Discovering a Different Version of Myself With AS...Developing AS changed my life in in all kinds of ways. Things I had enjoyed were now off-limits. Plans I’d made were cancelled. People I had felt connected to grew...reactions1comment
Anyone else have taste and appetite changes?...Hello! As soon as I got my first infusion, my taste changed. I described many things as tasting like “dirty lake water”. It use to last for a week or...reactions3repliesAnkylosing SpondylitisDiet & NutritionFlares
Life Has Flipped Upside Down...I'm a single mother of 2 boys. Before my diagnosis I worked as a full time carer for the elderly 8 days on to get 2 off. I loved everything...reactions1comment
Interstitial cystitis and Axial Spond...Hi, I’m in a really bad flare up (spine, ribs, hips, shoulders, wrists and feet), and I have now got interstitial cystitis which adds to my problems at night! Does...reactions3repliesAxial Spondyloarthritis
Three Years Since My AS Diagnosis...You would think getting a diagnosis would have answered all the questions about what was going on in my body. The answers to questions like: What led me to be...reactions3comments
Changing to a Plant-Based Diet...Nearly two years ago, I decided to try a plant-based diet in hopes that it would reduce inflammation and improve symptoms I experience related to axial spondyloarthritis. Let me preface...reactions1comment
Joy Tilbrook...Joy works for a disability charity and lives in London. After having symptoms throughout her teens and early twenties, Joy’s symptoms intensified at the start of covid lockdown at in...
Stopping Humira ??...Hello I have been on Humira and it has been almost constant UTIs and other issues. Now on my last blood work my liver tests are elevated. So I have...reactions4repliesInsurance & DisabilityAlternative Treatment
Chronic Illness and The Cost Of Living Crisis...Earlier this year, I was woken by a call from the BBC radio asking if I would like to join them live on the radio for a debate with two...reactionscomments
Keeping Warm and Cozy With AS...The winter months were always my favorite time of the year as a child, not because I enjoy the cold. I enjoyed the winter because it was almost guaranteed that...reactions2comments
Tips for a Better Sleep ...Sleep is a crucial aspect of managing AS/AxSpa, yet many of us face sleep troubles due to pain and discomfort. Let's discuss how AS/AxSpa affects your sleep patterns and share...reactions70repliesSleepInsomniaPainsomnia
Chilling Effects: AS/AxSpa and Cold Weather Discussions...As the weather turns colder, many people living with AS/AxSpa experience unique challenges and considerations. Cold weather can have a significant impact on our daily lives and overall well-being. How...reactions18repliesTips & AdviceCommunity SupportSymptoms
Life with AS/AxSpa: Dating Discussions...Are you living with AS or AxSpa and navigating the world of dating? This forum is your community to share, learn, and connect with others who understand the unique challenges...reactions2repliesTips & AdviceCommunity Support
AS/AxSpa Treatment Experiences...We invite you to discuss and share your personal journey with Ankylosing Spondylitis (AS) or Axial Spondyloarthritis (AxSpa) treatments. Whether you've tried medications, physical therapy, lifestyle changes, or other therapies...reactions12repliesTreatmentAwarenessCommunity Support
Finding Balance...Whether you're navigating the challenges of work, treatment, maintaining a social life, or all of the above, this is the place to connect with others who understand your journey. Share...reactions19repliesTips & AdviceComplimentary Treatment
Has Anyone That has AS , Arthritis, Neuropathy ever had a EMG Upperextremities...I went to a Neurologist on Thursday 10/14/2023 to have the EMG Test .It’s the painful Electricity’s Test to find what nerves are damaged. At the end he came back...reactions17replies
My 6 Tips For Spondylitis Wellness...The most troublesome spondylitis symptoms line up perfectly with crucial aspects of living life on our own terms. Pain, fatigue, stiffness, and reduced range of motion pose formidable challenges to...reactions1comment
Diagnosis ...I have an elevated ANA and was referred to a rheumatologist who discovered I am HLA B27 positive. After taking X rays she said I have bony spurs on my...reactions1replyAnkylosing Spondylitis
Bloodwork results...Hello! About a week ago, I had my yearly physical. I am newish to this provider as we have only lived in the area for about 15 months. I had...reactions6repliesVenting
