Day to Day: My Own Ankylosing Spondylitis Story...I give thanks everyday I get up. No one can understand what we go through or how we feel, unless you have...reactions2comments
A Very Long Journey...In 1962, at the age of 22, I first began having trouble. It began with my legs and feet. At that time...reactions2comments
Trying to conceive - coming off meds - so much pain!...My partner and I are trying to conceive. We have only just started our journey. A couple of weeks ago I found...reactions4repliesFlares Intimacy & RelationshipsTips & Advice
Too Disabled To Employ, Not Disabled Enough To Help...Getting diagnosed with AS really took a massive hit on my career. Before my spine started to act up, I was enjoying...reactions5comments
I Feel Unwelcome in My Own Body...The other day a friend sent me a poem and one line really stuck out to me. It said, “Growing inside of...reactions6comments
Is it time to change Dr? ...Hello all you wonderful people. I’m new here. I hope your pain is ok today. I’ve been with pain management for 16...reactions3repliesCaregivingDiagnosisMental Health
How I Care For Myself: 6 Types of Self-Care...This article will be about my self-care plan. I always thought self-care was just taking baths, going for a walk and lighting candles to...reactions9comments
Exploring Fibromyalgia: Is It My AS or Something New?...I have been back on Humira for 6 months now, which is the same drug that had put me into remission for...reactions3comments
Starting biologics?...Hi all, I was diagnosed with AS over the summer and have tried NSAIDs, PT, Ibuprofen, etc. and I'm still not finding...reactions9repliesTreatmentTips & Advice
Tips For Going on Vacation With AS...Hey Guys, I'm planning on travelling to Mexico for a couple of weeks this summer to attend my friend's wedding and have...reactions15repliesTravelTips & Advice
Chronically Ill Through COVID-19...The COVID-19 pandemic as well as my spondyloarthritis (SpA) have tossed me in so many directions over the past 2 to 3...reactions5comments
Fatigue, The Mother of All Calls From Inside The House...Anybody reading this already knows that arthritis is serious. It hurts. It burns. It stops people in their tracks with brain fog...reactions3comments
7 Questions for Checking in With A Partner...Next month marks 14 years since Keegan and I got together. I remember it very fondly. We were 17-years-old and mutual friends...reactions2comments
Adapting to Work Environment Changes with AxSpA...There’s a huge shift happening right now in on the work scene, with employees demanding more in terms of benefits, pay, and...reactions4comments
What is My Criteria for a New Rheumatologist?...My rheumatologist of the last fifteen or so years is retiring. Talk about striking fear in the heart of a long-term patient...reactions11comments
The Nutrition Paradox...When I was diagnosed with AS, I was also diagnosed with Crohn's Disease. A double whammy. I grew to understand that dietary...reactions4comments
Could I have AS? I have no idea!...First, some background. I am a 45yr old female. In my mid 20's I started experiencing excruciating knee pain in my left...reactions3repliesDiagnosisSymptomsTips & Advice
I’m So Over It - Chronic Illness and Healthcare Burnout...2021 was fun, tiring, wonderful, complicated, and stressful, among other things. Above all, it was a long, exhausting year full of healthcare...reactions4comments
Mourning My Former Athleticism...Receiving an AxSpA diagnosis can come with a flurry of emotions, both good and bad. I received my diagnosis before my senior...reactions4comments
Twin Story...I am 31 years old and was diagnosed with ankylosing spondylitis aged 25 after suffering pain to some extent since early teen...reactions5comments
