Time Slowed Down When I Became Chronically Ill...My birthday was a couple of days ago and it got me thinking about the passage of time. Specifically, how it has slowed down for me ever since I got...reactionscomments
How I “Celebrated” My 4 Year Painiversary...February 11, 2017, was the first day my AS pain started. It was the day that started an entirely new chapter of my life that changed everything. I was only...reactions2comments
Do you have additional health issues?...What are other health issues you face besides your AxSpA/AS diagnosis?...reactions28repliesComorbiditiesDiagnosis
What foods make you flare?...It seems like everyone has certain food(s) they avoid because it can trigger symptom flares. What foods or drinks have you removed from your diet to reduce inflammation and pain?...reactions9repliesDiet & NutritionFlare Management
A Huge Positive Change...I realize that what I’m about to share won’t resonate with everybody. But if there are only a few people with whom my story resonates, my mission is a success...reactions9comments
Did My Covid Vaccine Put Me Into A Flare?...If you read my article How I Felt After My First Covid Vaccine, you'll know that I was very sick afterwards. I was sick for about 5 days. This is ok...reactions9comments
6 Things That Make Fatigue The Worst...In my opinion, fatigue is the worst symptom of spondyloarthritis. Don’t get me wrong, the others deserve respect fitting the ruthless wrecking balls that they are. Pain excels at agony...reactions2comments
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent hospital stays, difficult or noticeable symptoms, and constant...
Take the Person Before Patient Survey...The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like axial spondyloarthritis can...reactionscomments
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing, copays, travel, and more. But help is available...
What Are Biosimilars?...Biosimilars are highly similar to an already-approved biologic medication. Biologic medications (including biosimilars) are typically made from living organisms. Biologic medications may be generated from various sources, including human, animal...reactionscomments
Nicky Flikas...Hello! My name is Nicky, I am 34 years old married with 3 beautiful children. I am from the city of Montreal born and raised. It's been a long journey...
Muscle pain...I read a lot about back pain, but being newly diagnosed I'm confused about the tendon, ligament and muscle involvement. I haven't been started on meds yet and my primary...reactions11repliesCoping
"Trapped" – A Poem by Sarah Lee...Our advocate Sarah Lee lives with ankylosing spondylitis and used her experience with a chronic invisible illness as inspiration for her poem, "Trapped." Listen to her spoken word performance in...reactions1comment
An Open Letter to My Body...I don’t think either of us remembers what it’s like not to be in pain. The days of waking up feeling rested, refreshed, full of energy, with infinite possibilities in...reactions3comments
Long Ago I Recieved A Wrong Diagnosis...Diagnosed with RA at 17. Changed to "psoriatic arthritis" at 25. Had X-ray bombardment at 18. Could have caused leukemia, but didn't. It helped the lower spine. I'm 76 now...reactions2comments
Where to Go?...I have been diagnosed with Ehlers Danlos syndrome, since my Sister died in 1996, and with it ankylosing spondylitis, among many, many other medical issues. In the beginning, we saw...reactions2comments
How To Manage The "Fat" Talk...If your BMI is 25+ you know all about The "Fat" Talk. Obesity heroes and villains morph over time, but the sentiment is relatively consistent. People gain weight by indulging...reactions2comments
My Traveling Survival Guide: What I'm Packing and Why...This month, I will be going on my first long-distance road trip since I was diagnosed with AS. While I am completely overjoyed at the prospect of getting a much-needed...reactions3comments
Don't Compare Your Disease Experience to Celebs'...When a celebrity is diagnosed with a chronic illness, there are usually articles splashed across every magazine and tabloid. Often, their diagnosis is used as clickbait, a cheap and careless...reactions2comments
