AxSpA Recipe ExchangeThis is a forum to share and exchange recipes! Maybe it's a baked good you started making while spending more time at home, or a comfort food recipe passed through...Reactions 0 reactions Comments4 repliesDiet & Nutrition
What nutrition or dietary changes have you made to manage AxSpA?Share with the community nutritional or dietary changes you've made since your axial spondyloarthritis diagnosis. Have you found recipes that have helped you feel better while managing AxSpA? Consider sharing...Reactions 0 reactions Comments5 replies
What was your first AxSpA treatment like?For many patients, getting diagnosed is an arduous journey and next steps in condition management are not always clear. What works for one person for treatment may not offer relief...Reactions 0 reactions Comments4 replies
How long did it take you to get a diagnosis for AxSpA/AS?It can take years to get a diagnosis for axial spondyloarthritis/ankylosing spondylitis. On average, it can take somewhere between 8-11 years from initial symptom onset to get diagnosed. However, many...Reactions 0 reactions Comments0 replies
Anyone have to stop Methotrexate?Anyone have to stop methotrexate for liver toxicity/did it take long for your liver function tests to return to normal...Reactions 0 reactions Comments6 replies
I am wondering if my bones won't fuse together?I am wondering if my bones won't fuse together like my father's did since along with ankylosing spondylitis I also have Crohns disease in the area of my intestine where...Reactions 0 reactions Comments6 replies
How are you practicing self-care or self-love?It’s normal to feel overwhelmed or anxious during stressful and uncertain times. It can be hard to manage those feelings. How do you cope with these feelings and what do...Reactions 0 reactions Comments0 replies
How do you stay connected with your community?From time to time, we can feel isolated, overwhelmed, or alone. Engaging with our loved ones, friends, and community members is especially important in moments like this. How do you...Reactions 0 reactions Comments0 replies
How do you cope with fatigue?Axial spondyloarthritis can bring great pain and fatigue, affecting our ability to live our lives and our relationships. How this condition can impact our personal wellbeing and the people in...Reactions 0 reactions Comments4 replies
