AS Diagnosis revoked...?!...Hello friends, Been I while since I've been on here but I need some outside perspectives! I was diagnosed with AS about a year ago. At the time I was...reactions9repliesDiagnosis
Housework Hacks With Ankylosing Spondylitis...One of the things I really dislike when I’m in an AxSpa flare is how messy my house can get. I’m definitely one of those “tidy house, tidy mind” people...reactions12comments
Bursts of Denial: When AS Hits Suddenly...The thing about ankylosing spondylitis, like many immune-mediated diseases, is that no matter how much we've figured out how to manage/control/collaborate with/understand it, it is still a disease with a...reactions10comments
Managing Painsomnia...How do you manage the times when you wake up in the middle of the night and your bones, muscles, and brain are all screaming in pain? Let's discuss what...reactions1replyCopingAxial Spondyloarthritis Painsomnia
AS vs Depression vs Menopause...Is anyone else having trouble untangling which symptoms are which? I constantly struggle trying to figure out why I am feeling what I am feeling. The low back and hip...reactions3repliesAlternative TreatmentMedical MarijuanaMental Health
3 Tips for Managing Anxiety If You Have AS...It's no secret that living with a chronic illness can be challenging—mentally and emotionally, as well as physically. I remember when I was first diagnosed, there was the mental stress...reactions12comments
My AxSpA Assisters...I have read some wonderful posts on here about items our community members use to help them cope with their AxSpA symptoms. They inspired me to share a trio of...reactions2comments
Switching Biologics (Again)...I have once again switched my biologic medication! I’ve been on Inflectra, Humira, Cosentyx, and now, drumroll, please...Remicade! Remicade is chemically very similar to Inflectra, which is actually a biosimilar...reactions9comments
3 Types of Physical Activity to Consider With AxSpa...We all know that physical activity is essential for our health. Being physically active can support our brain health, strengthen our bones, and improve our ability to do everyday activities...reactions7comments
Biologics and other treatments ...Hi. I am fairly recently diagnosed with AxSpa and was wondering if people on here know more about treatments than the tiny amount that I do. My Rheumatologist ( that...reactions2repliesTreatmentSide EffectsNewly Diagnosed
Will you take our In America survey and help others understand the true impact of AS?...Receiving a diagnosis of AS can be scary. Telling friends and family can be really difficult. It's more than JUST back pain. By taking this anonymous survey, you can help...reactions1replyAxial Spondyloarthritis Awareness
Sinus and TMJ issues with AxSpA...As the wet cold has really rolled in this season, I find that my sinuses and TMJ are giving me more issues than most winters. The headaches and facial pain...reactions3repliesComorbiditiesSymptomsVenting
Will you take our In America survey and help others understand the true impact of AxSpA?...We are conducting a survey to better understand the patient experience and realities of AxSpA. By taking this survey, you can help everyone better understand the real impact of AxSpA...reactionsrepliesAwarenessResearch & Clinical Trials
Four Low-Impact Exercises for Spondies...It’s that time of year again when most of us not only think about making changes to our daily lives, but we also resolve to do so. But adding more...reactions5comments
Symptoms of Negativity...I titled this article “Symptoms of Negativity” but please do not think that this is going to be one of those, outward in, all you need is a smile on...reactions2comments
How Regular Stretching Relieves My AS Pain...“Be sure to stretch” was one of the few pieces of advice I walked away with when I was told I had AS. The message got lost for a while...reactions6comments
The Other Side of Butterflies...Butterflies and baseball are 2 of my favorite things. Both combine simplicity, flashes of beauty, and long stretches of quiet and apparent inactivity to balance bursts of frenetic activity. I...reactions4comments
Rating Pain and The Pain Scale...Lately, I’ve been reading a lot of creative nonfiction essays during the process of designing an upper-level Creative Nonfiction writing course at the University where I teach and work. The...reactions10comments
New Year, Same Body...What do I want to make sure to get out of 2023? Some common New Year's resolutions have to do with body management, such as exercising and eating a certain...reactions4comments
Do you experience sensory issues with AS?...I can't tell if this has to do with AS, fibromyalgia, autoimmunity/inflammation, or a byproduct of pain/sleeplessness/sensitivity to stress...but I get sensory overload. I wrote about it below, stating: "According...reactions9repliesSide EffectsVentingComorbidities
