Conceiving...Hi! Did anyone have trouble conceiving with having Axspa??...Reactions0reactionsComments2 replies
Flares Still Happen, and I Accept Them as Messengers...I have now been living with AS for the past 11 years. At the beginning, flares came very frequently, and in an intense way. It felt like anything could trigger...Reactions0reactionsComments4 comments
How I Manage Wildfire Season With "Pre-Existing Health Conditions"...It is the worst wildfire season in history. That’s the rhetoric I keep hearing from the media. In all fairness, it may be so on a national or continental scale...Reactions0reactionsComments1 comments
What are your tips for preparing for a visit with your doctor? ...Share your best tips for preparing for a doctor's visit when dealing with AS/AxSpa. Whether it's gathering medical history, noting down symptoms, or bringing up concerns, your insights can help...Reactions0reactionsComments27 repliesTips & AdviceHealthcare TeamCommunity Support
Tinnitus...I developed tinnitus (ringing in the ears) and when looking up information on the internet I found that it is fairly common for people with AS to develop this symptom...Reactions0reactionsComments1 repliesSymptoms
How often have you had X-rays / MRI since diagnosis?...Hey everyone, So, I have my check up with my rheumatologist next week. My biologics are working well and although I still have symptoms, they are incomparible to pre biologics...Reactions0reactionsComments4 replies
The Good, Bad, and Ugly of Specialty Pharmacies...For the last 6 months, I’ve been navigating the special pharmacy world extensively. For a variety of reasons, my health insurance benefits changed 3 times in that span of time...Reactions0reactionsComments1 comments
A Stop on the Long Road...I finally found my stride. Everything is great (or as great as it could be). My body is holding up, my joints aren’t screaming, my energy is good, and I’m...Reactions0reactionsComments5 comments
Advice on taking biological therapy and having chest infections and viral infections....Hi everyone,I have just seen the nurse and I have another infection, I am struggling with everything. In less than a month I have another infection, 5 infections and third...Reactions0reactionsComments22 repliesAnkylosing SpondylitisComplimentary TreatmentSide Effects
Looking for house slippers; any suggestions? ...Hello! We recently moved from a carpeted home to a hardwood home. Pair that with AS and goodness my feet hurt! I use to just wear Snoozies but it seems...Reactions0reactionsComments5 repliesAnkylosing SpondylitisTips & Advice
Brain Fog is an issue!...Now almost ten years into AS, people around me still do not understand Brain Fog as something many of us grapple with. Recently our daughter and her husband visited us...Reactions0reactionsComments25 repliesAnkylosing SpondylitisAxial Spondyloarthritis Coping
How well do you feel your physician understands your AS/AxSpa?...On a scale of 1-10 (1 = not well, 10 = really well), how well do you feel your physician understands your AS/AxSpa?...Reactions0reactionsComments12 repliesHealthcare TeamVentingAxial Spondyloarthritis
Husband’s family live 350 miles away...Today my husband tells me he has plans to meet his kids all four in one place on Saturday, I don’t go as I can’t travel and they don’t get...Reactions0reactionsComments1 repliesCommunity Support
Sleepless Nights Continue Continuously...Sleepless nights are something I been writing a lot about. It's part of the biggest struggle I've been having. I know I am not alone on this one. As going...Reactions0reactionsComments3 comments
The Four Minute Mile: Setting AxSpa Goals...The four minute mile--many people know how the story goes. No one was able to run a sub 4-minute mile and it was deemed impossible, until one day somebody named...Reactions0reactionsComments2 comments
3 Ways Ankylosing Spondylitis Has My Life MUCH Better...When we think about our lives with ankylosing spondylitis (AS), it can sometimes feel like we're battling eternity. An eternity of chronic pain, stiffness, fatigue, all of the comorbidities, doctors...Reactions0reactionsComments2 comments
6 Arthritis Self-Care Touchstones...Many years ago people tested the authenticity and purity of silver and gold by dragging samples over special stones. The resulting color of the touchstone’s mark verified the metal’s content...Reactions0reactionsComments1 comments
Is it Uveitis?...Hi all, first time poster. I’m currently being worked up for autoimmune and narrowing down to seronegative spondylarthropathies. Last week, I started have weird symptoms in my right eye. Lid...Reactions0reactionsComments2 repliesSymptoms
Navigating Autoimmune Healing Without Succumbing to Dietary Fads...In today's society, the prevalence of autoimmune conditions, such as ankylosing spondylitis (AS) and axial spondyloarthritis (axSpA), is rising. These conditions, affecting millions worldwide, require careful management to alleviate symptoms...Reactions0reactionsComments2 comments
Health Anxiety and My Axial Spondyloarthritis...Over the past few months, I have struggled to cope with my health anxiety. On some days it's just as prevalent as my chronic pain conditions. When I was younger...Reactions0reactionsComments1 comments
