Twin Story...I am 31 years old and was diagnosed with ankylosing spondylitis aged 25 after suffering pain to some extent since early teen years. My visits to rheumatology to start with...Reactions0reactionsComments5 comments
Another Day With Axial Spondyloarthritis...It is going on 2 months since returning back to work. I have good days and I have bad days. I love what I am doing. Then what is the...Reactions0reactionsComments4 comments
One Year of Cosentyx...As I’m writing this, I’m having the worst flare since starting Cosentyx. I have been on Cosentyx for a year now. It has given me my life back. Besides this horrible flare, I’ve been doing...Reactions0reactionsComments2 comments
Feeling pretty low...Going through an incredibly emotional trying time right now with martial issues and then today I got word that my humira can't be filled until I get a new rheumy...Reactions0reactionsComments3 repliesMental HealthIntimacy & RelationshipsDepression
The Nagging Pain of Costochondritis..."I felt like I was having a heart attack," a friend in an ankylosing spondylitis support group wrote, flabbergasted. "I felt like my chest was on fire, and like my...Reactions0reactionsComments3 comments
Inject With Ali...Injecting biologics can take a while to get used to. The AS and AxSpa community, especially on Instagram, have been sharing their injection videos for quite a while now. It...Reactions0reactionsComments4 comments
Will I Ever Go Back Into Remission?...As I’ve mentioned in previous articles, I was blessed enough to have lived 8 years in remission. During those 8 years I couldn’t even remember what it was like to...Reactions0reactionsComments1 comments
Revisiting My Old Life With the New Me...I had a very inspiring coaching session as part of my Diploma in Life Coaching. I explained to the coach my plans and how I reinvented the wheel of my...Reactions0reactionsComments2 comments
You Are Strong!...Having a condition like AS can often play tricks with our minds and fill us with self doubt. For me, it was mostly the feeling that this condition has made...Reactions0reactionsComments0 comments
Just starting down this road...My rheumatologist said he thinks I have AS and Lupus. I was hlab27 negative so I don’t k ow what he is going to say when I see him this...Reactions0reactionsComments6 repliesNewly Diagnosed Coping
Would you be interested in participating in a support group meeting via video conference like Zoom?...Connect with other AS Warriors...Reactions0reactionsComments8 repliesVentingCommunity SupportCoping
Getting Back in Touch With My Body...I’d suffered from the pain of AS for years when I began to notice how disconnected I was from my body. Everyone told me how important it was to exercise...Reactions0reactionsComments3 comments
Protecting My Peace And Purpose...The twists and turns of life have taught me that it’s essential to protect my peace of mind and honor my purpose in life. The foundation is putting myself first...Reactions0reactionsComments5 comments
It's the weekend!...I hope ye all have an amazing low pain weekend! Anybody got any plans? All the best, Ali (Community Member)...Reactions0reactionsComments2 replies
X-ray results - could they be osteoarthritis?...I’ve had various symptoms and lower back pain for almost 6 years. I’m 44 and went to a rheumatologist today. X-ray results are back but of course I don’t understand...Reactions0reactionsComments1 repliesDiagnosis
Starting a biologic ...Hi I am new to this forum. So I thought I would send a message to see how other people have got on using Enbrel or humira as a treatment...Reactions0reactionsComments8 replies
The Need for Support...Support is something not everyone is fortunate enough to have. I understand that I am incredibly lucky with the support system I have, and I try to be the best...Reactions0reactionsComments1 comments
How AS and Pregnancy Made Me A Medical Unicorn...Deciding to start a family while navigating life with ankylosing spondylitis wasn’t necessarily a hard decision. My husband and I recognized that we may be embarking on a challenge full...Reactions0reactionsComments12 comments
Pain Management Referral for my Muscle Spasms...So, today I had my rheumatology appointment. I wasn’t supposed to be seeing my rheumatologist until February, but my spasms have been so intense that I made an earlier appointment. I’ve been...Reactions0reactionsComments5 comments
What biologic are you taking?...I know everyone doesn't take biologics. But I'm curious of those who do. I started with Cimzia, it didn't work for me and I had terrible side effects. I was...Reactions0reactionsComments29 repliesCommunity SupportTreatment