Stress, Grief, and Ankylosing Spondylitis...It doesn’t feel like a stretch to say that stress has always made my AS symptoms worse. Most medical professionals and the...reactions4comments
Fatigue...What I Wish I Knew When I Was Diagnosed...Fatigue is tricky, namely because it can impact so much. From your work, to relationships, social life and ability to just function...reactions6comments
Success and the Pandemic...“Success is not final; failure is not fatal: it is the courage to continue that counts.” -- Winston Churchill I am ready...reactions4comments
Did Stress Lead To My Diagnosis?...Eight years ago, I had my first big flare in my feet. It came from nowhere. It was Summer, I was enjoying...reactions6comments
Getting Scatological......Hi all Sorry if my first post to this forum is so scatological, however hopefully the woke-inflected viewers amongst you will let...reactions4repliesCoping
Roller coaster flare ride...Hello 👋 It’s my first post here, I am a shy person lol. AS made me go away from everyone; I feel...reactions1replyFlares
I Believe In Butterflies...Butterflies are one of my favorite things in life. Their particular beauty and grace makes it impossible to look away. And they...reactions2comments
Feeling the Pressure from Able-Bodied People to Get Better...One thing that has remained a constant throughout decline of my health these last two years is this: the looming pressure to...reactions5comments
Secukinumab during pregnancy...Please, has anyone here been on secukinumab during pregnancy? If so, how was it? I know its prescribing information advises against it...reactions6repliesSide EffectsResearch & Clinical TrialsTips & Advice
How do you feel near injection week?...I have noticed the week before injection is the hardest. I start to notice more stiffness, more pain, brain fog, increased fatigue...reactions14repliesAwarenessFlare ManagementTips & Advice
The Hardest Part of This Disease...How many of you wish more people around you would understand? How many of you wish living in this world, as a...reactions4comments
My rheumatologist says fatigue is not part of this condition ...Hi all, Wondering if these are red flags that I need to find a new dermatologist. He tells me my fatigue which...reactions21repliesFlare ManagementHealthcare TeamNon-Radiographic Axial Spondyloarthritis
What Ifs...With something like ankylosing spondylitis, there are so many physical effects of the condition that it’s sometimes easy to overlook the mental...reactions19comments
Advocating Helps My Mental Health...My advocating journey began in October 2020 with a fundraiser. A year later I continue to advocate every day. It was the best...reactions2comments
Top 5 Things I've Learned As An AS Patient...Over the past few years, I've learned a lot about what it means to have ankylosing spondylitis. When I was first diagnosed...reactions6comments
Have you had a doctor ask, “Did you try taking ibuprofen?”...Hello! I was diagnosed with AS two years ago. My life has done a 180 in every way. I have never spoken...reactions3replies
Weather...I seem to be very reactive to bad weather. Is it all in my head or do others struggle with more pain...reactions6repliesFlares Symptoms
Work accommodations ...Hey everyone, I’m a high school teacher in Ontario, Canada, currently on leave for many reasons, but the unpredictability of my AxSpA...reactions2repliesAwarenessInsurance & DisabilityWork & Employment
Even The Nicest People Don't Get It...You know how living with ankylosing spondylitis can feel like speaking a language that only you understand? It can be really isolating...reactions6comments
3 Frenemy Habits Threatening Your Self-Care...I hate finding out that somebody wasn’t actually my friend. It’s painful and embarrassing, especially when the evidence was plain for me...reactions4comments
