Are you diagnosed with AS or AxSpa? There are 2 types of axSpA: radiographic and non-radiographic. Radiographic axSpA (r-axSpA or AS) In radiographic axSpA, inflammation, and bone damage are visible on X-rays. This is most commonly called...Reactions 0 reactions Comments30 repliesAnkylosing SpondylitisAxial Spondyloarthritis Diagnosis
Calcium supplements if you have AS?I have been told I have osteopenia - the beginnings of osteoporosis. Is taking a Calcium ssupplement safe if you already have fusion in your spine? I exercise regularly, but...Reactions 0 reactions Comments1 repliesTips & AdviceAnkylosing SpondylitisComorbidities
Has Anyone That has AS , Arthritis, Neuropathy ever had a EMG UpperextremitiesI went to a Neurologist on Thursday 10/14/2023 to have the EMG Test .It’s the painful Electricity’s Test to find what nerves are damaged. At the end he came back...Reactions 0 reactions Comments17 replies
Anyone else have taste and appetite changes?Hello! As soon as I got my first infusion, my taste changed. I described many things as tasting like “dirty lake water”. It use to last for a week or...Reactions 0 reactions Comments3 repliesAnkylosing SpondylitisDiet & NutritionFlares
Pure c4s for AS? Anybody????I have a friend that recommends this Pure c4s stuff from eterna pure. She basically says it's a miracle drug. I have my doubts. It is also known as summit...Reactions 0 reactions Comments1 repliesAlternative Treatment
How well do you feel your physician understands your AS/AxSpa?On a scale of 1-10 (1 = not well, 10 = really well), how well do you feel your physician understands your AS/AxSpa?...Reactions 0 reactions Comments12 repliesHealthcare TeamVentingAxial Spondyloarthritis
Finally...ProgressSo, today I saw a sub GP (mine is off taking her boards). The practice I go to is one in which you see a resident who is monitored by...Reactions 0 reactions Comments3 replies
Anyone who is HLA B27 positive get results from a low starch diet?I have read both ways that it could help people without HLA-B27 and also that it doesn't help to eat a low starch diet. Anyone tried this? I did a...Reactions 0 reactions Comments2 repliesDiet & Nutrition
Conflicting results of blood workHey all. I was diagnosed with Ankylosing Spondylitis (AS) in July 2021 after experiencing hallmark symptoms (including bilateral sacroiliitis) since November 2020. I have always found it curious that I...Reactions 0 reactions Comments3 repliesAwareness
Diagnosis I have an elevated ANA and was referred to a rheumatologist who discovered I am HLA B27 positive. After taking X rays she said I have bony spurs on my...Reactions 0 reactions Comments1 repliesAnkylosing Spondylitis