My Journey as an Athlete Living With AS...I have been an athlete most of my life. I discovered the sport of tennis when I lived in France at the...reactions5comments
My Experience Getting Infliximab Infusions...I get inflixmab infusions (under the brand name Inflectra) every four weeks. Inflectra is a biosimilar of Remicade. I get 6 vials...reactions3comments
Overall stiffness...Hi All, just wanted to ask as this is all new to me. Do you experience stiffness? Stiffness in the hips, sacroiliac...reactions4replies
Why don’t we have a live chat feature?...Surely there are people who need to talk to others more frequently....reactions3repliesAnkylosing Spondylitis
Identifying Flare Ups...How do most people with AS accurately identify a flare up?...reactions6replies
biologics or steroids and having AnkylosingSpondylitis....If you’re not on biologics or steroids right now and fully vaccinated with regards to my AS am I classed as immune...reactions2repliesAnkylosing Spondylitis
Calcium supplements if you have AS?...I have been told I have osteopenia - the beginnings of osteoporosis. Is taking a Calcium ssupplement safe if you already have...reactions1replyTips & AdviceAnkylosing SpondylitisComorbidities
Discovering a Different Version of Myself With AS...Developing AS changed my life in in all kinds of ways. Things I had enjoyed were now off-limits. Plans I’d made were...reactions1comment
Anyone else have taste and appetite changes?...Hello! As soon as I got my first infusion, my taste changed. I described many things as tasting like “dirty lake water”...reactions3repliesAnkylosing SpondylitisDiet & NutritionFlares
Life Has Flipped Upside Down...I'm a single mother of 2 boys. Before my diagnosis I worked as a full time carer for the elderly 8 days...reactions1comment
Interstitial cystitis and Axial Spond...Hi, I’m in a really bad flare up (spine, ribs, hips, shoulders, wrists and feet), and I have now got interstitial cystitis...reactions3repliesAxial Spondyloarthritis
Three Years Since My AS Diagnosis...You would think getting a diagnosis would have answered all the questions about what was going on in my body. The answers...reactions3comments
Changing to a Plant-Based Diet...Nearly two years ago, I decided to try a plant-based diet in hopes that it would reduce inflammation and improve symptoms I...reactions1comment
Joy Tilbrook...Joy works for a disability charity and lives in London. After having symptoms throughout her teens and early twenties, Joy’s symptoms intensified...
Stopping Humira ??...Hello I have been on Humira and it has been almost constant UTIs and other issues. Now on my last blood work...reactions4repliesInsurance & DisabilityAlternative Treatment
Chronic Illness and The Cost Of Living Crisis...Earlier this year, I was woken by a call from the BBC radio asking if I would like to join them live...reactionscomments
Keeping Warm and Cozy With AS...The winter months were always my favorite time of the year as a child, not because I enjoy the cold. I enjoyed...reactions2comments
Tips for a Better Sleep ...Sleep is a crucial aspect of managing AS/AxSpa, yet many of us face sleep troubles due to pain and discomfort. Let's discuss...reactions70repliesInsomniaPainsomnia Sleep
Active todayChilling Effects: AS/AxSpa and Cold Weather Discussions...As the weather turns colder, many people living with AS/AxSpa experience unique challenges and considerations. Cold weather can have a significant impact...reactions21repliesTips & AdviceCommunity SupportSymptoms
