What's something you wish you were told when you were diagnosed? We learn a lot from our diagnosis through experience, trial and error, and sharing information. What's one thing you wish you would have been told when you were first diagnosed?...reactions37repliesCopingTips & AdviceDiagnosis
Injection v InfusionMy doctor and I are discussing switching from my Cosentyx injection to a monthly infusion. We believe the “one dose fits all” of the injections may be too harsh on...reactions2repliesAnkylosing SpondylitisAxial Spondyloarthritis Treatment
Mental healthI am 32 years old and was diagnosed in 2021, I am still trying to process the diagnosis and trial and error medication which has left me in a debilitating...reactions10repliesAxial Spondyloarthritis CopingDepression
Pain-night to morningI'd like to know if anyone experiences the following; From , 6 pm to 7 am or even 2 hours later in the morning, a trigger is pulled and pain...reactions8replies
Biologics Side EffectsI recently started biologic injections (Cosentyx) to help manage my axSpA. 2 days after my injection I get flu like symptoms (nausea, headache, brain fog, fatigue). This seems to pass...reactions6repliesSide EffectsAxial Spondyloarthritis Tips & Advice
"But You Don't Look Sick?!"Axial spondyloarthritis, though often invisible to the naked eye, can significantly impact daily life. This forum provides a space to share your encounters with this well-intentioned yet sometimes perplexing inquiry...reactions21repliesFriends & FamilyMisunderstood Tips & Advice
Ankylosing Spondylitis or lung cancer?Hi all, I have just joined this forum because my dad is having some tests at the hospital. A couple of weeks ago, he went for a PET CT, arranged...reactions1reply
Biologics I switched from the biologic (Cosentyx) that had been working for a while, to a biologic that was approved for use during pregnancy. Well turns out another baby is just...reactions4repliesTreatment
Biologics (humira) and food intolerance I've been diagnosed with Peripheral Spondyloarthritis and was wondering if anyone who started a biologic has noticed any improvements in their gut health. I've had severe gut problems for the...reactions19replies
How long did it take you to get a diagnosis for AxSpA/AS?It can take years to get a diagnosis for axial spondyloarthritis/ankylosing spondylitis. On average, it can take somewhere between 8-11 years from initial symptom onset to get diagnosed. However, many...reactions2replies
