35-year-old, fairly active woman with ankylosing spondylitis (AS), I've come up against some pretty inaccurate and aggravatingly annoying ideas and questions about this disease over the years. I...Reactions0reactionsComments2 comments
A Year After My Diagnosis...As a medical student, you spend most of your time reading about all these rare diseases and learning how to recognize them on test days, and later on in future...Reactions0reactionsComments3 comments
Do you feel protected after the Covid Vaccine?...My son has IgA Deficiency, and he has had two doses of Humira, which lowers his immune system even lower. There are articles that immunocompromised people may not be fully...Reactions0reactionsComments1 repliesFriends & Family
Can Journaling Help Us Manage Chronic Illness?...There's a lot of evidence for how helpful writing can be for people who experience the trauma and grief of illness — and chronic pain in particular. And, as a...Reactions0reactionsComments1 comments
My 10-year Anniversary With AS – 10 Insights Gained...Wow! Just writing this title feels strange. Strange to think that it has now been 10 years since the onset of my AS symptoms and the beginning of a wild...Reactions0reactionsComments5 comments
What do others do when their flare-ups never stop...i have constant, non-stop flare ups that doctors say is because of the rapid progression of this disease. Already they have found it is attacking all my major organs and...Reactions0reactionsComments19 repliesCopingAxial Spondyloarthritis Flares
It's Time to Throw Away the Schober Test for AS...The journey to a diagnosis of ankylosing spondylitis (AS) is riddled with challenges that prevent patients from receiving the diagnoses and treatment they need. In particular, misconceptions about AS can...Reactions0reactionsComments1 comments
Degenerative Disc Disease and AxSpa...Axial spondyloarthritis (AxSpa) and degenerative disc disease are both illnesses of the spine that share many of the same painful symptoms. Sometimes it is even hard for doctors to tell...Reactions0reactionsComments12 comments
My Cosentyx Hangover...As time goes by, I'm getting less and less nervous injecting! I never, ever thought that I would be saying this. But now, I look forward to my injection. I...Reactions0reactionsComments0 comments
Using Mobility Aids in Public...I’ve been using mobility aids for about 4 years now. The thing is, it wasn’t until more recently that I started to use them in public as needed. I think...Reactions0reactionsComments5 comments
Back pain...Hi everyone! I am glad to have found this website and not feel so alone in dealing with AS. I started having insidious lower back pain at the age of...Reactions0reactionsComments3 repliesCopingAxial Spondyloarthritis Flares
Hey, You — Here Are 10 Examples of Ableism...Ableism: Discrimination [whether purposeful or not] in favor of able-bodied people. This article is for people who love someone with a chronic illness, for people who are just learning about...Reactions0reactionsComments1 comments
Telling Your Story May Be Good for Your Health...“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms (and I could...Reactions0reactionsComments1 comments
It Could Be Worse...I am a 52 year old male with the hlab27 gene. I have 6 children and ten grandchildren. 2 of my children also have AS. I was first diagnosed with...Reactions0reactionsComments4 comments
Ankylosing Spondylitis, Gout and Diverticulitis...I'm a 51 year old male with HBP and AS, using NSAIDS for the AS and the flare ups. I was supposed to start Humira before the pandemic but I...Reactions0reactionsComments2 comments
Invisible & Not Believed. A Poem By Sherry L...It's been almost four winters I have begged for help With all that has been going on within and without... Four winters, just about when my long blond hair fell...Reactions0reactionsComments6 comments
My Diagnosis Lead To Two Things, Only Two.......I am the classic "late diagnosis". I am 54 now, and was diagnosed with A.S. three years ago. My memories of back pain go way back to my childhood. I...Reactions0reactionsComments3 comments
Currently on celebrex/acupuncture ...Hello! I am 35 and was diagnosed in 2013 with AS and already had bone errosions. I had been doing great until about 2 years ago my symptoms became more...Reactions0reactionsComments7 repliesSymptomsAlternative TreatmentTreatment
Have you had your Covid vaccine?...Im just curious if anyone who's had their vaccine had side effects from it? I have! I'm glad I got the vaccine, the side effects are worth it! But I'm...Reactions0reactionsComments13 repliesTips & Advice
Finally, My Cimzia Migraine Stopped...I did not react well to Cimzia. It did not help me. I ended up in the ER after three months of feeling unwell, a month-long headache, and a weeklong...Reactions0reactionsComments3 comments