When it’s cold? ...I try my hardest to keep warm. I have good days and bad days. Sometimes I don’t know what to do to...reactions21repliesSymptomsCommunity Support
Anyone else have Passive Suicidal Ideations?...I have noticed more PSI as my disease progresses. I already have Anhedonia, but the thought of just dying by some means...reactions3repliesAnkylosing SpondylitisMental Health
My 4 Arthritis Self-Care Basics...Self-care makes up a substantial portion of our quality of life, especially for those of us living with arthritis. However, similar to...reactions5comments
Why I’m Not on a Biologic...There’s a conversation my rheumatologist and I have on replay at every appointment I attend. It starts with my doctor sharing the...reactions5comments
Newly diagnosed Ankylosing Spondylitis...Hi all 👋 I hope you're all doing well. I wanted to seek some advice on my recent AS diagnosis. I dont...reactions4replies
Reducing Medication Intake Is My Agenda Whilst Living With AxSpa...After my diagnosis I visited doctors to seek advice, discuss treatment recommendations, and find ways to cope with AxSpa symptoms. From the...reactions13comments
Uvitis ...So my eye Dr said that I have degenerative charges to my vision my vision is blurry and a symptom that I've...reactions10repliesAxial Spondyloarthritis Comorbidities
My Journey as an Athlete Living With AS...I have been an athlete most of my life. I discovered the sport of tennis when I lived in France at the...reactions5comments
My Journey with Infliximab Infusions for Ankylosing Spondylitis...I get infliximab infusions (under the brand name Inflectra) for my AxSpa every four weeks. Inflectra is a biosimilar of Remicade. This...reactions3comments
Overall stiffness...Hi All, just wanted to ask as this is all new to me. Do you experience stiffness? Stiffness in the hips, sacroiliac...reactions4replies
Why don’t we have a live chat feature?...Surely there are people who need to talk to others more frequently....reactions3repliesAnkylosing Spondylitis
Identifying Flare Ups...How do most people with AS accurately identify a flare up?...reactions6replies
biologics or steroids and having AnkylosingSpondylitis....If you’re not on biologics or steroids right now and fully vaccinated with regards to my AS am I classed as immune...reactions2repliesAnkylosing Spondylitis
Calcium supplements if you have AS?...I have been told I have osteopenia - the beginnings of osteoporosis. Is taking a Calcium ssupplement safe if you already have...reactions1replyTips & AdviceAnkylosing SpondylitisComorbidities
Discovering a Different Version of Myself With AS...Developing AS changed my life in in all kinds of ways. Things I had enjoyed were now off-limits. Plans I’d made were...reactions1comment
Anyone else have taste and appetite changes?...Hello! As soon as I got my first infusion, my taste changed. I described many things as tasting like “dirty lake water”...reactions3repliesAnkylosing SpondylitisDiet & NutritionFlares
Life Has Flipped Upside Down...I'm a single mother of 2 boys. Before my diagnosis I worked as a full time carer for the elderly 8 days...reactions1comment
Interstitial cystitis and Axial Spond...Hi, I’m in a really bad flare up (spine, ribs, hips, shoulders, wrists and feet), and I have now got interstitial cystitis...reactions3repliesAxial Spondyloarthritis
Three Years Since My AS Diagnosis...You would think getting a diagnosis would have answered all the questions about what was going on in my body. The answers...reactions3comments
